Re: Pseudoepiphyses of the metacarpals - more info

[Guest guest]

- very intresting. I totally look forward to hearing some

answers!

- H

>

> Hi,

>

> If anyone saw my post about 5 wks ago wondering if there were

anyone

> whose child had pseudoepiphysis of the metacarpals it is

apparently

> not common but more common in RSS than SGA (isn't Emerence just so

> lucky? think she should buy a lottery ticket LOL!?). It is the

most

> common in any of the forms of primordial dwarfism of which RSS is

> one. So SGA is just off on its own island for this funky thing I

> guess....

>

> Oh, p of the m is apparently funny shaped growth plates. So here

is

> the question, what happens if we do GH and are zall growth plates

in

> her body funny?

>

> Her geneticist is trying to pin down the best guy at Children's

> Hospital to discuss his findings but she thinks we are looking at

> antoher full skeletal survey (she had one from when she was about

1

> year old). Her bone age has progressed and now appears to be age

> appropriate. Not sure if that is good or not...

>

> Always something...

>

> megan, mom to Emerence NOT gaining or growing, 33 mo 22lb and 32 "

> (these stats ahven't really changed in a long time...)

>