Re: hi my name is chelsea and i have RSS

[Guest guest]

Hi Chelsea,

I also have RSS, am less than 5 feet tall (I'm almost 4'8 " ), done

growing (I'm 28), but happy with myself. So we have lots in common!

Wanted to let you know that there's a RSS-People yahoogroup for people

with RSS (this website is primarily parents of RSS kids) -- feel free

to join us there!

Oh, and I'm not up on the most recent research, but I don't think

anyone really knows why or how we got RSS. Just a genetic mix-up when

we were made! Nobody did anything wrong or could have done anything

differently... Hopefully they'll do more research about the genetics

in the next few years so we can know more!

Nice to meet you!

-Ana

[Guest guest]

Welcome Chelsea,

My daughter was born small and we are going thru the

process to see if she has RSS. From what i gather it's

a genetic problem that some people are born with.

Nothing the mother or father did brought this on...

It's just one of those things. I would like to welcome

you to the group and I would enjoy hearing your story.

How old are you now? Where do you live?

Nice to meet you,

Pickett

--- angelmouse1989 wrote:

> Hi my name is Chelsea and i have RSS.

> My parents first found out when i came over here

> from England when i was 9 months old.

> i don't exctly get what it is or how it comes to

> happen to people!

> i'm old enough now to understand the taunts that

> people say to me about being shorter

> but i've decided to be happy with myself, i'm not

> even five foot & i wont be growing

> anymore. if anyone out there can help me understand

> how i came to get RSS i would much

> appreciate it.

> thankyou

>

>

>

>

__________________________________

Yahoo! FareChase: Search multiple travel sites in one click.

http://farechase.yahoo.com

[Guest guest]

Hi Chelsea!!

Welcome to the group!! As Ana posted, there is another group of people with

RSS, called amazingly enough RSS People! LOL But please don't think that

you're not welcome to post here anytime! We parents/g-parents loved to hear

from people who have already experienced what our children/g-children might.

As I understand things, RSS is considered a genetic anomaly, meaning that it

happens sporadically without known cause. There is nothing that can be done,

or not done, that will prevent it. It is rarely found twice in the same

family, although it can happen. RSS seems to come from the maternal side,

and the one family that I've heard of with 2 RSS children, the children have

the same mother, but different fathers. That would support the maternal

theory.

I hope this helps somewhat. You could also try visiting the website of the

MAGIC Foundation. This is the only Foundation with an RSS Division, and they

have lots of information. You'll find them at www.magicfoundation.org

Again, welcome aboard!!

Pat (g-ma to , RSS, 3 yrs 10 months old, 25#, 34.6 " , G-tube, GHT)

[Guest guest]

Hi Chelsea!

My name is Hillary, I'm 23 and I also have RSS. As

Ana and a few others have told you, there is also a

yahoo group specifically for people with RSS called

RSS People. The process for subscription to that

group is the same as this one. Anyway, it's nice to

meet you and I hope to see you soon on the RSS People

group. Let me know if I can do anything else for you

- my email address is hillaryjorgensen@ yahoo.com (no

space).

~Hillary

23, RSS

--- angelmouse1989 wrote:

> Hi my name is Chelsea and i have RSS.

> My parents first found out when i came over here

> from England when i was 9 months old.

> i don't exctly get what it is or how it comes to

> happen to people!

> i'm old enough now to understand the taunts that

> people say to me about being shorter

> but i've decided to be happy with myself, i'm not

> even five foot & i wont be growing

> anymore. if anyone out there can help me understand

> how i came to get RSS i would much

> appreciate it.

> thankyou

>

>

>

>

__________________________________

Start your day with Yahoo! - Make it your home page!

http://www.yahoo.com/r/hs

[Guest guest]

Hi,

Sorry for the questions - how old are you? Where are you from? Do

you see an endocrinologist? Are you taking growth hormones?

My daughter Emerence is SGA (small for gestational age) which is

pretty much RSS without the triangular face. She is 33 months old

and 32 " and 22lbs.

We are here to help! ARe your parents going to join this board too?

There is also a group just for RSS adults/teens I think called RSS

People...

>

> Hi my name is Chelsea and i have RSS.

> My parents first found out when i came over here from England when

i was 9 months old.

> i don't exctly get what it is or how it comes to happen to people!

> i'm old enough now to understand the taunts that people say to me

about being shorter

> but i've decided to be happy with myself, i'm not even five foot &

i wont be growing

> anymore. if anyone out there can help me understand how i came to

get RSS i would much

> appreciate it.

> thankyou

>

[Guest guest]

Hi Chelsea. As you can see from other posts it is a genetic disorder. No one

is sure how or why it happens. Where do you live now and how old are you?

B

and Kelli

angelmouse1989 wrote:

Hi my name is Chelsea and i have RSS.

My parents first found out when i came over here from England when i was 9

months old.

i don't exctly get what it is or how it comes to happen to people!

i'm old enough now to understand the taunts that people say to me about being

shorter

but i've decided to be happy with myself, i'm not even five foot & i wont be

growing

anymore. if anyone out there can help me understand how i came to get RSS i

would much

appreciate it.

thankyou

[Guest guest]

Hello Chelsea,

It is good to hear from you and nice you can join us. I am 28 yrs. old and also

have RSS. I live in Kansas. How old are you and where do you live?? It sounds

like you have a great positive attitude!! Hope to hear more about you!!

Sincerely

angelmouse1989 wrote:

Hi my name is Chelsea and i have RSS.

My parents first found out when i came over here from England when i was 9

months old.

i don't exctly get what it is or how it comes to happen to people!

i'm old enough now to understand the taunts that people say to me about being

shorter

but i've decided to be happy with myself, i'm not even five foot & i wont be

growing

anymore. if anyone out there can help me understand how i came to get RSS i

would much

appreciate it.

thankyou

[Guest guest]

Hi Chelsea. Welcome to the group here. I see that some of the other

RSS women have contacted you. I hope you can hang around with us, as

well as the RSS people site. We would love to hear more about you as

well.

Jodi R.

's mommy

> Hi my name is Chelsea and i have RSS.

> My parents first found out when i came over here from England when

i was 9 months old.

> i don't exctly get what it is or how it comes to happen to people!

> i'm old enough now to understand the taunts that people say to me

about being shorter

> but i've decided to be happy with myself, i'm not even five foot &

i wont be growing

> anymore. if anyone out there can help me understand how i came to

get RSS i would much

> appreciate it.

> thankyou

>

>

>

>

>

>

[Guest guest]

hey there,

i'm 16 and i live in NewZealand i think i'm one of

only five yound adults here who actually has this

condition.

I used to be really down on myself but i have realized

that i can't change the way i look so i've decided to

be happy being who i am.

xoxoxoxoMousie xoxoxoxoxo

Send instant messages to your online friends http://au.messenger.yahoo.com

[Guest guest]

hey there,

i'm 16 and i live in NewZealand i think i'm one of

only five yound adults here who actually has this

condition in New Zealand

I used to be really down on myself but i have realized

that i can't change the way i look so i've decided to

be happy being who i am.

--- Briggs wrote:

---------------------------------

Hi Chelsea. As you can see from other posts it is a

genetic disorder. No one is sure how or why it

happens. Where do you live now and how old are you?

B

and Kelli

angelmouse1989 wrote:

Hi my name is Chelsea and i have RSS.

My parents first found out when i came over here from

England when i was 9 months old.

i don't exctly get what it is or how it comes to

happen to people!

i'm old enough now to understand the taunts that

people say to me about being shorter

but i've decided to be happy with myself, i'm not even

five foot & i wont be growing

anymore. if anyone out there can help me understand

how i came to get RSS i would much

appreciate it.

thankyou

[Guest guest]

hey there,

i'm 16 and i live in NewZealand i think i'm one of

only five yound adults here who actually has this

condition in New Zealand

I was asked me when i was about 10 or 11 years old if

i would like to take growth hormones but decided

against it when i heard that there was 4/5 of a chance

that i would get diabetes.

I used to go to the hospital every threee months to

get weighed and to see how much i would grow in that

amount of time, i don't go anymore but my doctor was

the head of RSS research.

xoxoxoxoMousie xoxoxoxoxo

Send instant messages to your online friends http://au.messenger.yahoo.com

[Guest guest]

Hi Chelsea! Welcome to the group! We are so glad to have you

here. You will find a wealth of knowledge here and through the

MAGIC Foundation website - but, more importantly - you will find a

wonderful group of individuals who are caring and understanding.

Please feel free to chat, vent, and question anyone here - at any

time.

My son has RSS - he's 2.5. God has given my son to me to teach me

patience, resiliance, optimism, faith, success, advocacy, and much

much more. I'm sure you have just as many blessings to share.

Look forward to talking with you more!

- H

>

> Hi my name is Chelsea and i have RSS.

> My parents first found out when i came over here from England when

i was 9 months old.

> i don't exctly get what it is or how it comes to happen to people!

> i'm old enough now to understand the taunts that people say to me

about being shorter

> but i've decided to be happy with myself, i'm not even five foot &

i wont be growing

> anymore. if anyone out there can help me understand how i came to

get RSS i would much

> appreciate it.

> thankyou

>