Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 You better KNOW you belong here, girl!! ) You are doing a great job. Don't ever be afraid to ask any question. No question is a bad one. Just shows you are trying to learn more for the well-being of your daughter. Good job!!! ) Jodi R. 's momma > > > Reah, > > I just read your post in response to my original one > > about how we can > > get bogged down sometimes. In your post you said > > that many of us > > deal with so much more than you do. Well, that may > > be so, but the > > feeding issue in itself is one of our biggest > > challenges. You said > > you didn't feel like you had the right to " vent " > > since you aren't > > dealing with as much. That is simply NOT true. You > > have every right > > to come on here and vent all you need to. We all > > understand the > > feeding difficulties you are experiencing. Trying > > to feed your > > daughter when she just isn't interested is very > > frustrating and day > > in and day out it really starts to take its toll. > > is on a > > feeding tube and gets about 95% of his nutrition > > that way. We are > > currently working with him to try to get him to eat > > more, and that > > means reducing his tube feedings to get him " hungry " > > enough to eat. > > And, this is trial and error. Because if we don't > > reduce him enough, > > he still isn't hungry. But, if we reduce him too > > much he loses > > weight!! So, it is a constant battle here for us > > too. > > Unfortunately, isn't on Periactin to help > > stimulate his > > appetite, and I don't know if it will ever be an > > option for him since > > he has pretty severe reflux and this tends to make > > that worse. > > > > Anyway, I know you need to come on here and keep > > asking your > > questions and vent whenever you need to. It really > > is one of the > > best things you can do. Just after writing my > > original post, I felt > > a little better. Just getting it off your chest > > will make a big > > difference. And, once you get support from others > > who have read it, > > that helps so much. So, please don't ever feel like > > you don't have > > the " right " to do anything on here. We are all here > > to listen, > > support, and encourage. Whether you are new or have > > been on here for > > years!! ) I just wanted you to know that! > > > > Take care and keep posting, > > Jodi R. > > 's mommy > > > > > > > > > > > > > > __________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com > Quote Link to comment Share on other sites More sharing options...
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