Re: New to the group! Please Read

[Guest guest]

Are you in Vermont, perchance? Better double check that your

pediatrician didn't just make you an appointment at the local rehab

office (PT/OT), which will waste a couple more weeks of your precious

time. Happened to us! I had asked for a " referral for a helmet. "

Fired her ass.

And you're going to need a new pediatrician anyway, if they're that

ignorant. The FDA approved the DOC band in 1998. So you have to

wonder if she could rule out craniosynostosis, even if she wanted

to. I would suggest following your current plan AND independently

contacting a craniofacial clinic, as well as seeking a new

pediatrician or family doctor simultaneously. See which of the three

pans out first.

Insurance confuses things, but you are the customer, and you deserve

any reasonable service from your practitioners that you request. You

just have to state clearly that in this instance, the service you

want is a prescription for a cranial remodeling orthosis, not a

baseless opinion for you to defer to. The primary caregiver is you.

--

Thad Launderville

town, VT

Clara age 3, STARband '10

On Apr 1, 2011, at 8:45 PM, Yanina wrote:

> So I called the Pedi yesterday and told her that I want a referral

> to a specialist which she agreed, since I had her on the phone I

> asked her about the DOC BAND and I quote this was her reply:

>

> " It is a scam, it is not FDA approved, it is a waste of money and

> essentially does not work. "

>

> I do not understand why she is so against it!

[Guest guest]

I am in Las Vegas, Wow that is crazy about the local rehab! They must think this is some kind of joke! I am on a alternative vaccine schedule, and she is amazing accommodating that, it will be pain to get another Pedi, but I already have someone else in mind. She never even said he has plagio, when you can clearly see he has it!I might have to make an appointment to this new pedi just to get another opinion. Thank you for the warning and advice! From: Thad Launderville <p38thadl@...>Plagiocephaly Sent: Fri, April 1, 2011 7:46:44 PMSubject: Re: New to the group! Please Read

Are you in Vermont, perchance? Better double check that your

pediatrician didn't just make you an appointment at the local rehab

office (PT/OT), which will waste a couple more weeks of your precious

time. Happened to us! I had asked for a "referral for a helmet."

Fired her ass.

And you're going to need a new pediatrician anyway, if they're that

ignorant. The FDA approved the DOC band in 1998. So you have to

wonder if she could rule out craniosynostosis, even if she wanted

to. I would suggest following your current plan AND independently

contacting a craniofacial clinic, as well as seeking a new

pediatrician or family doctor simultaneously. See which of the three

pans out first.

Insurance confuses things, but you are the customer, and you deserve

any reasonable service from your practitioners that you request. You

just have to state clearly that in this instance, the service you

want is a prescription for a cranial remodeling orthosis, not a

baseless opinion for you to defer to. The primary caregiver is you.

--

Thad Launderville

town, VT

Clara age 3, STARband '10

On Apr 1, 2011, at 8:45 PM, Yanina wrote:

> So I called the Pedi yesterday and told her that I want a referral

> to a specialist which she agreed, since I had her on the phone I

> asked her about the DOC BAND and I quote this was her reply:

>

> "It is a scam, it is not FDA approved, it is a waste of money and

> essentially does not work."

>

> I do not understand why she is so against it!

[Guest guest]

Thad - well put! > So I called the Pedi yesterday and told her that I want a referral > to a specialist which she agreed, since I had her on the phone I > asked her about the DOC BAND and I quote this was her reply:>> "It is a scam, it is not FDA approved, it is a waste of money and > essentially does not work.">> I do not understand why she is so against it!

[Guest guest]

Tell your pedi that you are sorry but if she can not fulfill your request for a Rx then you will have to find a pedi that will. Point said. There are plenty of peds out there that do believe that this is a legitimate problem and will give you the Rx.

From: Yanina <i.yanina@...>Plagiocephaly Sent: Fri, April 1, 2011 8:45:53 PMSubject: New to the group! Please Read

Hello everybody I am so happy I found parents that are experiencing the same things we are.I never noticed my sons flat head until a lactation consulted came over when he was almost 2 months. She told me do you know your sons face is lopsided? NO! She told me he has torticollis and started babbling on about his flat head, and so on. I made an appointment to the pediatrician the next day. She told me he had mild torticollis and repositioning should help, nothing to worry about. Then around the 3 1/2 months I started to notice that the right eye is much bigger than the left, also the left side of his is a little slanted. I brought this up to the pediatrician at the next appointment, and she said it is a jaw deformity, it is common and will resolve on its own. Oh and I bought him a noggin nest for the flat head which seemed to help a lot! However, he is now 5 months old and I am started to notice that he has plagiocephaly, it is

much more visible now, the jaw is still slanted and the eye is smaller, the other cheek looks much fuller. My son had a wellness check up on Wednesday and of course the doctor said it is getting better, but I do not know what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE NOW! She never even noticed that the right side of the head is higher than the left (plagiocephaly). I keep hearing the same old sh-peal "it will fix on its own" the problem is I cannot take that risk. See I have a underbite and cross bite that can only be fixed now by orthonathic surgery, because my mom did not do anything about it when I was nine, I also have vision problems, and who knows maybe I had this when I was little as well. The point is I will not take a risk for it to fix on its own, I must take some sort of action whether it be PT or DocBand. I do not want my son going through what I am. I do not want him to question why I did not do

anything! So I called the Pedi yesterday and told her that I want a referral to a specialist which she agreed, since I had her on the phone I asked her about the DOC BAND and I quote this was her reply:"It is a scam, it is not FDA approved, it is a waste of money and essentially does not work."I do not understand why she is so against it! Well I went ahead and called DOC Band in Pasadena today, made a consult for April 14th, We live in Vegas so we will have to travel to each appointment by car. They said they have some old school pediatricians that just are not knowledgeable on the DOC Band so that is why some are against it.Here is the crazy part, I have to ask my Pedi for a prescription for the DOC Band. Any tips on how to get this done? Since she is so against it?Anyways I will keep everyone posted on how the consult goes as well as any PT!

[Guest guest]

There are few local clinics at Vegas who does plagiocephly helmet , also FDA appoved. You don't have to go to CT at CA.

From: Yanina <i.yanina@...>Subject: New to the group! Please ReadPlagiocephaly Date: Friday, April 1, 2011, 8:45 PM

Hello everybody I am so happy I found parents that are experiencing the same things we are.I never noticed my sons flat head until a lactation consulted came over when he was almost 2 months. She told me do you know your sons face is lopsided? NO! She told me he has torticollis and started babbling on about his flat head, and so on. I made an appointment to the pediatrician the next day. She told me he had mild torticollis and repositioning should help, nothing to worry about. Then around the 3 1/2 months I started to notice that the right eye is much bigger than the left, also the left side of his is a little slanted. I brought this up to the pediatrician at the next appointment, and she said it is a jaw deformity, it is common and will resolve on its own. Oh and I bought him a noggin nest for the flat head which seemed to help a lot! However, he is now 5 months old and I am started to notice that he has plagiocephaly, it is

much more visible now, the jaw is still slanted and the eye is smaller, the other cheek looks much fuller. My son had a wellness check up on Wednesday and of course the doctor said it is getting better, but I do not know what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE NOW! She never even noticed that the right side of the head is higher than the left (plagiocephaly). I keep hearing the same old sh-peal "it will fix on its own" the problem is I cannot take that risk. See I have a underbite and cross bite that can only be fixed now by orthonathic surgery, because my mom did not do anything about it when I was nine, I also have vision problems, and who knows maybe I had this when I was little as well. The point is I will not take a risk for it to fix on its own, I must take some sort of action whether it be PT or DocBand. I do not want my son going through what I am. I do not want him to question why I did not do

anything! So I called the Pedi yesterday and told her that I want a referral to a specialist which she agreed, since I had her on the phone I asked her about the DOC BAND and I quote this was her reply:"It is a scam, it is not FDA approved, it is a waste of money and essentially does not work."I do not understand why she is so against it! Well I went ahead and called DOC Band in Pasadena today, made a consult for April 14th, We live in Vegas so we will have to travel to each appointment by car. They said they have some old school pediatricians that just are not knowledgeable on the DOC Band so that is why some are against it.Here is the crazy part, I have to ask my Pedi for a prescription for the DOC Band. Any tips on how to get this done? Since she is so against it?Anyways I will keep everyone posted on how the consult goes as well as any PT!