Guest guest Posted January 23, 2010 Report Share Posted January 23, 2010 Went to Emory yesterday; saw Dr. Staton. I have been on oxygen 24/7 2 liter since early July and have been taking 40 mg of prednisone since August. I had almost stopped coughing for a while, but it's creeping back a little now. My energy level had improved when I started oxygen, and then went through the roof with the addition of prednisone; I'm back to taking occasional naps now. The Raynaud's seemed gone, actually, but fingers have been back to turning blue for the past week or so. I have a slight tremor, and I have gained 20 pounds!!!!!! Anyway..... Dr. Staton says ALL my numbers show slight improvement -- great news! I will be immediately reducing the prednisone to 30 mg, and then in a month to 20 mg. I stay at the lower dose for 3 months and then see him again. Here's a question for those on oxygen. When doing PFTs, do you stop after each test and breath oxygen for a while? Do you do the six minute walk with oxygen on? The reason I ask is that when I did previous PFTs/walks I wasn't on oxygen, and this morning I'm wondering if the use of oxygen during yesterday's tests might be a reason for the better numbers. Quote Link to comment Share on other sites More sharing options...
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