Re: Re: sleeping issues from treating hypoglycemia

[Guest guest]

In a message dated 2/2/2006 10:11:47 AM Central Standard Time,

earleyboys3@... writes:

Deb - may I ask why you are waking him up every three hours? Did a

physician suggest this?

yes...before our feeding schedule was 6a, 9a, 12p, 2p, 5p, 7p and Midnight.

Which still was a lot for a one year old, but he is on Neocate only (an

amino acid based formula) because of his major GI issues and allergies. We

plan

to start food trails on the 19th of this month. But since we had so many

calories to cram in, and he vomitted when we tried to feed him more volume and

stretch it out. After the hypoglycemia started in January and we were

inpatient twice for it, they monitored his sugars every two hours at night and

saw

during the 5 and 5 hours he usually fasts, he was dropping int he low 60s so

they said to go back to every three hours. The first time I tried to fudge,

he dropped to 52.

If it is because of hypoglycemia I

understand - but, sometimes they can go every four hours - which

would make it easier on you. Are you testing blood sugars at that

time too?

we are but usually they are right around 80...sometimes in the 70s after

three hours.

If it were me and blood sugars seemed stable for certain

lengths of time, I would try to lengthen the sleeping time if

possible. What has your physician said and are you seeing an Endo?

Sorry - I can't remember if you previously mentioned this.

They came up wiht the plan...I can't believe they would expect us to do this

indefinitely. I mean, selfishly it would be nice to be able to have more

sleep. But unselfishly, its not good for him to have so much interrupted

sleep.

We are waiting for the nurse to call back with the appt...nothing in our

local endo's office moves quickly. We have been home a week and left multiple

msgs and they are 'working on it'. We saw 3 of the 4 local endos while we

were in for our two hospitalizations. The fourth one is our other son's endo

and I love her, but not sure who they are going to asign us to since she wasn't

on call when we were in.

thanks...and looking forward to your thoughts!

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)

[Guest guest]

yes I think it needs to be addressed but I know they will flip here for

asking for one unless we have dealt with it a little bit longer. I am hoping

to

address it with the endo and so forth.

deb

[Guest guest]

Deb

If for no other reason than your little guy needs his sleep, you should be going

back to your GI doctor and investigating a feeding tube option. The second

reason is that it will stabilize his blood sugars and the third reason is you

guys can get your sleep. But if True is not getting his needed REM sleep each

night, he is not going to grow well and that is already an issue you have that

should not be compounded by the frequent feeding schedule.

Deb

Re: Re: sleeping issues from treating hypoglycemia

In a message dated 2/2/2006 10:11:47 AM Central Standard Time,

earleyboys3@... writes:

Deb - may I ask why you are waking him up every three hours? Did a

physician suggest this?

yes...before our feeding schedule was 6a, 9a, 12p, 2p, 5p, 7p and Midnight.

Which still was a lot for a one year old, but he is on Neocate only (an

amino acid based formula) because of his major GI issues and allergies. We

plan

to start food trails on the 19th of this month. But since we had so many

calories to cram in, and he vomitted when we tried to feed him more volume

and

stretch it out. After the hypoglycemia started in January and we were

inpatient twice for it, they monitored his sugars every two hours at night

and saw

during the 5 and 5 hours he usually fasts, he was dropping int he low 60s so

they said to go back to every three hours. The first time I tried to fudge,

he dropped to 52.

If it is because of hypoglycemia I

understand - but, sometimes they can go every four hours - which

would make it easier on you. Are you testing blood sugars at that

time too?

we are but usually they are right around 80...sometimes in the 70s after

three hours.

If it were me and blood sugars seemed stable for certain

lengths of time, I would try to lengthen the sleeping time if

possible. What has your physician said and are you seeing an Endo?

Sorry - I can't remember if you previously mentioned this.

They came up wiht the plan...I can't believe they would expect us to do this

indefinitely. I mean, selfishly it would be nice to be able to have more

sleep. But unselfishly, its not good for him to have so much interrupted

sleep.

We are waiting for the nurse to call back with the appt...nothing in our

local endo's office moves quickly. We have been home a week and left

multiple

msgs and they are 'working on it'. We saw 3 of the 4 local endos while we

were in for our two hospitalizations. The fourth one is our other son's endo

and I love her, but not sure who they are going to asign us to since she

wasn't

on call when we were in.

thanks...and looking forward to your thoughts!

deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with

Mitochondrial Myopathy...G, 6, with High Functioning Autism, Hypoglycemia and

Precocious Puberty...B, 4, with VERY mild Cerebral Palsy...and True 1yo, with

Neuromotor Disorder, Hypoglycemia, Myoclonus, ulcers, undiagnosed GI problems

plus severe food allergies (Eggs, Peanut, Milk, Soy, Corn, Rice, Oats and

Crab/Neocate-only), Plagiocephaly and Dysphagia....Married for 12 years to

F--one

swell guy!_ www.caringbridge.org/tn/wells/_

(http://www.caringbridge.org/tn/wells/) (http://www.lifeofloveproject.org/)