Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 This is the 2nd post ive made dont know where the first one ended up so sorry if Im repeating myself. We were at the Endo yesterday who said that Morven definatly does not have RSS.He said her catch up growth was too quick.She is 79 cm and almost 20lb and she has just turned 17mths.He said he has never know a baby this tall with RSS. Im not convinced though.She has too many anomalies.Webbed toe,Dimple on bottom,Slightly rotated ear.Endo said all theses things are so common and that Im just looking for things. Does anyone else know of any kids who have been this height and its tailed off?Morven is the 50th centile for height.When she was born she wasnt even on the chart. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 , My RSS son, Colin is 50%ile for height and I know Dayna's daughter is as well so it is not impossible. Colin was not on the chart until age 1 and then by 2 he was at 25%ile and slowly has gone up from there. His twin is 95%ile and height is in our family genes. I wouldn't give up yet. Are you able to go to convention to get Dr. H's opinion? > > This is the 2nd post ive made dont know where the first one ended up > so sorry if Im repeating myself. > > We were at the Endo yesterday who said that Morven definatly does not > have RSS.He said her catch up growth was too quick.She is 79 cm and > almost 20lb and she has just turned 17mths.He said he has never know a > baby this tall with RSS. > > Im not convinced though.She has too many anomalies.Webbed toe,Dimple > on bottom,Slightly rotated ear.Endo said all theses things are so > common and that Im just looking for things. > > Does anyone else know of any kids who have been this height and its > tailed off?Morven is the 50th centile for height.When she was born she > wasnt even on the chart. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 > > > > This is the 2nd post ive made dont know where the first one ended > up > > so sorry if Im repeating myself. > > > > We were at the Endo yesterday who said that Morven definatly does > not > > have RSS.He said her catch up growth was too quick.She is 79 cm > and > > almost 20lb and she has just turned 17mths.He said he has never > know a > > baby this tall with RSS. > > > > Im not convinced though.She has too many anomalies.Webbed > toe,Dimple > > on bottom,Slightly rotated ear.Endo said all theses things are so > > common and that Im just looking for things. > > > > Does anyone else know of any kids who have been this height and > its > > tailed off?Morven is the 50th centile for height.When she was born > she > > wasnt even on the chart. > > > > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi Danyna and everyone. DITTO, DITTO, DITTO. LlISTEN TO MOMS OF RSS and SGA children. Watch the sudden growth, it is NOT what you think. Get the bone age done and then insist on medications so that they do not fall behind later. Also when you see hair in adult places then take a flash light and shine it under the arms of your child. Do not be surprised to see several little hair soldiers in that light. IF you see that it is another reason to get the levels for FSH and LSH and contemporaneous to that--- the bone age. At that point some children are 2ys above chronological age. We BEGGED for GHT while my child was having the BAD (due to puberty) growth- and we just got the GHT at age 9ys almost 4 months. She has not grown one bit since September of 05, stopping at 4ft 1. NOW how much good do you really feel this will do as we begin so late? She will get her first injection this Monday with the training nurse. You have to be educated here on our chldren and you will know more than many of the doctors. Assert yourselves so you will not be in our shoes. First they are not on the chart, then they suddenly are, and then they stop right in their tracks at an early age. Watch for the signs, if they apply test, test, test. AvaMarie > > > > > > This is the 2nd post ive made dont know where the first one > ended > > up > > > so sorry if Im repeating myself. > > > > > > We were at the Endo yesterday who said that Morven definatly > does > > not > > > have RSS.He said her catch up growth was too quick.She is 79 cm > > and > > > almost 20lb and she has just turned 17mths.He said he has never > > know a > > > baby this tall with RSS. > > > > > > Im not convinced though.She has too many anomalies.Webbed > > toe,Dimple > > > on bottom,Slightly rotated ear.Endo said all theses things are > so > > > common and that Im just looking for things. > > > > > > Does anyone else know of any kids who have been this height and > > its > > > tailed off?Morven is the 50th centile for height.When she was > born > > she > > > wasnt even on the chart. > > > > > > Thanks > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 > > > > > > > > This is the 2nd post ive made dont know where the first one > > ended > > > up > > > > so sorry if Im repeating myself. > > > > > > > > We were at the Endo yesterday who said that Morven definatly > > does > > > not > > > > have RSS.He said her catch up growth was too quick.She is 79 > cm > > > and > > > > almost 20lb and she has just turned 17mths.He said he has > never > > > know a > > > > baby this tall with RSS. > > > > > > > > Im not convinced though.She has too many anomalies.Webbed > > > toe,Dimple > > > > on bottom,Slightly rotated ear.Endo said all theses things are > > so > > > > common and that Im just looking for things. > > > > > > > > Does anyone else know of any kids who have been this height > and > > > its > > > > tailed off?Morven is the 50th centile for height.When she was > > born > > > she > > > > wasnt even on the chart. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 > > > > > > > > This is the 2nd post ive made dont know where the first one > > ended > > > up > > > > so sorry if Im repeating myself. > > > > > > > > We were at the Endo yesterday who said that Morven definatly > > does > > > not > > > > have RSS.He said her catch up growth was too quick.She is 79 > cm > > > and > > > > almost 20lb and she has just turned 17mths.He said he has > never > > > know a > > > > baby this tall with RSS. > > > > > > > > Im not convinced though.She has too many anomalies.Webbed > > > toe,Dimple > > > > on bottom,Slightly rotated ear.Endo said all theses things are > > so > > > > common and that Im just looking for things. > > > > > > > > Does anyone else know of any kids who have been this height > and > > > its > > > > tailed off?Morven is the 50th centile for height.When she was > > born > > > she > > > > wasnt even on the chart. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 > > > > > > > > This is the 2nd post ive made dont know where the first one > > ended > > > up > > > > so sorry if Im repeating myself. > > > > > > > > We were at the Endo yesterday who said that Morven definatly > > does > > > not > > > > have RSS.He said her catch up growth was too quick.She is 79 > cm > > > and > > > > almost 20lb and she has just turned 17mths.He said he has > never > > > know a > > > > baby this tall with RSS. > > > > > > > > Im not convinced though.She has too many anomalies.Webbed > > > toe,Dimple > > > > on bottom,Slightly rotated ear.Endo said all theses things are > > so > > > > common and that Im just looking for things. > > > > > > > > Does anyone else know of any kids who have been this height > and > > > its > > > > tailed off?Morven is the 50th centile for height.When she was > > born > > > she > > > > wasnt even on the chart. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 > > > > > > > > This is the 2nd post ive made dont know where the first one > > ended > > > up > > > > so sorry if Im repeating myself. > > > > > > > > We were at the Endo yesterday who said that Morven definatly > > does > > > not > > > > have RSS.He said her catch up growth was too quick.She is 79 > cm > > > and > > > > almost 20lb and she has just turned 17mths.He said he has > never > > > know a > > > > baby this tall with RSS. > > > > > > > > Im not convinced though.She has too many anomalies.Webbed > > > toe,Dimple > > > > on bottom,Slightly rotated ear.Endo said all theses things are > > so > > > > common and that Im just looking for things. > > > > > > > > Does anyone else know of any kids who have been this height > and > > > its > > > > tailed off?Morven is the 50th centile for height.When she was > > born > > > she > > > > wasnt even on the chart. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 > > > > > > > > This is the 2nd post ive made dont know where the first one > > ended > > > up > > > > so sorry if Im repeating myself. > > > > > > > > We were at the Endo yesterday who said that Morven definatly > > does > > > not > > > > have RSS.He said her catch up growth was too quick.She is 79 > cm > > > and > > > > almost 20lb and she has just turned 17mths.He said he has > never > > > know a > > > > baby this tall with RSS. > > > > > > > > Im not convinced though.She has too many anomalies.Webbed > > > toe,Dimple > > > > on bottom,Slightly rotated ear.Endo said all theses things are > > so > > > > common and that Im just looking for things. > > > > > > > > Does anyone else know of any kids who have been this height > and > > > its > > > > tailed off?Morven is the 50th centile for height.When she was > > born > > > she > > > > wasnt even on the chart. > > > > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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