Re: feeding tube confusion

[Guest guest]

Hi. my 2 yr old daughter got a g-tube in november and it was the Mic-

Key button immediatly so I didn't have to deal with the tube you are

talking about. Yes, at first Autumn had some granulation tissue but

they used some silver nitrate on it and some came back so we used a

steroid cream for a while and it got rid of the problem. Someitmes

it gets irritated but it can be taken care of with cream or a bandage

placed around the button. Over all I have to say the button is

great. One night somehow the button got open and nothing leaked out

because it has a safety valve. IT is very easy to use, doens't

bother my daughter and is very low maintanance. It needs to be

changes out every 6-9 mos her doc says although she already has

received a new one. The tubes easily attach to the button and don't

come out during a feed. I know the balloons can burst but what I was

told is then you just replace the button and it is very simple, we

have one here.

Good luck!

mom to Autumn 2 RSS, Summer 6.5 mos SGA possible RSS,

Ocean, Skye

>

> Hi everyone,

> It has been a while since I posted last. But when I did we were

just

> making the decision whether to get a feeding tube or not. Well we

> did and it has been two months. When we talked about getting the

> tube with our GI doctor we asked about the button. We were told

> that we would after a couple months. Well when I called the nurse

to

> ask when we would get it she said that not unless what we have is a

> problem, that they have never done that for their patients. We

were

> very upset because we were under the impression that what we have

is

> part of the process and you change to the button in a couple

> months. Well from that the nurse said we could talk to him today.

> In talking with him we come away with this, more maintenance, a

> different type of plastic which may cause granulation tissue or

> irritation, and the balloons bust and have to be changed out. Now I

> guess it is up to us. Today he shortened the line today that we

tape

> to her. So we need some input on the buttons or if anyone has just

> kept tube with the line and adaptor on the end (I don't know what

it

> is called). Any help or advice would be great. We don't know what

to

> do now. We were very angry because we thought what we have now was

> one step to the button but now the button sounds kind of scary.

>

> Tolbert

> Maddison RSS, 1 month away from being 5 yrs, 26 lbs,

>

[Guest guest]

Hi. my 2 yr old daughter got a g-tube in november and it was the Mic-

Key button immediatly so I didn't have to deal with the tube you are

talking about. Yes, at first Autumn had some granulation tissue but

they used some silver nitrate on it and some came back so we used a

steroid cream for a while and it got rid of the problem. Someitmes

it gets irritated but it can be taken care of with cream or a bandage

placed around the button. Over all I have to say the button is

great. One night somehow the button got open and nothing leaked out

because it has a safety valve. IT is very easy to use, doens't

bother my daughter and is very low maintanance. It needs to be

changes out every 6-9 mos her doc says although she already has

received a new one. The tubes easily attach to the button and don't

come out during a feed. I know the balloons can burst but what I was

told is then you just replace the button and it is very simple, we

have one here.

Good luck!

mom to Autumn 2 RSS, Summer 6.5 mos SGA possible RSS,

Ocean, Skye

>

> Hi everyone,

> It has been a while since I posted last. But when I did we were

just

> making the decision whether to get a feeding tube or not. Well we

> did and it has been two months. When we talked about getting the

> tube with our GI doctor we asked about the button. We were told

> that we would after a couple months. Well when I called the nurse

to

> ask when we would get it she said that not unless what we have is a

> problem, that they have never done that for their patients. We

were

> very upset because we were under the impression that what we have

is

> part of the process and you change to the button in a couple

> months. Well from that the nurse said we could talk to him today.

> In talking with him we come away with this, more maintenance, a

> different type of plastic which may cause granulation tissue or

> irritation, and the balloons bust and have to be changed out. Now I

> guess it is up to us. Today he shortened the line today that we

tape

> to her. So we need some input on the buttons or if anyone has just

> kept tube with the line and adaptor on the end (I don't know what

it

> is called). Any help or advice would be great. We don't know what

to

> do now. We were very angry because we thought what we have now was

> one step to the button but now the button sounds kind of scary.

>

> Tolbert

> Maddison RSS, 1 month away from being 5 yrs, 26 lbs,

>

[Guest guest]

Hi. my 2 yr old daughter got a g-tube in november and it was the Mic-

Key button immediatly so I didn't have to deal with the tube you are

talking about. Yes, at first Autumn had some granulation tissue but

they used some silver nitrate on it and some came back so we used a

steroid cream for a while and it got rid of the problem. Someitmes

it gets irritated but it can be taken care of with cream or a bandage

placed around the button. Over all I have to say the button is

great. One night somehow the button got open and nothing leaked out

because it has a safety valve. IT is very easy to use, doens't

bother my daughter and is very low maintanance. It needs to be

changes out every 6-9 mos her doc says although she already has

received a new one. The tubes easily attach to the button and don't

come out during a feed. I know the balloons can burst but what I was

told is then you just replace the button and it is very simple, we

have one here.

Good luck!

mom

>

> Hi everyone,

> It has been a while since I posted last. But when I did we were

just

> making the decision whether to get a feeding tube or not. Well we

> did and it has been two months. When we talked about getting the

> tube with our GI doctor we asked about the button. We were told

> that we would after a couple months. Well when I called the nurse

to

> ask when we would get it she said that not unless what we have is a

> problem, that they have never done that for their patients. We

were

> very upset because we were under the impression that what we have

is

> part of the process and you change to the button in a couple

> months. Well from that the nurse said we could talk to him today.

> In talking with him we come away with this, more maintenance, a

> different type of plastic which may cause granulation tissue or

> irritation, and the balloons bust and have to be changed out. Now I

> guess it is up to us. Today he shortened the line today that we

tape

> to her. So we need some input on the buttons or if anyone has just

> kept tube with the line and adaptor on the end (I don't know what

it

> is called). Any help or advice would be great. We don't know what

to

> do now. We were very angry because we thought what we have now was

> one step to the button but now the button sounds kind of scary.

>

> Tolbert

> Maddison RSS, 1 month away from being 5 yrs, 26 lbs,

>