Re: Nutrition Q'S (your top 10 list)

[Guest guest]

Speaking personally, I have a few issues. One is calorie packing

's food. We are weaning off the pump (just cut back another

150 ml per day) and need to make that up in food. I have no idea

how many calories eats, let alone how many he should eat.

The other is decreasing Becca's calories as she is becoming

overweight.

Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the

Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her

this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

Hi Judith. I don't know much about nutrition but I do know that when Brockton

recently saw a nutritionist she said he should be getting between 1100 and 1300

calories per day. I honestly don't know how you can track these kids

intake...........Brocktons, at least. He eats so many times a day, but such

small amounts, rarely a full serving of anything. He is supposed to have 4 cans

of Pediasure a day, which are 237 calories per 8 oz. can. I wish I had some

wise words for you. If you figure something out, make sure to let the rest of

us know! LOL

Sidny27 wrote: Speaking personally, I have a few issues.

One is calorie packing

's food. We are weaning off the pump (just cut back another

150 ml per day) and need to make that up in food. I have no idea

how many calories eats, let alone how many he should eat.

The other is decreasing Becca's calories as she is becoming

overweight.

Judith, Steve, (RSS) and (non RSS) 6 year old twins

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the

Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her

this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

hi katy,

this will be great info for all families.

here are my thoughts.......i need to know what is a good snack for school

jacob now 9 years old eats two snacks a day at school one in the am and one in

the pm. also

i would like to hear how to get more things onto jacob mealtime plate without

having to add to the rest of the meal as some of us in my family do not need the

extra my 5 year old is 95% all around hieght wieght so i can't see add to her

meal but think i need to add to his.

cara mom to jacob 9

katyudine wrote:

Hi,

As you may know, one highlight of Convention 06 is this: the Ellyn

Satter Feeding Therapist/Dietician team is coming to not only present

a nutrition/feeding talk, but will also be on hand during the entire

Convention to meet families.

Whether you're able to go to Convention or not, what would your

requests/concerns/questions be for her? We're talking with her this

week to go over expectations and want to make sure she really focuses

on the needs of RSS/SGA families. (e.g. I would love to see the advice

she has re: school lunches for the RSS/SGA kid).

http://www.magicfoundation.org/downloads/cv06web925.pdf

Thanks..!

Katy

[Guest guest]

Katy,

I also would want to know how many Calories are needed , not just to

sustain Grace, but to help her grow. Does it matter what calories

come from(sugar/fat/protein)? I have also been wondering about

vitamins/ supplements. Do they recommend any? I have many friends

who are really into natural/organic/supplements. How can I add

calories without adding quantity? Thanks! Can't wait to hear the

teams advice at the Conference.

Terri, mom of twins: Alivia(non rss) and Grace(rss, g-tube, GHT, 37

mths, 21 lbs, 31 1/4 in)

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

Katy,

I also would want to know how many Calories are needed , not just to

sustain Grace, but to help her grow. Does it matter what calories

come from(sugar/fat/protein)? I have also been wondering about

vitamins/ supplements. Do they recommend any? I have many friends

who are really into natural/organic/supplements. How can I add

calories without adding quantity? Thanks! Can't wait to hear the

teams advice at the Conference.

Terri, mom of twins: Alivia(non rss) and Grace(rss, g-tube, GHT, 37

mths, 21 lbs, 31 1/4 in)

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

I would like to know what the best foods are to keep Blood Sugars

stable for the longest periods of time. I would also like to know

what to do if your kid is so picky that all you can get in is bad

calories...do you supplement with OTC vitamins or what?! ---

In RSS-Support , " katyudine " wrote:

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the

Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her

this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

hi; we found out in some text (we don´t remember exactly where)that a

normal child need 90 cal/kg/day, and a RSS child in order to catch up

needs 130 and idealy 160 cal/kg/day.

Dr. Harbison, adviced us to put cream in the milk (1 oz crean and 3

oz milk), we have 1 bottle to the RSS child and another for the

others childrens.

Also our child loves catchup, so we put canola oil in it, also a

special catchup for the others childrens.

This week we made pop-corn and for the RSS we put melt-butter

> >

> > Hi,

> > As you may know, one highlight of Convention 06 is this: the

> Ellyn

> > Satter Feeding Therapist/Dietician team is coming to not only

> present

> > a nutrition/feeding talk, but will also be on hand during the

> entire

> > Convention to meet families.

> >

> > Whether you're able to go to Convention or not, what would your

> > requests/concerns/questions be for her? We're talking with her

> this

> > week to go over expectations and want to make sure she really

> focuses

> > on the needs of RSS/SGA families. (e.g. I would love to see the

> advice

> > she has re: school lunches for the RSS/SGA kid).

> >

> > http://www.magicfoundation.org/downloads/cv06web925.pdf

> >

> > Thanks..!

> >

> > Katy

> >

>

[Guest guest]

Hi,

This issue is exactly what I need, and here goes some questions:

1 - In Ellins Satter´s book, she wrotes that a parent is responsable

for meal´s menu and time, but about the amount a child need to eat,

this is up to the child. Is this true also for RSS childs ? Our

daughter (4 years) needs to intake calories in order to catch up,

but it´s seems that whenever we try to feed her more, she eats worse.

She used to eat by herself and now she wants us to feed her.

2- Is there any diference between fat,proteins or other calories ?

3- Are ice creams (made from eggs, oil and sugar) and chocolates good

for her ? In chocolate we have a lot of calories.

4- Dr. Harbison told us to give 6 meals/day, we found it very hard to

acomplish. It´s seems that she stills full from the last meal, any

advise ?

5 - If you feed something to much fat (i.e. something with a lot of

calories) in the breakfast, it´s possible that she will fell full for

a long time ? Maybe it´s better to feed her those thing in the

evening ?

I hope listen from you some advices,

Thank you

Yacov

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

Hi,

This issue is exactly what I need, and here goes some questions:

1 - In Ellins Satter´s book, she wrotes that a parent is responsable

for meal´s menu and time, but about the amount a child need to eat,

this is up to the child. Is this true also for RSS childs ? Our

daughter (4 years) needs to intake calories in order to catch up,

but it´s seems that whenever we try to feed her more, she eats worse.

She used to eat by herself and now she wants us to feed her.

2- Is there any diference between fat,proteins or other calories ?

3- Are ice creams (made from eggs, oil and sugar) and chocolates good

for her ? In chocolate we have a lot of calories.

4- Dr. Harbison told us to give 6 meals/day, we found it very hard to

acomplish. It´s seems that she stills full from the last meal, any

advise ?

5 - If you feed something to much fat (i.e. something with a lot of

calories) in the breakfast, it´s possible that she will fell full for

a long time ? Maybe it´s better to feed her those thing in the

evening ?

I hope listen from you some advices,

Thank you

Yacov

>

> Hi,

> As you may know, one highlight of Convention 06 is this: the Ellyn

> Satter Feeding Therapist/Dietician team is coming to not only

present

> a nutrition/feeding talk, but will also be on hand during the

entire

> Convention to meet families.

>

> Whether you're able to go to Convention or not, what would your

> requests/concerns/questions be for her? We're talking with her this

> week to go over expectations and want to make sure she really

focuses

> on the needs of RSS/SGA families. (e.g. I would love to see the

advice

> she has re: school lunches for the RSS/SGA kid).

>

> http://www.magicfoundation.org/downloads/cv06web925.pdf

>

> Thanks..!

>

> Katy

>

[Guest guest]

Hi Yacov,

Your questions are excellent...We had the exact same ones when

was young--In fact, I found postings I wrote back in 1999 asking the

same thing!

I have spoken with Ellyn Satter and she will indeed address these

questions. She knows that the RSS/SGA child may have seroius

appetite issues that might not be solved by the methods she describes

for normal kids.

I do know that with , one thing that helped was creating his

own " food cubbie " , at his height. We filled with snack items,

crackers, raising, nuts, etc., and he seemed to have fun being in

control of picking his own snacks.

As for different types of calories, a calorie is a calorie is a

calorie. However, sugars which convert quickly to calories can leave

a child feeling full right away. It's always better to emphasize

proteins and fats before the sugary foods.

We used to give lots of Breyer's ice cream...we liked the fact

that the only ingredients were natural...

(Now, Dr. H. tells us that has to watch his

weight...Unbelievable!!!! I never would have thought we would be

telling him to not eat so much).

Katy

> >

> > Hi,

> > As you may know, one highlight of Convention 06 is this: the

Ellyn

> > Satter Feeding Therapist/Dietician team is coming to not only

> present

> > a nutrition/feeding talk, but will also be on hand during the

> entire

> > Convention to meet families.

> >

> > Whether you're able to go to Convention or not, what would your

> > requests/concerns/questions be for her? We're talking with her

this

> > week to go over expectations and want to make sure she really

> focuses

> > on the needs of RSS/SGA families. (e.g. I would love to see the

> advice

> > she has re: school lunches for the RSS/SGA kid).

> >

> > http://www.magicfoundation.org/downloads/cv06web925.pdf

> >

> > Thanks..!

> >

> > Katy

> >

>