Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Hi We have just started the long daunting task of getting Liam enrolled for school next year. It is early but I think we are going to need the time to get everything in place. I need as much info as I can get from those who have done this. Australia is going to be different from America in funding etc, but Im hoping the basic info to give out will be the same. Liam will need to be tube fed at the moment he has 3 feeds a day through his pump, so he would need at least 2 at school. He is also still in Nappies(diapers) due to his chronic constipation problems and inability to control his bowel, this may be rectified with further diagnosis this year but I still have to plan for it. I am finding it very difficult to put together info for the school. I would like to use the Magic information but most of it is for parents and the whole phenotype/ genotype thing at the beginning is just confusing. Does anyone have a concise facts only description of RSS? What other issues need to be brought up?? Hope someone gets what Im looking for here? Any letters to schools or good resources would be appreciated. Maybe this is something we could start a file on. Thanks Jody Quote Link to comment Share on other sites More sharing options...
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