Re: and Ian - Update

[Guest guest]

Jodi - thank you for posting this.

Ian is finally turning the corner. He is finally getting a scab, the

site is not as red and I caught him with his bottom up in the air in

the crib this morning. He has more energy and although he has not

allowed me to clean the site yet this morning (obviously I'm not

insisting just yet either <grin>) - I did take a peak and it does look

better. Ugh - finally. We are doing NOTHING but playing today and

doing nothing. He had a suppository at the doc yesterday to help get

rid of some of some bowel movement (he's been very constipated) and I

think that has helped his discomfort some as well. He was in a lot of

discomfort yesterday while passing his bowels - but, he felt much

better after each passing.

Ian is 23 lbs 2 oz!!! So, now I'm going to have to write some letters

to his Endo and GI doc and remind them about early adrenarche, and

insulin resistance with our kids so that we can develop a plan on how

much calories Ian REALLY needs and focus on a healthy plan for him. I

think I want to start feeding him solids at lunch and dinner again and

bolus whatever calories " left " he needs. So, this weekend, I will be

writing that letter and hopefully we will have a good plan for Ian's

caloric intake. I also need to see where he falls on the charts as

far as weight to height and see what percentile he is currently in and

where he should be. He looks SO good right now and I know once he

starts getting more active again - he will probably level off with the

weight. He's been pretty non-active for over a week now. He's

definitely more active today!

Thanks so much everyone for your concern. It means a lot to me.

- H

>

> I'm on the phone with right now. I'll let her fill in the

> details, but Ian is better. You can relax.

>

> Jodi Z

>

[Guest guest]

, I am so glad he is doing better. That constipation is a

real curse for our kids. is currently experiencing this

himself. I will be leaving today to get the Zelnorm and Benefiber

and hoping this helps him.

I think you are on the right track with wanting to go ahead and give

Ian solids. See how well he eats and if he doesn't eat as wee as he

should bolus only half of what you would normally give him or

something. I am sure others on here would be able to help you out

there better than I would. But, you are right in wanting to monitor

his weight closely. Get a weight for height chart and keep track of

where he is. If he starts getting a belly that looks like a balloon,

decrease waht you are giving him through his tube. Ugh, it is very

hard and so frustrating, but I think you will learn as you go. And,

you can take it from me. Don't let him get too chubby! Ugh. Dr. H.

gave me 's weight and height in kg and cm so I need to

translate that so I can see where he is right now. But, obviously

too big. I think Ian is about 's height, so I'll let you know

what I come up with.

JR

> >

> > I'm on the phone with right now. I'll let her fill in

the

> > details, but Ian is better. You can relax.

> >

> > Jodi Z

> >

>

[Guest guest]

Jodi - great - that would be awesome. Ian's thighs are looking a

little chunky! I love it! LOL

We are using miralax for the constipation and I'm going to try prune

juice too - putting it right through the tube - I actually love the

tube when it comes to having to give him medicines. It's so much

easier than fighting with him and he's so good about it now.

Glad you are feeling better. Talk to you soon.

- H

> > >

> > > I'm on the phone with right now. I'll let her fill in

> the

> > > details, but Ian is better. You can relax.

> > >

> > > Jodi Z

> > >

> >

>