Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 You will love it, I know. I go to a ladies gym 3 times a week for a 1/2 hour. I absolutely love it. Just getting out of the house in the morning feels so good and the ladies are all so nice. I ride a recumbent bike and walk slowly on the treadmill.----- " worth" wrote: > > > > > I'm so excited. I start my pulmonary rehab class tomorrow. It will be 3-days/week, Mon Wed Fri from 2-3:30p. It will be so good to start moving this body in exercise mode.> I'm taking the class through a program here called Carpi Heart & Lung Rehabilitation and paying for it myself ($60/month). My insurance coverage, Group Health, would only allow me to participate in the pulmo program they offer at their medical facilities. Well the nearest GH clinic to offer the program is in Seattle a one-hour ferry ride away for me. And though there would be no charge for the class, the cost of taking the ferry 3x/week would cost me more than paying for the class at this local organization. And the likely-hood of me using the Seattle facility for maintenance would be nil, that kind of travel every day would be tiring. I tried to appeal GH's decision about attending Capri, but they said, no. They also said that they have no data to prove that Pulmonary Rehabilitation Programs help PF patients. Whatever! At Capri I'll be able to use it for exercise maintenance... I'm so looking forward to it! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint!> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 , That's fantastic news! I'm so happy for you. I'm glad that you made the decision to pursue your local program. It does sound much more convenient and even though you have to pay for it the fees sound fairly reasonable and it's local so it will be easier to continue on in maintanance. Good for you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breath Support <Breathe-Support >Sent: Sun, January 17, 2010 4:19:04 PMSubject: Pulmonary Rehab Class I'm so excited. I start my pulmonary rehab class tomorrow. It will be 3-days/week, Mon Wed Fri from 2-3:30p. It will be so good to start moving this body in exercise mode. I'm taking the class through a program here called Carpi Heart & Lung Rehabilitation and paying for it myself ($60/month). My insurance coverage, Group Health, would only allow me to participate in the pulmo program they offer at their medical facilities. Well the nearest GH clinic to offer the program is in Seattle a one-hour ferry ride away for me. And though there would be no charge for the class, the cost of taking the ferry 3x/week would cost me more than paying for the class at this local organization. And the likely-hood of me using the Seattle facility for maintenance would be nil, that kind of travel every day would be tiring. I tried to appeal GH's decision about attending Capri, but they said, no. They also said that they have no data to prove that Pulmonary Rehabilitation Programs help PF patients. Whatever! At Capri I'll be able to use it for exercise maintenance. .. I'm so looking forward to it! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi, Pulmonary rehab classes help!! It has for me being sick for a week and not able to attend these classes. I can really feel the impact on how they help. We need this Pulmonary Fibrosis Research Enhancement Act of 2009 Introduced in 111th U.S. Congress passed This would ensure us from having Pulmonary rehab classes, I believe it will also help with oxygen for us that we need when our sats drop below 90%. I just wished the teachers in the classes would stop giving us tests about COPD and only have knowledge about COPD. But this all will come when this H.R. 1079 passes. I sometimes want to scream when they tell me why I cough…..when exercising…and then I calm down and say to myself the poor lady does not know.(lol) I just opened up my e-mail and have over 300 messages, how do I keep up…. Erna Erna 1992 bird fanciers syndrome, CAD & MI 2004, ILD 2008 NSIP 2009 Washington State Subject: Pulmonary Rehab ClassTo: "Breath Support" <Breathe-Support >Date: Sunday, January 17, 2010, 1:19 PM I'm so excited. I start my pulmonary rehab class tomorrow. It will be 3-days/week, Mon Wed Fri from 2-3:30p. It will be so good to start moving this body in exercise mode. I'm taking the class through a program here called Carpi Heart & Lung Rehabilitation and paying for it myself ($60/month). My insurance coverage, Group Health, would only allow me to participate in the pulmo program they offer at their medical facilities. Well the nearest GH clinic to offer the program is in Seattle a one-hour ferry ride away for me. And though there would be no charge for the class, the cost of taking the ferry 3x/week would cost me more than paying for the class at this local organization. And the likely-hood of me using the Seattle facility for maintenance would be nil, that kind of travel every day would be tiring. I tried to appeal GH's decision about attending Capri, but they said, no. They also said that they have no data to prove that Pulmonary Rehabilitation Programs help PF patients. Whatever! At Capri I'll be able to use it for exercise maintenance. .. I'm so looking forward to it! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 Hi Erna, Thanks for this link. How are you doing? C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! To: Breathe-Support Sent: Sun, January 17, 2010 4:41:59 PMSubject: Re: Pulmonary Rehab Class Hi, Pulmonary rehab classes help!! It has for me being sick for a week and not able to attend these classes. I can really feel the impact on how they help. We need this Pulmonary Fibrosis Research Enhancement Act of 2009 Introduced in 111th U.S. Congress passed This would ensure us from having Pulmonary rehab classes, I believe it will also help with oxygen for us that we need when our sats drop below 90%. I just wished the teachers in the classes would stop giving us tests about COPD and only have knowledge about COPD. But this all will come when this H.R. 1079 passes. I sometimes want to scream when they tell me why I cough…...when exercising…and then I calm down and say to myself the poor lady does not know.(lol) I just opened up my e-mail and have over 300 messages, how do I keep up…. Erna Erna 1992 bird fanciers syndrome, CAD & MI 2004, ILD 2008 NSIP 2009 Washington State From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Pulmonary Rehab ClassTo: "Breath Support" <Breathe-Support@ yahoogroups. com>Date: Sunday, January 17, 2010, 1:19 PM I'm so excited. I start my pulmonary rehab class tomorrow. It will be 3-days/week, Mon Wed Fri from 2-3:30p. It will be so good to start moving this body in exercise mode. I'm taking the class through a program here called Carpi Heart & Lung Rehabilitation and paying for it myself ($60/month). My insurance coverage, Group Health, would only allow me to participate in the pulmo program they offer at their medical facilities. Well the nearest GH clinic to offer the program is in Seattle a one-hour ferry ride away for me. And though there would be no charge for the class, the cost of taking the ferry 3x/week would cost me more than paying for the class at this local organization. And the likely-hood of me using the Seattle facility for maintenance would be nil, that kind of travel every day would be tiring. I tried to appeal GH's decision about attending Capri, but they said, no. They also said that they have no data to prove that Pulmonary Rehabilitation Programs help PF patients. Whatever! At Capri I'll be able to use it for exercise maintenance. .. I'm so looking forward to it! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Hi. I am making it they have taken me off prednisone and azathioprine. At the same time they put me on antibiotics and thrush meds... I seem to be allergic to azathioprine and the pulmonologist also believes I should not take prednisone... my sugar levels that I normally have to check for lows went up in the sky and I also have cortisol and other crushing’s problems that are normal for some people, but not for me.I am so scared they cannot do anything for me. My hopes are for May the 5th. when I can see Dr. Ragu... I also have some strange stuff going on with my loop recorder, like lumps on top of it that hurt and will be going to the cardiologist today. The infection is still not under control and today was my last antibiotic. But I will keep plugging to keep my mind out of my body...Just put a mailer out for 140 people and starting. People are asking me to become full chair, I know I have to pace myself and this would be a lot of work Maybe I have to say NO.. my partner does not think it would be a good idea either. I am also to work in the garden. My puppy is making me look like me partner is beating me....(laughing) poor guy he is doing so me for me and it is the plavix.... All in all we had five congress people sign on in 2010, which make it 75 co-signers Rep Larsen, Rick [WA-2] - 1/12/2010 Rep s, Trent [AZ-2] - 1/13/2010 Rep , Tim [OH-17] - 1/13/2010 Rep Markey, Betsy [CO-4] - 1/20/2010 Rep Cohen, Steve [TN-9] - 1/20/2010 http://thomas.loc.gov/cgi-bin/bdquery/z?d111:HR01079:@@@N lol, as you can see I am a political junkie. I sure hope your pulmonary rehab is working for you... Erna 1992 bird fanciers syndrome, CAD & MI 2004 , ILD 2008 NSIP 2009 Washington State From: worth <hope2thend (AT) yahoo (DOT) com>Subject: Pulmonary Rehab ClassTo: "Breath Support" <Breathe-Support@ yahoogroups. com>Date: Sunday, January 17, 2010, 1:19 PM I'm so excited. I start my pulmonary rehab class tomorrow. It will be 3-days/week, Mon Wed Fri from 2-3:30p. It will be so good to start moving this body in exercise mode. I'm taking the class through a program here called Carpi Heart & Lung Rehabilitation and paying for it myself ($60/month). My insurance coverage, Group Health, would only allow me to participate in the pulmo program they offer at their medical facilities. Well the nearest GH clinic to offer the program is in Seattle a one-hour ferry ride away for me. And though there would be no charge for the class, the cost of taking the ferry 3x/week would cost me more than paying for the class at this local organization. And the likely-hood of me using the Seattle facility for maintenance would be nil, that kind of travel every day would be tiring. I tried to appeal GH's decision about attending Capri, but they said, no. They also said that they have no data to prove that Pulmonary Rehabilitation Programs help PF patients. Whatever! At Capri I'll be able to use it for exercise maintenance. .. I'm so looking forward to it! C_53_Familial IPF_5/09, Washington HOPE doesn't disappoint! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.