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Re: Coby's surgery complications

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le - thanks so much for keeping us posted. Coby has been on

my mind ALOT lately. Please give him a hug for me.

- H

>

> Sorry, I haven't had a chance to update anyone sense Coby's

surgery

> last Friday. The surgery went well, and the doc believes that he

> achieved the quality we had hoped for and that this did it. After

4

> surgeries, he does not think that he will need another …YEH!

(We'll

> see how it heals.) This was the first surgery he has had that we

> didn't go in the night before. He did a normal fasting and even

the

> surgery was delayed a half an hour. His BS did great! He never

> threw any keytones.

>

> Friday night and Saturday Coby did great. He didn't sleep well,

but

> during the day he felt good and was playing well. I was even able

> to take him off of the Tylenol with codeine and just use regular

> Motrin. Sunday he began to have bladder spasms. Oh my God, they

> are horrible. He just screams and thrashes in pain! The doctor

> used a new type of tube for drainage. It is longer and harder

then

> the previous ones and it rubs his bladder and is causing these

> spasms. They will not take the tube out until Monday, so we deal

> with the consequences until then. Coby has not had a decent

nights

> sleep from last Friday until tonight. Tonight he finally slept

for

> 4 hrs straight, but only because he is on 5 new kinds of

> medications, which have made him constipated, so I will have to

deal

> with that again tomorrow.

>

> I'm so happy the surgery was a success, but the rest of this

> sucks!!!! I can handle a lot, but not being able to take away his

> pain is killing me!

>

> I hope everyone else is well; I'll catch back up on old posts next

> week after this dreaded tube comes out.

>

> Take care,

> le, mom to:

> Shye 11, Brock 9, Coby (rss), & Carlee 3 yr old twins

>

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Hi le,

I'm glad everything went well for this last surgery for Coby! Just a

few more days and hopefully you will be on your way back to normal.

Take care.

Dawna

>

> Sorry, I haven't had a chance to update anyone sense Coby's surgery

> last Friday. The surgery went well, and the doc believes that he

> achieved the quality we had hoped for and that this did it. After

4

> surgeries, he does not think that he will need another …YEH!

(We'll

> see how it heals.) This was the first surgery he has had that we

> didn't go in the night before. He did a normal fasting and even

the

> surgery was delayed a half an hour. His BS did great! He never

> threw any keytones.

>

> Friday night and Saturday Coby did great. He didn't sleep well,

but

> during the day he felt good and was playing well. I was even able

> to take him off of the Tylenol with codeine and just use regular

> Motrin. Sunday he began to have bladder spasms. Oh my God, they

> are horrible. He just screams and thrashes in pain! The doctor

> used a new type of tube for drainage. It is longer and harder then

> the previous ones and it rubs his bladder and is causing these

> spasms. They will not take the tube out until Monday, so we deal

> with the consequences until then. Coby has not had a decent nights

> sleep from last Friday until tonight. Tonight he finally slept for

> 4 hrs straight, but only because he is on 5 new kinds of

> medications, which have made him constipated, so I will have to

deal

> with that again tomorrow.

>

> I'm so happy the surgery was a success, but the rest of this

> sucks!!!! I can handle a lot, but not being able to take away his

> pain is killing me!

>

> I hope everyone else is well; I'll catch back up on old posts next

> week after this dreaded tube comes out.

>

> Take care,

> le, mom to:

> Shye 11, Brock 9, Coby (rss), & Carlee 3 yr old twins

>

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le,

I just wanted you to know that I was thinking of you. I remember after

Jonah's surgery how painful the spasms were for him. I know that you have

been through this before, but remember to hang in there because it will be

over soon. Did they give you anything for the his pain. We had something

to give Jonah when it got real bad. All the best.

, Jonah's mom

Coby's surgery complications

> Sorry, I haven't had a chance to update anyone sense Coby's surgery

> last Friday. The surgery went well, and the doc believes that he

> achieved the quality we had hoped for and that this did it. After 4

> surgeries, he does not think that he will need another .YEH! (We'll

> see how it heals.) This was the first surgery he has had that we

> didn't go in the night before. He did a normal fasting and even the

> surgery was delayed a half an hour. His BS did great! He never

> threw any keytones.

>

> Friday night and Saturday Coby did great. He didn't sleep well, but

> during the day he felt good and was playing well. I was even able

> to take him off of the Tylenol with codeine and just use regular

> Motrin. Sunday he began to have bladder spasms. Oh my God, they

> are horrible. He just screams and thrashes in pain! The doctor

> used a new type of tube for drainage. It is longer and harder then

> the previous ones and it rubs his bladder and is causing these

> spasms. They will not take the tube out until Monday, so we deal

> with the consequences until then. Coby has not had a decent nights

> sleep from last Friday until tonight. Tonight he finally slept for

> 4 hrs straight, but only because he is on 5 new kinds of

> medications, which have made him constipated, so I will have to deal

> with that again tomorrow.

>

> I'm so happy the surgery was a success, but the rest of this

> sucks!!!! I can handle a lot, but not being able to take away his

> pain is killing me!

>

> I hope everyone else is well; I'll catch back up on old posts next

> week after this dreaded tube comes out.

>

> Take care,

> le, mom to:

> Shye 11, Brock 9, Coby (rss), & Carlee 3 yr old twins

>

>

>

>

>

>

>

>

>

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Thanks and everyone else for your thoughts and well wishes.

This is Coby's 4th surgery like this, but this is the first time that

they have used this type of tube, so it's the first that we have ever

dealt with this much pain.

Coby is on Tylenol with codeine and Motrin for pain, Cephalexin and

antibiotic, Oxybutynin for the bladder spasms, epam (valium) to

relax him, Miralax because the oxybutynin and the codeine cause

constipation, and then his normal meds, Risperdal and gh.

Luckily he gets the tube taken out Monday afternoon. Unfortunately,

he has his very first school pics takes that morning. So he will

still be on all the drugs for his pictures. He'll have lovely

pupils. Hehehe! These are retakes so it's now or never.

le, mom to:

Shye 11, Brock 9, Coby (rss) & Carlee 3 yr old twins

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