Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 Sorry I haven't had the chance to post about Maddy's surgical consult but the kids have been crazy. I reacieved everyones emails about their concern and I thank you all. This doctor's name is Dr. Nance I'm not really sure if he is familiar with RSS but he didn't act as tho it was foreign. He recieved alot of things from Dr. H and Yadira and reviewed them all before our visit. Basically he agrees with Dr. H that the surgery is going to take a great toll on Maddy's fragile body however without it she won't ever be able to eat or drink. He also agrees that it would be a bad idea to do it all in one procedure he thinks it should be two spaced out operations to give her body a break. He wants to phone Dr. H ( yes thats right you read correct he's argeed to call her ) and speak to her about her exact plans and which endo doc she wants from CHOP to be on their team. He didn't complain about Dr. H being in charge or calling the shots so Lou and I were so happy. He said that once he spoke with Dr. H he would call me and set a date. I think Dr. H will be very pleased with him and I hope things move quickly. In the meantime she still vomits every night and we have to change her bed every morning. She hasn't eaten in weeks and refuses liquids she says " that makes me choke " . So we have given up that fight, since she's on TPN we know she's getting nutricen. Quote Link to comment Share on other sites More sharing options...
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