Re: Cuilty

[Guest guest]

Sue,

Good to see you posting on the site. I do not get on often these days

due to work and a hectic evening and weekend schedule. Wow! 's

Dad had to find out that his great uncle was actually his biological

dad. I swear some men (great uncle) should be castrated! Strong I know

but I do not like to mince words these days.

J

> I, originally, wrote this email to Salem. I thought it might

> be a bit too personal to post to RSS-Support. But seeing how a few of

> you out there may remember us, I figured, " What the heck! " I have

> lost all of my prior contacts through this group. So feel free to

> email with your info.

> We missed the Magic Convention this year. Perhaps we will see some of

> you again at the next one.

> ------- Otto

>

> Hello ,

> I know it's been awhile since you've heard from us. So long, as a

> matter of fact, that Yahoo Mail closed my weewilly mail account. On

> one hand, I am relieved, because I was unable to get to this account

> regularly, so the message space was maxed out. I know I couldn't have

> possibly ever made it through all of the messages that I wanted to

> read. On the other hand, I am very disappointed because I have lost

> all of the information, emails and contacts that I have gained through

> this support group.

> So here we are again, starting afresh. And as always, questions,

> questions, questions. But first, let me fill you in on 's

> progress.

> He is five years old, a whopping 20 pounds and quite a hand full. He

> doesn't talk yet, but he makes up for his lack of verbal skills with

> his motor skills. He walks and climbs and stands on his head lot

> still. He likes to climb up to the top bunk bed or on top of a table

> and then stand on his head! Can't take our eyes off of him for one

> minute. And walk, walk, walk, usually away! He still really enjoys

> his pianos. (Funny thing, I was showing how to play Had

> a Little Lamb on our friend's piano. I think I had to show her about

> 20 times at least. When we got home, I heard that tune being plunked

> on our little mini-piano and as I poked my head around the corner to

> congratulate , to my surprise, it was Willie standing there!

> Sometimes I just don't know what to make of the little guy.) But

> mostly, likes to shred pieces of paper, usually 's

> homework or an important document from my briefcase or something messy

> from the trash into tiny pieces and

> throw them on the floor. Just in the time I have been writing this

> email, the floor is again covered in strips of paper.

> Recently we moved into an income-based apartment in Laughlin, Nevada.

> (That is just across the river from Bullhead City, Arizona.) It took

> a long time to get services here. It seems that if we would have

> moved to Las Vegas, which we may do in the future, we would have come

> upon a whole new realm of opportunities for , but here in

> Laughlin, the social workers from the Nevada Welfare Dept, only come

> out once or twice a month. But finally after about four months, we

> have gotten his pump and formula started again, gone to the dentist

> and things are looking up. I have even found a child-care facility

> that is willing to take so I may start working again. Boy, am

> I looking forward to that!

> is now in pre-K at Elementary School. attends

> second grade at the same school. Being a new school for him, he is,

> again, the center of attention where ever he goes. (I'll never forget

> the time my van stalled in the middle of an intersection last year in

> BHC. A car-full of women got out to help push the van out of the way.

> As they got up to the passenger side window, they all shouted, " Well,

> hi ! Look, it's ! " I didn't recognize any of them.

> " Oh yea, we see around all the time at my son's school. " ,

> etc.) So now he is the new anomaly at .

> During my first meeting with the staff for 's IEP, I

> was hit with a little reality slap. The psychologist termed him as

> " mentally retarded! " I was taken quite aback. After thinking about

> it for awhile, I thought to myself, of course he is! What? Has this

> been obvious to everyone but me? I have been researching Autism, of

> which I think he has quite a few tendencies. I didn't think they even

> used the term " mentally retarded " anymore, but I guess I was wrong.

> Every time I inquired about Autism during this meeting, the issue

> seemed to get quickly brushed aside. Apparently, if they label him as

> Autistic, they will have to follow a very strict curriculum; whereas,

> if he has the MR label, it will open up a wider variety of services

> for him. It just all threw me for a loop at the time. Meanwhile, I

> don't feel he is getting enough of the therapies he needs, just in

> school. (PT, OT and especially speech) This has become my newest

> quest. It has to be approved by

> his new PCP, who seems a little blown away by her new patient, to say

> the least. But we are working on it.

> Another piece of news that has gotten my feathers ruffled is... I

> don't know if you recall, but 's father, Marty, (we are no

> longer together) has never been told who his biological father was.

> Throughout his 49 years of life his mother has refused to divulge this

> little " unimportant " bit of information. He is very estranged from

> his family. Recently, Marty's step-father passed away. He attended

> the funeral, but that was about it. Some of his older children stayed

> behind to pay their respects. It was then that they found out

> somehow, I guess a slip of the tongue from Grandma, that Marty's real

> father was actually his mother's uncle! This makes me so angry!

> Wasn't that a bit of information that I, and the two other mothers to

> Marty's children, should have had a right to know? Do you have any

> idea of, or do you have any info on the genetics results of children

> of children of uncles and nieces? (This is a kind of confusing, is

> that correct?) I remember hearing when I

> was a kid, to put it bluntly as kids often do, that sometimes the MRs

> parents are related. Do you think this is a major genetic factor with

> ? Or is it mostly an old wives tale regarding mentally

> retarded children? I would appreciate any enlightenment you might be

> able to shed on me.

> I hope all is good with your family. How is Lindsey doing?

> I realize you are a busy woman. So please get back to me at your

> leisure. It will be a lot easier finding your email, since

> weewillyinbullheadcity@... is starting anew.

> Sincerely,

> Otto

> mother to and

> Cuilty age 5/20 lbs

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