Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Abby went the GI doctor yesterday. She has not seen her for a year. In that year on her scales she gained almost 3 pounds and 2 1/2 inches. That was great. I told her some of my concerns with the tube feedings and Abby not tolerating them very well. I also told her what the genetics/developmental peds doctor said about increading the amount of feedings from 4 cans per day to 8 cans per day by March. This GI doctor about had a heart attack when I told her this. She does not see how we even can get 4 cans in her...well, we don't, we try but it does not always work out like that. The GI said that Abby is proportionate height for weight and she is not concerned with her weight gain or height growth. GI recommendations is treat Abby for delayed emptying of the stomach and 2 cans of formula through the tube a day. She believes the medicine for delayed emptying of the stomach will do Abby wonders and then we can consider increasing the cans of formula. How does this sound to you all? What are your opinions? What have your experiences been with this? Thanks for the help!! Amy mom to Abby-RSS, 5 1/2 yrs, GH, gtube Tyler-nonRSS, 4 yrs -nonRSS, 6 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Amy - Sounds like Abby is doing well. It's hard for me to make any suggestions/comments/opinions at this point without knowing what her height/weight actually is and what type of formula she is getting and what the caloric requirement is for her. I think that's the type of information that would be helpful overall. Does that make sense? Our nutritionist, GI, Endo and Ped all made the decision on what Ian's requirements were. Ian gets approx 1000 calories per day thru the ng tube(this includes overnight feeds) - and this was based on height and weight. He is now 22 lbs and 89 cm (if I remember correctly). His nutren is 250 ml per can. He gets 360 ml at night, and then 4 bolus' of 180 ml during the day (although - I've changed that myself a bit because he has been " eating food " at lunch and dinner and he's back to drinking his Nutren as well). Let me know if this helps - feel free to e-mail me privately if you want to chat further! Hugs. - H > > Abby went the GI doctor yesterday. She has not seen her for a > year. In that year on her scales she gained almost 3 pounds and 2 > 1/2 inches. That was great. I told her some of my concerns with > the tube feedings and Abby not tolerating them very well. I also > told her what the genetics/developmental peds doctor said about > increading the amount of feedings from 4 cans per day to 8 cans per > day by March. This GI doctor about had a heart attack when I told > her this. She does not see how we even can get 4 cans in > her...well, we don't, we try but it does not always work out like > that. The GI said that Abby is proportionate height for weight and > she is not concerned with her weight gain or height growth. GI > recommendations is treat Abby for delayed emptying of the stomach > and 2 cans of formula through the tube a day. She believes the > medicine for delayed emptying of the stomach will do Abby wonders > and then we can consider increasing the cans of formula. > > How does this sound to you all? What are your opinions? What have > your experiences been with this? > > Thanks for the help!! > > Amy > mom to Abby-RSS, 5 1/2 yrs, GH, gtube > Tyler-nonRSS, 4 yrs > -nonRSS, 6 months > Quote Link to comment Share on other sites More sharing options...
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