A newbie from Washington State

[Guest guest]

Hi, All

I am new in the group. I still do not know what to tell people what I have right now. I do not even believe the Pulmonologist and the pulmonology therapist know what it is.

I was finally had my lung biopsy at the VM in Seattle WA on October 23, I was told that it probably would take weeks and would be sent to the east before I had a diagnosis. But a week later I had a note in my hand with NSIP and hypersensitivity pneumonitis as a secondary diagnosis.

The road has been long, I have been silently reading all the e-mails and see most people had a hard road to their diagnosis and then just to find out that you can do basically nothing about it.

Since I also have heart disease and my cardiologist did not get to well along with my pulmonlogist and did not want to take me of the plavix that I have to be on for the rest of my life also. I finally came from up north Washington State down to Seattle.

Still here in the small cities no one knows not even the medical profession seems to care. Per example yesterday I ended for a blood pressure drop in the local hospital where I am doing my pulmonology therapy. The therapist explained the E.R doctor my lung disease was to hard to explain. All they could think of was heart and they would not give me my medications for my lungs actually just a few for my heart this morning. I was put in the ICU but did not see a doctor until this morning. He did not examine me but the nurses had already done this. I could not stop coughing and had chest pain…… It is already hard enough to know if there is something wrong with your heart or lungs and I still do not understand either why the lung specialist are in

the same area as the cardiologist.

I would love to hear from other people what they say when they are diagnosed with NSIP? I see many on the board who do. My pulmonologist f irst said just NSIP and now he says cellular NSIP. We have a lot of lung problem on my Moms site of the family. The surgeon gave me a copy of the report and there it says fibrosis at many places. I may have to change pulmologist again as I am thinking of moving in a big city and Seattle is to expensive for me…. And may need to move east ( p.s my first language is Dutch if you see any mistakes)

I am about to move to city somewhere if the housing market was not so bad. And I had good energy not on O2 for the rest of my life…. But I believe I can get passed the O2 part…. I have done some camping trips with it even before I was diagnosed. But I was not on 24 to 7 then either.

Please keep up the good work talking I am learning so much from you!!

I do not see a groups in Washington state does anyone know if there are any in my range. Thank you, Erna

Erna

1992 bird fanciers syndrome

CAD & MI 2004

ILD 2008 NSIP 2009

Washington State