Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 Patti, The times when I've had an opportunity to meet members of this group in person have been more fun than I can possibly explain. There's just an instant kinship, empathy and understanding when there is any kind of get together. Aside from the one in California for this spring there isn't anything specifically in the works. Doesn't mean there can't be. The get together last fall in Chattanooga was organized pretty much entirely by Jane. The one in Orlando last spring was put together by the Caregivers group. The members of our group who live in the Philadelphia/south Jersey area get together occasionally for lunch. Jack and a bunch of the New England men got together for lunch not too very long ago. Bruce is traveling to NC this week for appointments at Duke and he and I will be having dinner together on Thursday. Get togethers can be as simple as a cup of coffee to a two or three day stay at a motel with guest speakers and activities. I'm open for any ideas. If someone has an idea, lets talk about it. I'm always excited for a little road trip and even more excited to meet any of you in person! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Tue, February 2, 2010 12:00:49 PMSubject: breathe support trip Beth, I was just wondering if there is another support group trip planned this year other than the one scheduled in California (I think it was CA)? Who generally plans the get togethers and how often do you have them? Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 MB Absolutely. I've met three in my immediate area, met at least five or six in other areas of Texas, met you and Leanne and Jane and Peggy and Bob and spouses and would meet everyone here if possible. I remember meeting my very first PF'er and was amazed even though she was listed for transplant and active going to UTSW and had met other transplant candidates, she'd never met anyone else with PF (UIP specifically). I can't explain to anyone what meeting her for lunch did to get me started with dealing with the disease with a healthy positive attitude. > > Patti, > The times when I've had an opportunity to meet members of this group in person have been more fun than I can possibly explain. There's just an instant kinship, empathy and understanding when there is any kind of get together. > > Aside from the one in California for this spring there isn't anything specifically in the works. Doesn't mean there can't be. The get together last fall in Chattanooga was organized pretty much entirely by Jane. The one in Orlando last spring was put together by the Caregivers group. > The members of our group who live in the Philadelphia/south Jersey area get together occasionally for lunch.  Jack and a bunch of the New England men got together for lunch not too very long ago. Bruce is traveling to NC this week for appointments at Duke and he and I will be having dinner together on Thursday. Get togethers can be as simple as a cup of coffee to a two or three day stay at a motel with guest speakers and activities. > > I'm open for any ideas. If someone has an idea, lets talk about it. I'm always excited for a little road trip and even more excited to meet any of you in person! >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  >  > > > > > ________________________________ > From: Patti napa73@... > To: Breathe-Support > Sent: Tue, February 2, 2010 12:00:49 PM > Subject: breathe support trip > >  > Beth, > I was just wondering if there is another support group trip planned this year other than the one scheduled in California (I think it was CA)? Who generally plans the get togethers and how often do you have them? >  > Patti > Quote Link to comment Share on other sites More sharing options...
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