Follow-up Bronchiectasis

[Guest guest]

Saw new pulmo Monday. Loved him. He asked everything and ordered everything I

had read needed to be done and then some. He will do a bronchoscopy, take more

biopsies and 3 sputum cultures are ordered. Two are already at the lab. They

are also for fungus. He certainly intends to get to the bottom of this. He

actually read all my reports from Jewish!!! He asked very good questions about

them.

He explained physiology and possible causes of infection in bronchiectisis and

more. He also put me back on Doxycycline but at 150mg dose for 3 weeks. Also

added 20mg of pred for one week, 15mg for one week and then stay at 10mg. It

seems to be working a bit already. I will see him in one month.

So, needless to say I'm sick but hopeful. He is testing for the microbe that is

in the tuberculosis family, but is not TB. That one might take a year of

antibiotics to nail. Hope it isn't that one.... I think? Not sure what to wish

for other than a cure for this infection. He is ordering pulmonary rehab which

I only heard about from this support group. Will have bronchoscopy when he gets

the CT from Jewish so he knows the best biopsy sites.

I sure hope things are looking up as I think I have several pretty good years

left if my rate of decline stays the same. We never know, do we.

Three grandchildren were here for three days. The granddaughter learned to make

chicken and dumplings, apple pie and sugar cookies. She is 18 and likes to cook.

Her father will be thrilled she can make dumplings!

ann