RE: update on Dasia's surgery

[Guest guest]

Hi ! The doctor must have called soon after we talked on the

phone earlier. I am glad things are working out. Let me know if

you need more formula. Abby's formula intake has decreased so I

have extra if you need it. Call me at home or on my cell, I will be

in Plainfield on Saturday (tomorrow).

I hope you feel better soon!

Amy in Avon (mom to Abby)

>

> Hi Everyone,

> I just got off the phone with the GI Dr., I've decided to

keep our appt for Thursday. They can do the MIC-key, but not in a

one step process like the Bard. So either I could leave surgery with

the long tube, and go back in 8 weeks getting the MIC-key button, or

leave surgery with the Bard button, and go back in 8 weeks and get

the MIC-key. So I suppose I'd rather have the Bard button than a

long tube for the 8 weeks. That would be nice to get the MIC-key

right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what

I want, and I'll have the experience of the Bard. And he said, since

the Bard button can be painful to take out, he puts the kids under

light anesthesia first. I'll let you guys know how everythong goes!

>

> Mom to Dasia

> 23mo 17lbs 30 1/4in

> Avery 6, Jaden 3

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

>

>

[Guest guest]

Hi Amy,

You're so sweet! We should be fine. I'm sorry Abby's intake went down. I'm

still trying to figure out a good surprise to send her in the mail. I know how

exciting it is for kids to get mail, (so don't tell her), and I will feel better

about you making me take that case of formula for free! Seeing Abby gave me so

much more hope for Dasia, at almost 2 she's still not walking as her main way of

getting around, and Abby is such a little fireball, happy as can be, and all

over the place. Nothing is stopping her! She's perfect and beautiful. I'm glad

we got to meet. We'd love to see more pictures. With the new yahoo set up, in

order to add pictures we have to delete the old folder and create a new one. I

am feeling a little better, thanks! Talk to you later!

Amy Nickol wrote:

Hi ! The doctor must have called soon after we talked on the

phone earlier. I am glad things are working out. Let me know if

you need more formula. Abby's formula intake has decreased so I

have extra if you need it. Call me at home or on my cell, I will be

in Plainfield on Saturday (tomorrow).

I hope you feel better soon!

Amy in Avon (mom to Abby)

>

> Hi Everyone,

> I just got off the phone with the GI Dr., I've decided to

keep our appt for Thursday. They can do the MIC-key, but not in a

one step process like the Bard. So either I could leave surgery with

the long tube, and go back in 8 weeks getting the MIC-key button, or

leave surgery with the Bard button, and go back in 8 weeks and get

the MIC-key. So I suppose I'd rather have the Bard button than a

long tube for the 8 weeks. That would be nice to get the MIC-key

right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what

I want, and I'll have the experience of the Bard. And he said, since

the Bard button can be painful to take out, he puts the kids under

light anesthesia first. I'll let you guys know how everythong goes!

>

> Mom to Dasia

> 23mo 17lbs 30 1/4in

> Avery 6, Jaden 3

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

>

>

[Guest guest]

,

I've been following your journey to a gtube with some interest as Dasia will

be the same age and nearly the same size my daughter Alyssa was when her

tube was placed just over two years ago. We can home with the long tube

(foley tube, I believe is the term) and changed to the button a few months

later after her site had healed. It really wasn't that bad. Since Alyssa

was pretty active we didn't want a bard because of the great difficulty

keeping it closed and thereby keeping Alyssa dry. We basically taped the

tube to her diaper to keep it from hanging loose or catching on things.

After all she was hooked up to her pump 22 hours a day, which meant there

were only 2 hours when she didn't have a tube coming out of her stomach

anyway!! It's true that we had to secure her foley tube to her diaper those

2 hours, but it really was not a big deal considering she was hooked to her

pump the other 22 hours! We rarely had any leakage and her site healed

very nicely. The best part was, changing from the tube to the button was

not very painful and only took about 1 minute. Changing from a tube to a

button didn't require additional healing time because the exchange did not

harm her site.

I just wanted to share our experience. I hope her surgery goes very well!

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of Malcolm

Sent: Friday, January 13, 2006 6:15 PM

To: RSS-Support

Subject: update on Dasia's surgery

Hi Everyone,

I just got off the phone with the GI Dr., I've decided to keep our appt

for Thursday. They can do the MIC-key, but not in a one step process like

the Bard. So either I could leave surgery with the long tube, and go back in

8 weeks getting the MIC-key button, or leave surgery with the Bard button,

and go back in 8 weeks and get the MIC-key. So I suppose I'd rather have the

Bard button than a long tube for the 8 weeks. That would be nice to get the

MIC-key right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what I want,

and I'll have the experience of the Bard. And he said, since the Bard button

can be painful to take out, he puts the kids under light anesthesia first.

I'll let you guys know how everythong goes!

Mom to Dasia

23mo 17lbs 30 1/4in

Avery 6, Jaden 3

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

[Guest guest]

- my best to you and especially Dasia. She will do great.

Thinking of you lot's as our procedure will be on Wednesday!

Take Care!

- H

>

> Hi Everyone,

> I just got off the phone with the GI Dr., I've decided to

keep our appt for Thursday. They can do the MIC-key, but not in a

one step process like the Bard. So either I could leave surgery with

the long tube, and go back in 8 weeks getting the MIC-key button, or

leave surgery with the Bard button, and go back in 8 weeks and get

the MIC-key. So I suppose I'd rather have the Bard button than a

long tube for the 8 weeks. That would be nice to get the MIC-key

right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what

I want, and I'll have the experience of the Bard. And he said, since

the Bard button can be painful to take out, he puts the kids under

light anesthesia first. I'll let you guys know how everythong goes!

>

> Mom to Dasia

> 23mo 17lbs 30 1/4in

> Avery 6, Jaden 3

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays, whatever.

>

>

[Guest guest]

Thank you Dayna for all of your help through everything. The Bard button does

sound like a nightmare for the pumps. I was more worried about Dasia pulling on

the tube or it getting caught on something, being a sore unhealed site. From the

website I posted to H there is a form of tape called new skin that is applied to

burns and is breathable, I thought I could keep this around the button and tape

the button down over it if I need to prevent the button from coming undone. I

hope it works out. Our Dr sounds very confident that I'll be happier with it

than the tube. You've been a huge support, thank you. And thank you to everyone

who have been here for us!

Dayna Carney wrote:

,

I've been following your journey to a gtube with some interest as Dasia will

be the same age and nearly the same size my daughter Alyssa was when her

tube was placed just over two years ago. We can home with the long tube

(foley tube, I believe is the term) and changed to the button a few months

later after her site had healed. It really wasn't that bad. Since Alyssa

was pretty active we didn't want a bard because of the great difficulty

keeping it closed and thereby keeping Alyssa dry. We basically taped the

tube to her diaper to keep it from hanging loose or catching on things.

After all she was hooked up to her pump 22 hours a day, which meant there

were only 2 hours when she didn't have a tube coming out of her stomach

anyway!! It's true that we had to secure her foley tube to her diaper those

2 hours, but it really was not a big deal considering she was hooked to her

pump the other 22 hours! We rarely had any leakage and her site healed

very nicely. The best part was, changing from the tube to the button was

not very painful and only took about 1 minute. Changing from a tube to a

button didn't require additional healing time because the exchange did not

harm her site.

I just wanted to share our experience. I hope her surgery goes very well!

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of Malcolm

Sent: Friday, January 13, 2006 6:15 PM

To: RSS-Support

Subject: update on Dasia's surgery

Hi Everyone,

I just got off the phone with the GI Dr., I've decided to keep our appt

for Thursday. They can do the MIC-key, but not in a one step process like

the Bard. So either I could leave surgery with the long tube, and go back in

8 weeks getting the MIC-key button, or leave surgery with the Bard button,

and go back in 8 weeks and get the MIC-key. So I suppose I'd rather have the

Bard button than a long tube for the 8 weeks. That would be nice to get the

MIC-key right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what I want,

and I'll have the experience of the Bard. And he said, since the Bard button

can be painful to take out, he puts the kids under light anesthesia first.

I'll let you guys know how everythong goes!

Mom to Dasia

23mo 17lbs 30 1/4in

Avery 6, Jaden 3

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

[Guest guest]

,

The most important thing is that you are comfortable with your choice and

were able to make it knowing all the pros and cons of your choices. I know

that Dasia will do great, and so will you! Your world will change, but it

can be a good change and Dasia will adapt very quickly!! Good Luck!!

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of Malcolm

Sent: Saturday, January 14, 2006 9:50 AM

To: RSS-Support

Subject: RE: update on Dasia's surgery

Thank you Dayna for all of your help through everything. The Bard button

does sound like a nightmare for the pumps. I was more worried about Dasia

pulling on the tube or it getting caught on something, being a sore unhealed

site. From the website I posted to H there is a form of tape called new skin

that is applied to burns and is breathable, I thought I could keep this

around the button and tape the button down over it if I need to prevent the

button from coming undone. I hope it works out. Our Dr sounds very confident

that I'll be happier with it than the tube. You've been a huge support,

thank you. And thank you to everyone who have been here for us!

Dayna Carney wrote:

,

I've been following your journey to a gtube with some interest as Dasia will

be the same age and nearly the same size my daughter Alyssa was when her

tube was placed just over two years ago. We can home with the long tube

(foley tube, I believe is the term) and changed to the button a few months

later after her site had healed. It really wasn't that bad. Since Alyssa

was pretty active we didn't want a bard because of the great difficulty

keeping it closed and thereby keeping Alyssa dry. We basically taped the

tube to her diaper to keep it from hanging loose or catching on things.

After all she was hooked up to her pump 22 hours a day, which meant there

were only 2 hours when she didn't have a tube coming out of her stomach

anyway!! It's true that we had to secure her foley tube to her diaper those

2 hours, but it really was not a big deal considering she was hooked to her

pump the other 22 hours! We rarely had any leakage and her site healed

very nicely. The best part was, changing from the tube to the button was

not very painful and only took about 1 minute. Changing from a tube to a

button didn't require additional healing time because the exchange did not

harm her site.

I just wanted to share our experience. I hope her surgery goes very well!

Dayna

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of Malcolm

Sent: Friday, January 13, 2006 6:15 PM

To: RSS-Support

Subject: update on Dasia's surgery

Hi Everyone,

I just got off the phone with the GI Dr., I've decided to keep our appt

for Thursday. They can do the MIC-key, but not in a one step process like

the Bard. So either I could leave surgery with the long tube, and go back in

8 weeks getting the MIC-key button, or leave surgery with the Bard button,

and go back in 8 weeks and get the MIC-key. So I suppose I'd rather have the

Bard button than a long tube for the 8 weeks. That would be nice to get the

MIC-key right away like did, but oh well, this is better than

waiting for a rescheduled appt. At least I'll still end up with what I want,

and I'll have the experience of the Bard. And he said, since the Bard button

can be painful to take out, he puts the kids under light anesthesia first.

I'll let you guys know how everythong goes!

Mom to Dasia

23mo 17lbs 30 1/4in

Avery 6, Jaden 3

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

[Guest guest]

,

Good luck to you and Dasia too! All the best. I'll be waiting along

with everyone else on here to hear how you and H make out.

Dawna

> ,

>

>

>

> I've been following your journey to a gtube with some interest as

Dasia will

> be the same age and nearly the same size my daughter Alyssa was

when her

> tube was placed just over two years ago. We can home with the long

tube

> (foley tube, I believe is the term) and changed to the button a few

months

> later after her site had healed. It really wasn't that bad. Since

Alyssa

> was pretty active we didn't want a bard because of the great

difficulty

> keeping it closed and thereby keeping Alyssa dry. We basically

taped the

> tube to her diaper to keep it from hanging loose or catching on

things.

> After all she was hooked up to her pump 22 hours a day, which meant

there

> were only 2 hours when she didn't have a tube coming out of her

stomach

> anyway!! It's true that we had to secure her foley tube to her

diaper those

> 2 hours, but it really was not a big deal considering she was

hooked to her

> pump the other 22 hours! We rarely had any leakage and her site

healed

> very nicely. The best part was, changing from the tube to the

button was

> not very painful and only took about 1 minute. Changing from a

tube to a

> button didn't require additional healing time because the exchange

did not

> harm her site.

>

>

>

> I just wanted to share our experience. I hope her surgery goes

very well!

>

>

>

> Dayna

>

>

>

> _____

>

> From: RSS-Support [mailto:RSS-

Support ] On

> Behalf Of Malcolm

> Sent: Friday, January 13, 2006 6:15 PM

> To: RSS-Support

> Subject: update on Dasia's surgery

>

>

>

> Hi Everyone,

> I just got off the phone with the GI Dr., I've decided to keep

our appt

> for Thursday. They can do the MIC-key, but not in a one step

process like

> the Bard. So either I could leave surgery with the long tube, and

go back in

> 8 weeks getting the MIC-key button, or leave surgery with the Bard

button,

> and go back in 8 weeks and get the MIC-key. So I suppose I'd rather

have the

> Bard button than a long tube for the 8 weeks. That would be nice to

get the

> MIC-key right away like did, but oh well, this is better

than

> waiting for a rescheduled appt. At least I'll still end up with

what I want,

> and I'll have the experience of the Bard. And he said, since the

Bard button

> can be painful to take out, he puts the kids under light anesthesia

first.

> I'll let you guys know how everythong goes!

>

> Mom to Dasia

> 23mo 17lbs 30 1/4in

> Avery 6, Jaden 3

>

>

> ---------------------------------

> Yahoo! Photos

> Ring in the New Year with Photo Calendars. Add photos, events,

holidays,

> whatever.

>

>

[Guest guest]

hey jessica!!

good luck!! i will keep dasia in my thoughts and prayers!!

Jodie c

[Guest guest]

,

I will be praying and thinking of you and Dasia. Good luck.

B

and Kelli

Malcolm wrote:

Hi Everyone,

I just got off the phone with the GI Dr., I've decided to keep our appt for

Thursday. They can do the MIC-key, but not in a one step process like the Bard.

So either I could leave surgery with the long tube, and go back in 8 weeks

getting the MIC-key button, or leave surgery with the Bard button, and go back

in 8 weeks and get the MIC-key. So I suppose I'd rather have the Bard button

than a long tube for the 8 weeks. That would be nice to get the MIC-key right

away like did, but oh well, this is better than waiting for a

rescheduled appt. At least I'll still end up with what I want, and I'll have the

experience of the Bard. And he said, since the Bard button can be painful to

take out, he puts the kids under light anesthesia first. I'll let you guys know

how everythong goes!

Mom to Dasia

23mo 17lbs 30 1/4in

Avery 6, Jaden 3

---------------------------------

Yahoo! Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.