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Re: CHAT - Kathy

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Pat,

I just have a question about the GH units ... I just want to make

sure that what I think you are talking about is so... I have 1 cc

insulin syringes and Noah gets 18 units out of the possible 100 on

that syringe ... is that what you are talking about? Only in Bran's

case he gets 10.?

Thanks

Dawna

Matt 13, 11, 8, and Noah 3 RSS

>

> Hi Kathy,

>

> 's first year on GH was disappointing as well, as his growth

velocity

> stayed negative (meaning he still wasn't even growing as well as

his peers,

> let alone obtaining any catch-up growth) I think it was a

combination of

> caloric deficiency, and low dosing of GH both contributed to the

problem. We

> managed to up his caloric intake ( is on continuous g-tube

feeds) and

> increased his GH (from 6 units nightly to 10 units), and he has now

passed

> the RSS boys line on the growth charts. YEAH!!! FINALLY!!!

>

> There is always hope!

> Hugs for you both!

> Pat (g-ma to , RSS, 4yrs 1m old, 28# 10oz, 35 " , G-tube, GHT)

>

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