Re: Letrozole .............and I am sooooo upset!

[Guest guest]

Ava,

Katy is a little better at this than I am, but I know she is finishing up

MAGIC's latest newsletter tonight! As Pat mentioned the drug is an

aromatase inhibitor. It's purpose for your daughter is to slow down her

rapidly advancing bone age. The Lupron she is taking (I think that's what

you said) is delaying puberty to allow for more growth time, but it does not

stop her bone age. Therefore, her bone plates are still advancing toward

fusing and thereby stopping additional growth. Does this make sense? The

aromatase inhibitor should slow down her bone age and give her more time

before her bone plate's fuse. By giving the aromatase inhibitor and the

Lupron and the gHT, Dr. H is MAXIMIZING all avenues to gain growth for

ita.

Does that help a little?? Dr. H just prescribed an aromatase inhibitor for

our 4yr old daughter. Her bone age is now nearly 7. Hopefully, the

aromatase inhibitor will allow her actual age to " catch up " to her bone age

before puberty. Then Dr. H indicated the next step is that when Alyssa

starts displaying signs of puberty, to ADD a drug like Lupron to stop the

puberty (again buying growth time) and gHT. I believe by stopping puberty

with Lupron you also stop growth so to speak, so the gHT is to start the

growth again.

Please realize I am not a doctor and this is simply what I think Dr. H

explained to me last weekl!! If you have any questions about her treatment

you should ask!!! I know she can be intimidating, but she will explain if

you ask questions!!!!

Dayna*---

_____

From: RSS-Support [mailto:RSS-Support ] On

Behalf Of avaparent

Sent: Wednesday, February 01, 2006 6:10 PM

To: RSS-Support

Subject: Letrozole .............and I am sooooo upset!

Help, can anyone help!

Our prayers were finally answered. Today, Dr. H has given ita a

script for something called Letrozole as/and/or a growth hormone!!!!

I cannot contain myself I am so excited because the doctors here in MI

and IL said her growing was done... and she would be 4ft 3 " and please

leave their offices ( o.k. not quite that blunt).

So I called the primary insurance and told them the name and they

asked me why it was scripted. All I knew to say was SGA and they

flatly told me NO, it is not approved for SGA. I then told them I

don't really know because I have no results for the rest of the

testing which was done.

Dr. H ran many different tests like the Igf series etc on my child so

perhaps I said the wrong thing.

Does anyone have experience with this drug? Can you tell me the main

reason it would be perscribed. Maybe it is because the primary which

is BcBs IL is fond of making denials and perhaps my insurance bcbs MI

will approve it. (My x has the lowest level insuraance a group can

get!)

I know Dr. Mercado or Dr. H will get back to me but can someone tell

me something about this drug please!!!!!!!!!!

The script only says Letrozole and I believe Dr. H was going to do a

separate script for a Growth Hormone, i think????

AvaMarie

[Guest guest]

I don't recall if Pat mentioned this or not, so please forgive me if I

am repeating what she already said....

An aromatase inhibitor prevents the production, or slows down the

production, of estrogen. Too much estrogen is the reason that

adrenarche begins and the bone age advances. " Estrogen is not our

friend " is what Dr. H. said one year at the convention.

Jodi Z

[Guest guest]

Dayna,

I really feel as though ita is now in the hands of someone who

can really help her. I now understand what the differance is. Right

now Dr. H is getting with the insurance company about the growth

hormone. I re-read the email, I was just so excited. I thought the

Letrozole was the GH, urgh!!! I now know this is a step to maximize

my daughters chances and I appreciate your explanation. I just

grabbed my wallet and went to get the medication tonight right after

I read Pats explanation.

ita has had her frist dose of- bone growth- control!!!!

Your daughter is going through something much of the same. I am so

happy that you have the help you need for her so much earlier

because this has been something for us. We literally got help right

under the wire as to itas bone age.

I really appreciate learning about all the things Dr. H is in the

process of putting into place and I now know if there is anyway to

get more height we will get it now!!

I will speak to her but I was just so elated when I got the email;

and then when I had a problem I could not think anymore than to get

to the listserv...and right away... I felt o.k.

This is a GOOD thing.

AvaMarie

>

> Ava,

>

>

>

> Katy is a little better at this than I am, but I know she is

finishing up

> MAGIC's latest newsletter tonight! As Pat mentioned the drug is an

> aromatase inhibitor. It's purpose for your daughter is to slow

down her

> rapidly advancing bone age. The Lupron she is taking (I think

that's what

> you said) is delaying puberty to allow for more growth time, but

it does not

> stop her bone age. Therefore, her bone plates are still advancing

toward

> fusing and thereby stopping additional growth. Does this make

sense? The

> aromatase inhibitor should slow down her bone age and give her

more time

> before her bone plate's fuse. By giving the aromatase inhibitor

and the

> Lupron and the gHT, Dr. H is MAXIMIZING all avenues to gain growth

for

> ita.

>

>

>

> Does that help a little?? Dr. H just prescribed an aromatase

inhibitor for

> our 4yr old daughter. Her bone age is now nearly 7. Hopefully,

the

> aromatase inhibitor will allow her actual age to " catch up " to her

bone age

> before puberty. Then Dr. H indicated the next step is that when

Alyssa

> starts displaying signs of puberty, to ADD a drug like Lupron to

stop the

> puberty (again buying growth time) and gHT. I believe by stopping

puberty

> with Lupron you also stop growth so to speak, so the gHT is to

start the

> growth again.

>

>

>

> Please realize I am not a doctor and this is simply what I think

Dr. H

> explained to me last weekl!! If you have any questions about her

treatment

> you should ask!!! I know she can be intimidating, but she will

explain if

> you ask questions!!!!

>

>

>

> Dayna*---

>

>

>

> _____

>

> From: RSS-Support [mailto:RSS-

Support ] On

> Behalf Of avaparent

> Sent: Wednesday, February 01, 2006 6:10 PM

> To: RSS-Support

> Subject: Letrozole .............and I am sooooo

upset!

>

>

>

> Help, can anyone help!

>

> Our prayers were finally answered. Today, Dr. H has given ita

a

> script for something called Letrozole as/and/or a growth

hormone!!!!

>

> I cannot contain myself I am so excited because the doctors here

in MI

> and IL said her growing was done... and she would be 4ft 3 " and

please

> leave their offices ( o.k. not quite that blunt).

>

>

> So I called the primary insurance and told them the name and they

> asked me why it was scripted. All I knew to say was SGA and they

> flatly told me NO, it is not approved for SGA. I then told them I

> don't really know because I have no results for the rest of the

> testing which was done.

>

> Dr. H ran many different tests like the Igf series etc on my child

so

> perhaps I said the wrong thing.

>

> Does anyone have experience with this drug? Can you tell me the

main

> reason it would be perscribed. Maybe it is because the primary

which

> is BcBs IL is fond of making denials and perhaps my insurance bcbs

MI

> will approve it. (My x has the lowest level insuraance a group

can

> get!)

>

> I know Dr. Mercado or Dr. H will get back to me but can someone

tell

> me something about this drug please!!!!!!!!!!

>

> The script only says Letrozole and I believe Dr. H was going to do

a

> separate script for a Growth Hormone, i think????

>

>

> AvaMarie

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Jodi Z,

That is a good way of putting it because I have been tense each and

every bone age I got for ita. Perhaps we can finally stop

running from the... Bony Man!

Ava

>

> I don't recall if Pat mentioned this or not, so please forgive me

if I

> am repeating what she already said....

>

> An aromatase inhibitor prevents the production, or slows down the

> production, of estrogen. Too much estrogen is the reason that

> adrenarche begins and the bone age advances. " Estrogen is not our

> friend " is what Dr. H. said one year at the convention.

>

> Jodi Z

>