stoma revision

[Guest guest]

I am putting this question out, I hope someone can help me decide

what to do.

My surgeon says that the tests I have had reveal I have clinical

dumping syndrome, my food goes straight to my large intestine too

fast, and he is afraid I am not going to get enough nutrition. He is

wanting to slow my emptying down, by making the pouch empty slower.

He says the reason I have not lost weight the last 9 months is

because my body is in starvation mode and won't let go of the weight.

I had someone on another group tell me that others have had stoma

revisions and that there is a chance adhesions form and stomas close

up, she even suggested do I want to consider the possibility of a

feeding tube. She has me scared now...

Do any of you know of others who had the stoma revised and actually

closed up and had to have feeding tubes? From just the revision of

the stoma? I am asking so I can get all the facts so I can weigh the

best decision.

My question to myself after I do research some more, is this: What

is the wiser road to take, don't have the surgery for fear of

adhesions and have major nutritional issues in a few years? or have

the surgery, hoping it fixes my clinical dumping syndrome.

For educational purposes, clinical dumping is not the same as dumping

on sugar. In clinical dumping, all the food gets pushed into the

large intestine in a matter of minutes from swallowing. It is not

same as having a reaction to sugar.

I would appreciate wisdom from any out there, my surgery is scheduled

for Feb 19, and I want to know as soon as possible if I should move

forward with it...I don't want my stoma to close up and get a feeding

tube. I have tried to search for stoma revisions on the web, there

is no information out there.

Sorry for the length, this is important to me, I am trying to figure

out what to do.

Debbi in Ohio

open rny 11/4/02

distal/transected