Re: Pink J

[Guest guest]

My house is one of those old (built 1960 era) southern homes which originally had a carport instead of a garage.  At the end of the carport was a room which was used as a utility room ; storage for lawn tools, the water heater, the a/c heating system etc.  What made this one unique was that it also has a toilet and a sink!When we bought the house, we converted the carport to a closed in garage so now the room is my laundry room.  And as is a common problem with us, If I run into an emergency coughing fit, I have a bathroom right there!Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

I pray you enough.....

From: Bruce <brucemoreland@ gmail.com>Subject: Re: My first postTo: Breathe-Support@ yahoogroups. comDate: Saturday, January 16, 2010, 12:50 PM

 

Pink/ArianneAlso consider new ways of doing things and trying some energy savingmethods. For instance, I got a Shark steam mop and it does a great job.Far easier than traditional mopping and hand scubbing and I can use itwhen we make a mess and some spot mopping is necessary. If I was the onehaving to vacuum, I'd have to change vacuums. I have a great vacuum forallergic people, but its heavy. Replace your current laundry basketswith light mesh ones or even something on wheels. Just saying there aresometimes less physical ways than the way we've always done things.> > >> > >> > >> > >> >> >> > >> >> > Ariann Your situation is very much like mine. I am 71 had both hips> replaced and one shoulder. I now have a knee that is acting up. Ibecame> very short

of breathe about a year ago and after going through testthey> diagnosed IPF in June. I had been on a c pap for two years and am nowon> it with oxygen at night. My situation is a lot like yours. My level is> good when I am setting or doing light work but falls during exertion (> 70 and 80's) I have a unit that works well for me and might you too.The> machine is capable of filling my oxygen tanks (portable) which I use> when shopping, walking, and heavy cleaning. The machine is hooked upto> my c pap at night. I have two tanks, one I use at home and one I carry> in my car for shopping.> > > I just had a pulmonary function test and a cat scan but dont have> the results yet. I am anxious to see if they have changed since mytest> in June. My sister has IPF and Copd and goes to the same Dr. He toldher> that this condition IPF is an inherited

disease which is good to know> for family. Barb> > barbara jean> >> > >> > >> > >> > >> > From: arianne377 Arianne377@ ..> > > To: Breathe-Support@ yahoogroups. com> > > Sent: Thu, January 14, 2010 5:26:27 PM> > > Subject: My first post> > >> > >> > >> >> > Hello everyone. I signed on a week or so ago, have read most of the> files and all of the messages since then.> > > My name is Ann, I reside in Massachusetts and am 70 years old. I> have had 2 hip replacements, one in August of 2006 and the other in> January of 2007. Other than that I have only had gall bladder surgery> and a radical mastoidectomy.> > > In November of 2009 I was diagnosed with Idiopathic Pulmonary> Fibrsis. I had never

heard of this before my dx.> > > I really thought I had COPD, but the pulmonary doc said no. It's> when he told me that he has a patient who had had it for five yearsand> is doing well, that I began to see the seriousness of it all. He also> said there is no cure, but suggested that I try NAC as his long-term> patient uses it and says it works well for her. Needless to say I gotit> and am on my first refill.> > > I saw this pulmonary doc on November 7 and again on December 28.At> my first visit he took me for a walk with an oxometer and I dropped to> 75.. In December I dropped to 82. I'm sorry but I don't know all of the> medical terms as of yet, but sure I will learn. At my first visit he> told me I need oxygen when walking. When the Oxygen Company visited my> home, they brought the whole store with them. I panicked. They told me> that the

doctor had ordered oxygen 24/7 at level 2. The doctor alsotold> me that I could get a small container that would fit on my belt. The> company told me there was nothing like that.. On my second doctorvisit,> I asked him about it and he said that he would find a company thatwould> supply me with one. That company turned out to be the very samecompany> that I first dealt with.> > > This past Monday, a therapist from this company came to my home to> test me for an oxygen system that would only provide oxygen as needed.> She took me for several walks around my house and up and down the> stairs, and I failed on every level. It was only as she was about to> leave the house that she noticed that the doctor had written a script> for liquid oxygen. I don't want, nor will I use it.> > > My husband and I travel often and the liquid would not work,

yetthe> other so-called portable tanks only supply 45 minutes of oxygen. The> therapist also told me that the doctor wrote the script for level 2> oxygen at rest, and level 3 with strenuous activity. He mentioned> nothing about this to me.> > > My oxygen is at 96% at rest and the therapist said that althoughit> dropped when walking and climbing stairs, I have an immediate recovery> when I sit.> > > Needless to say I have not been myself since November. The more I> find out about this disease, the more depressed I become. I have totalk> myself out of bed every morning and force myself to do simple chores> around the house.> > > I am glad I found this group as you all seem so positive, and Ineed> that. I know I have rambled and perhaps don't make sense, but I just> needed to finally introduce myself and hope some of you can

help me> through your experiences. Thanks> > >> > >> >> >> > >> > >> >>