Re: Help...i know so little.

[Guest guest]

Liz,

My daughter Madison has a lift on her shoe and she is 4. The doc told me

that if there is a asymetry and the child continues to walk without a lift the

it will throw her hips out of wack. Also the doc said the stress that the

longer leg has to endure to compensate will cause joint pain and years down the

line the child or young adult by that time will have a hard time walking so

imagine where that would leave them as an adult. Just something for you to

think

about..

Chrissy

Mom to

Louis 6 Madison 4 RSS Shane 2 1

[Guest guest]

Lizzy,

If you are close enough to get to Dr. Stanhope and it is possible to

see him, then you should go for it. Even if you only go once. You

will have his expertise to learn from and you will not feel so unsure

of what you are doing.

You also should test his blood sugars, or at least ketones, if he is

symptomatic - especially if his mood/behavior improve once he eats.

It is so important to keep those under control. You may be able to

establish a pattern that can be taken care of before he melts down.

You will feel so much better and more secure in the longrun if you do

some proactive things now. You'll never have to ask yourself " What

if? "

Jodi Z

[Guest guest]

Hi Liz,

The pics of are there in the photos folder ... what a

cutie ... thanks for sharing.

Dawna

>

> Hi again everyone...i have been quietly reading all your posts and

> there are a few things i am now worried about. Should i be doing

> more? Should be having GH? He is certainly not the smallest

> in his class at school, but probably the lightest. We have never

> been offered GH, although it was mentioned way back when

> first diagnosed.

> I was told would grow out of hypoglycaemias by the age of 2

> and not to worry about it. i know thats not true because it is

clear

> to me when his sugars drop and he needs food as he gets sleepy,

> weepy and grumpy. Something to eat always works wonders, but should

> i be testing his sugars regularly? Is he going hypo at night and i

> just dont notice? Aaargh...there is so much more i should know and

> dont. I have always thought was getting on so well and now i

> a bag of worries. You would never guess i was a trained nurse would

> you?

> And what about scoliosis? stopped having his shoe built up

> when he was 5 because he seemed to compensate by bending his right

> knee instead of his spine. (left leg 1.5-2cm longer than right)He

> was better without the lift and he was very happy to get rid of it.

> So i felt the same, and was happy for him.

> We have not had alot of input from professionals, and none of these

> issues have been covered since was really young. Am i just

> being paranoid? should i go with my gut and keep believing that

> is doing fine or should i insist he sees someone else? Maybe

> try to get a referral to Dr Stanhope? I know i sound like a total

> novice but i never realised how much input other RSS kids had. I

> feel a bit like has been forgottten about.

> Still...all that said...i love this site and love reading what is

> going on with you all. Being pregnant, alot of smells make me sick

> to my stomach too. Not many foods though. Food smells just make me

> hungry. Any sort of perfume, air freshener, or flowery smells

finish

> me off. Beer too. Yuck. My poor husband has to stay well away from

> me when he indulges.

> Did s photos show up ok? Im afraid i still cant work the chat

> section, my computer doesnt seem to like it. But im still trying.

> Thanks for all being there. Liz.xxx

>