Re: New to the group! Please Read

[Guest guest]

That’s crazy! I would get a new pediatrician!!

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[Guest guest]

Wow!! You are making me feel really lucky. My pediatrician is the one that

noticed the asymmetry at my son's 2 month check-up. He sent me immediately to

Pasadena to CT and to a physical therapist as well. My little man has

torticollis and plagio and his face is lopsided too... all I noticed was a bit

of a flat spot on his head until the pediatrician pointed it out.

First and foremost I suggest getting a new pediatrician. Yours is really

ignorant. The DocBand was FDA approved in 1998 - 13 YEARS AGO!! Not only that, I

personally know 3 people who had amazing results - not to mention the THOUSANDS

on here who have. Scam - UGH! She gives doctors a bad name.

You have to be your own advocate for sure, but I suggest finding a new ped in

the meantime.

Good luck!! Lots of support on here which will make everything SO much easier!!!

>

> Hello everybody I am so happy I found parents that are experiencing the same

things we are.

>

> I never noticed my sons flat head until a lactation consulted came over when

he was almost 2 months. She told me do you know your sons face is lopsided? NO!

She told me he has torticollis and started babbling on about his flat head, and

so on. I made an appointment to the pediatrician the next day. She told me he

had mild torticollis and repositioning should help, nothing to worry about. Then

around the 3 1/2 months I started to notice that the right eye is much bigger

than the left, also the left side of his is a little slanted. I brought this up

to the pediatrician at the next appointment, and she said it is a jaw deformity,

it is common and will resolve on its own.

>

> Oh and I bought him a noggin nest for the flat head which seemed to help a

lot!

>

> However, he is now 5 months old and I am started to notice that he has

plagiocephaly, it is much more visible now, the jaw is still slanted and the eye

is smaller, the other cheek looks much fuller. My son had a wellness check up on

Wednesday and of course the doctor said it is getting better, but I do not know

what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE

NOW! She never even noticed that the right side of the head is higher than the

left (plagiocephaly).

>

> I keep hearing the same old sh-peal " it will fix on its own " the problem is I

cannot take that risk. See I have a underbite and cross bite that can only be

fixed now by orthonathic surgery, because my mom did not do anything about it

when I was nine, I also have vision problems, and who knows maybe I had this

when I was little as well. The point is I will not take a risk for it to fix on

its own, I must take some sort of action whether it be PT or DocBand. I do not

want my son going through what I am. I do not want him to question why I did not

do anything!

>

> So I called the Pedi yesterday and told her that I want a referral to a

specialist which she agreed, since I had her on the phone I asked her about the

DOC BAND and I quote this was her reply:

>

> " It is a scam, it is not FDA approved, it is a waste of money and essentially

does not work. "

>

> I do not understand why she is so against it!

>

> Well I went ahead and called DOC Band in Pasadena today, made a consult for

April 14th, We live in Vegas so we will have to travel to each appointment by

car. They said they have some old school pediatricians that just are not

knowledgeable on the DOC Band so that is why some are against it.

>

> Here is the crazy part, I have to ask my Pedi for a prescription for the DOC

Band. Any tips on how to get this done? Since she is so against it?

>

> Anyways I will keep everyone posted on how the consult goes as well as any PT!

>

[Guest guest]

By the way, just an update since I really didn't tell you where ours headed. We

went to Pasadena and they said he definitely needs a helmet. Physical therapist

concurs. We are going to PT 3x per week to fix the torticollis because every day

that we don't do stretches it gets worse. Our insurance is covering 90% of the

band, so we are only going to be out of pocket about $400. Obviously it's worth

every single penny. Our insurance requires 2 month of sleep repositioning as

well as him to be 4 months old, but we have an appointment so that he will be

fitted right when he turns 4 months old.

Good luck!!!!! I'm sure everything will work out - you just need to find a

pediatrician who is more informed and up to date.

>

> Hello everybody I am so happy I found parents that are experiencing the same

things we are.

>

> I never noticed my sons flat head until a lactation consulted came over when

he was almost 2 months. She told me do you know your sons face is lopsided? NO!

She told me he has torticollis and started babbling on about his flat head, and

so on. I made an appointment to the pediatrician the next day. She told me he

had mild torticollis and repositioning should help, nothing to worry about. Then

around the 3 1/2 months I started to notice that the right eye is much bigger

than the left, also the left side of his is a little slanted. I brought this up

to the pediatrician at the next appointment, and she said it is a jaw deformity,

it is common and will resolve on its own.

>

> Oh and I bought him a noggin nest for the flat head which seemed to help a

lot!

>

> However, he is now 5 months old and I am started to notice that he has

plagiocephaly, it is much more visible now, the jaw is still slanted and the eye

is smaller, the other cheek looks much fuller. My son had a wellness check up on

Wednesday and of course the doctor said it is getting better, but I do not know

what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE

NOW! She never even noticed that the right side of the head is higher than the

left (plagiocephaly).

>

> I keep hearing the same old sh-peal " it will fix on its own " the problem is I

cannot take that risk. See I have a underbite and cross bite that can only be

fixed now by orthonathic surgery, because my mom did not do anything about it

when I was nine, I also have vision problems, and who knows maybe I had this

when I was little as well. The point is I will not take a risk for it to fix on

its own, I must take some sort of action whether it be PT or DocBand. I do not

want my son going through what I am. I do not want him to question why I did not

do anything!

>

> So I called the Pedi yesterday and told her that I want a referral to a

specialist which she agreed, since I had her on the phone I asked her about the

DOC BAND and I quote this was her reply:

>

> " It is a scam, it is not FDA approved, it is a waste of money and essentially

does not work. "

>

> I do not understand why she is so against it!

>

> Well I went ahead and called DOC Band in Pasadena today, made a consult for

April 14th, We live in Vegas so we will have to travel to each appointment by

car. They said they have some old school pediatricians that just are not

knowledgeable on the DOC Band so that is why some are against it.

>

> Here is the crazy part, I have to ask my Pedi for a prescription for the DOC

Band. Any tips on how to get this done? Since she is so against it?

>

> Anyways I will keep everyone posted on how the consult goes as well as any PT!

>

[Guest guest]

my ped would not sign off on the doc band and said the same thing yours did that

it was a scam and it did not work. so i had to find a new ped who would do it.

my son has now been in the doc band for 3 weeks and i am already noticing a

difference!

>

> Hello everybody I am so happy I found parents that are experiencing the same

things we are.

>

> I never noticed my sons flat head until a lactation consulted came over when

he was almost 2 months. She told me do you know your sons face is lopsided? NO!

She told me he has torticollis and started babbling on about his flat head, and

so on. I made an appointment to the pediatrician the next day. She told me he

had mild torticollis and repositioning should help, nothing to worry about. Then

around the 3 1/2 months I started to notice that the right eye is much bigger

than the left, also the left side of his is a little slanted. I brought this up

to the pediatrician at the next appointment, and she said it is a jaw deformity,

it is common and will resolve on its own.

>

> Oh and I bought him a noggin nest for the flat head which seemed to help a

lot!

>

> However, he is now 5 months old and I am started to notice that he has

plagiocephaly, it is much more visible now, the jaw is still slanted and the eye

is smaller, the other cheek looks much fuller. My son had a wellness check up on

Wednesday and of course the doctor said it is getting better, but I do not know

what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE

NOW! She never even noticed that the right side of the head is higher than the

left (plagiocephaly).

>

> I keep hearing the same old sh-peal " it will fix on its own " the problem is I

cannot take that risk. See I have a underbite and cross bite that can only be

fixed now by orthonathic surgery, because my mom did not do anything about it

when I was nine, I also have vision problems, and who knows maybe I had this

when I was little as well. The point is I will not take a risk for it to fix on

its own, I must take some sort of action whether it be PT or DocBand. I do not

want my son going through what I am. I do not want him to question why I did not

do anything!

>

> So I called the Pedi yesterday and told her that I want a referral to a

specialist which she agreed, since I had her on the phone I asked her about the

DOC BAND and I quote this was her reply:

>

> " It is a scam, it is not FDA approved, it is a waste of money and essentially

does not work. "

>

> I do not understand why she is so against it!

>

> Well I went ahead and called DOC Band in Pasadena today, made a consult for

April 14th, We live in Vegas so we will have to travel to each appointment by

car. They said they have some old school pediatricians that just are not

knowledgeable on the DOC Band so that is why some are against it.

>

> Here is the crazy part, I have to ask my Pedi for a prescription for the DOC

Band. Any tips on how to get this done? Since she is so against it?

>

> Anyways I will keep everyone posted on how the consult goes as well as any PT!

>

[Guest guest]

You need to go to sunshine pediatrics. Dr wrote a letter a nd prescription. We went to cranial technology though. The physician do this because the feel they don't have proof try them. I hope this helps! Carmen Sent from my iPhoneOn Apr 4, 2011, at 8:12 AM, "kajsadee" <kajsanielson@...> wrote:

my ped would not sign off on the doc band and said the same thing yours did that it was a scam and it did not work. so i had to find a new ped who would do it. my son has now been in the doc band for 3 weeks and i am already noticing a difference!

>

> Hello everybody I am so happy I found parents that are experiencing the same things we are.

>

> I never noticed my sons flat head until a lactation consulted came over when he was almost 2 months. She told me do you know your sons face is lopsided? NO! She told me he has torticollis and started babbling on about his flat head, and so on. I made an appointment to the pediatrician the next day. She told me he had mild torticollis and repositioning should help, nothing to worry about. Then around the 3 1/2 months I started to notice that the right eye is much bigger than the left, also the left side of his is a little slanted. I brought this up to the pediatrician at the next appointment, and she said it is a jaw deformity, it is common and will resolve on its own.

>

> Oh and I bought him a noggin nest for the flat head which seemed to help a lot!

>

> However, he is now 5 months old and I am started to notice that he has plagiocephaly, it is much more visible now, the jaw is still slanted and the eye is smaller, the other cheek looks much fuller. My son had a wellness check up on Wednesday and of course the doctor said it is getting better, but I do not know what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE NOW! She never even noticed that the right side of the head is higher than the left (plagiocephaly).

>

> I keep hearing the same old sh-peal "it will fix on its own" the problem is I cannot take that risk. See I have a underbite and cross bite that can only be fixed now by orthonathic surgery, because my mom did not do anything about it when I was nine, I also have vision problems, and who knows maybe I had this when I was little as well. The point is I will not take a risk for it to fix on its own, I must take some sort of action whether it be PT or DocBand. I do not want my son going through what I am. I do not want him to question why I did not do anything!

>

> So I called the Pedi yesterday and told her that I want a referral to a specialist which she agreed, since I had her on the phone I asked her about the DOC BAND and I quote this was her reply:

>

> "It is a scam, it is not FDA approved, it is a waste of money and essentially does not work."

>

> I do not understand why she is so against it!

>

> Well I went ahead and called DOC Band in Pasadena today, made a consult for April 14th, We live in Vegas so we will have to travel to each appointment by car. They said they have some old school pediatricians that just are not knowledgeable on the DOC Band so that is why some are against it.

>

> Here is the crazy part, I have to ask my Pedi for a prescription for the DOC Band. Any tips on how to get this done? Since she is so against it?

>

> Anyways I will keep everyone posted on how the consult goes as well as any PT!

>

[Guest guest]

Hello,If your ped is referring you to a specialist, that person can write an Rx for a band. Our ped also refused to write an Rx for a Doc Band, saying that none of the peds in her office "write for this." Simply put, her office was just behind the times. The ped did refer us to a neurosurgeon who did recommend a band and wrote an Rx for one and my daughter did receive treatment through a different provider.After my daughter was banded during a visit, the ped did borrow the band and show it around the office to the other peds. I just hope that our experience helped to educate the peds in that practice so that other babies can receive early intervention for plagio.Good luck!-Amy From: "ralevalley@..." <ralevalley@...>Plagiocephaly Sent: Sun, April 3, 2011 11:16:22 PMSubject: Re: New to the group! Please Read

We live about 30 minutes from Pasadena - we are super blessed not to have to drive very far! They were great. Very, very informative and super efficient. We took our little guy when he was just over 2 months old and they told us that they couldn't get a good scan until he was at least 3 months old. Our insurance came back and they cover 90% of it as long as he is 4 months old and has had 2 months of sleep repositioning, so we go back on May 16th. In the meantime they highly recommended physical therapy which we started last week.

We haven't gone through much with them yet, but they were very professional and definitely knew what they were talking about. Based on people's responses here they are the best around. The DocBand seems to get better ratings than anything else that I've researched and since our insurance pays for 90% of it we're definitely going with them.

Hopefully you will have the same kind of experience if you come out here!! Keep us updated!

> >

> > Hello everybody I am so happy I found parents that are experiencing the same

> >things we are.

> >

> > I never noticed my sons flat head until a lactation consulted came over when he

> >was almost 2 months. She told me do you know your sons face is lopsided? NO! She

> >told me he has torticollis and started babbling on about his flat head, and so

> >on. I made an appointment to the pediatrician the next day. She told me he had

> >mild torticollis and repositioning should help, nothing to worry about. Then

> >around the 3 1/2 months I started to notice that the right eye is much bigger

> >than the left, also the left side of his is a little slanted. I brought this up

> >to the pediatrician at the next appointment, and she said it is a jaw deformity,

> >it is common and will resolve on its own.

> >

> >

> > Oh and I bought him a noggin nest for the flat head which seemed to help a lot!

> >

> >

> > However, he is now 5 months old and I am started to notice that he has

> >plagiocephaly, it is much more visible now, the jaw is still slanted and the eye

> >is smaller, the other cheek looks much fuller. My son had a wellness check up on

> >Wednesday and of course the doctor said it is getting better, but I do not know

> >what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE

> >NOW! She never even noticed that the right side of the head is higher than the

> >left (plagiocephaly).

> >

> >

> > I keep hearing the same old sh-peal "it will fix on its own" the problem is I

> >cannot take that risk. See I have a underbite and cross bite that can only be

> >fixed now by orthonathic surgery, because my mom did not do anything about it

> >when I was nine, I also have vision problems, and who knows maybe I had this

> >when I was little as well. The point is I will not take a risk for it to fix on

> >its own, I must take some sort of action whether it be PT or DocBand. I do not

> >want my son going through what I am. I do not want him to question why I did not

> >do anything!

> >

> >

> > So I called the Pedi yesterday and told her that I want a referral to a

> >specialist which she agreed, since I had her on the phone I asked her about the

> >DOC BAND and I quote this was her reply:

> >

> > "It is a scam, it is not FDA approved, it is a waste of money and essentially

> >does not work."

> >

> > I do not understand why she is so against it!

> >

> > Well I went ahead and called DOC Band in Pasadena today, made a consult for

> >April 14th, We live in Vegas so we will have to travel to each appointment by

> >car. They said they have some old school pediatricians that just are not

> >knowledgeable on the DOC Band so that is why some are against it.

> >

> > Here is the crazy part, I have to ask my Pedi for a prescription for the DOC

> >Band. Any tips on how to get this done? Since she is so against it?

> >

> > Anyways I will keep everyone posted on how the consult goes as well as any PT!

> >

>

[Guest guest]

I had a very similar experience. My doctor was not for the helmet and told me

it was a waste of time and money . . and basically that it was ridiculous. She

said " fix the neck, the head will follow " . . well, after 3 months of stretching

& repositioning . . it didn't do anything. So, I went to CT, had an evaluation

.. . . my daughter was definitely a candidate . I called my dr. and told her I

wanted to do this and would she please sign the prescription they were sending

to her. And she did. I was hesitant to stay with this doctor, but figured she

DID sign the script and I should give her another changce. Well, after the

helmet was all said and done . . .she still was against it. 2 months after the

helmet was off, we had a well baby visit and we were talking about the head and

how, yes it was still crooked (don't expect amazing life shattering results) but

that it WAS indeed BETTER. She told me " well, sometimes we just have to do

these things to make ourselves feel better " . . .that was my last time seeing

this dr. I immediately switched and couldn't be happier that I did. I strongly

recommend getting another ped who IS on your side and DOES take your concerns

into true consideration. I am so glad we got my daughter banded. It was a huge

struggle to get it . . and was a pain all the while with traveling 3 hours each

way for each appt . . but looking back I wouldn't have it any other way. It's

not was about 15 months since she wore it . and yes, I still see some

lopsidedness in her face . . . but I know it's so much better than it would have

been . .and no one else notices, unless i specifically point it out. And I know

that i did what I could when I had the option to do it. My biggest regret is

not switching doctors as soon as my dr. wasn't " with me " on my concerns. I will

always regret that. I could have had her in that helmet 2 months earlier had my

dr. been proactive. but we live & learn . . .

good luck to you. -Dana

>

>

> From: Yanina <i.yanina@...>

> Subject: New to the group! Please Read

> Plagiocephaly

> Date: Friday, April 1, 2011, 8:45 PM

>

>

>  

>

>

>

> Hello everybody I am so happy I found parents that are experiencing the same

things we are.

>

> I never noticed my sons flat head until a lactation consulted came over when

he was almost 2 months. She told me do you know your sons face is lopsided? NO!

She told me he has torticollis and started babbling on about his flat head, and

so on. I made an appointment to the pediatrician the next day. She told me he

had mild torticollis and repositioning should help, nothing to worry about. Then

around the 3 1/2 months I started to notice that the right eye is much bigger

than the left, also the left side of his is a little slanted. I brought this up

to the pediatrician at the next appointment, and she said it is a jaw deformity,

it is common and will resolve on its own.

>

> Oh and I bought him a noggin nest for the flat head which seemed to help a

lot!

>

> However, he is now 5 months old and I am started to notice that he has

plagiocephaly, it is much more visible now, the jaw is still slanted and the eye

is smaller, the other cheek looks much fuller. My son had a wellness check up on

Wednesday and of course the doctor said it is getting better, but I do not know

what she is talking about if anything it is getting WORSE IT IS MORE VISIBLE

NOW! She never even noticed that the right side of the head is higher than the

left (plagiocephaly).

>

> I keep hearing the same old sh-peal " it will fix on its own " the problem is I

cannot take that risk. See I have a underbite and cross bite that can only be

fixed now by orthonathic surgery, because my mom did not do anything about it

when I was nine, I also have vision problems, and who knows maybe I had this

when I was little as well. The point is I will not take a risk for it to fix on

its own, I must take some sort of action whether it be PT or DocBand. I do not

want my son going through what I am. I do not want him to question why I did not

do anything!

>

> So I called the Pedi yesterday and told her that I want a referral to a

specialist which she agreed, since I had her on the phone I asked her about the

DOC BAND and I quote this was her reply:

>

> " It is a scam, it is not FDA approved, it is a waste of money and essentially

does not work. "

>

> I do not understand why she is so against it!

>

> Well I went ahead and called DOC Band in Pasadena today, made a consult for

April 14th, We live in Vegas so we will have to travel to each appointment by

car. They said they have some old school pediatricians that just are not

knowledgeable on the DOC Band so that is why some are against it.

>

> Here is the crazy part, I have to ask my Pedi for a prescription for the DOC

Band. Any tips on how to get this done? Since she is so against it?

>

> Anyways I will keep everyone posted on how the consult goes as well as any PT!

>