Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hey Everyone- We had our council session with the genetic folks at the Shriners hospital today. The doc said from her physical signs, it looks like she's got RSS. They tried to draw blood for testing, but they couldn't find a vein big enough to get any. This was after the stuck her several times... anyway.. I " m happy was there to be the strong one. I stood in the hall with ... yes... i'm a whimp. Anyway.. they want us to come back in 6 months when she's almost a year to try to get some blood for testing. He didn't tell me anything I didn't already know about RSS. I learned everything thru you all.... but I nodded and smiled as he talked. It was comforting to know my guess was right..... I can't send mail thru my yahoo account... this is why I'm using this email addy.... it's the strangest thing. I hope that isn't a new problem i'll have forever. Anyway... I guess I'm offically one of the gang now. Have a good day..... Pickett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Hey , I'm glad you'll be staying around with us! When I learned about what Dasia had for sure, I was relieved, that it wasn't something much worse. I tend to think the worst when something isn't going right, and when she was failing miserably at every form of growth and development for a year and a half, it was terrifying! Finally, I had a sure answer, and learned that this is generally a childhood disorder and everything would be fine, she would lead a normal life, which is the most important. Some kiddos here do have a fight on their hands, but thank goodness for great doctors! Welcome to the club! wrote: Hey Everyone- We had our council session with the genetic folks at the Shriners hospital today. The doc said from her physical signs, it looks like she's got RSS. They tried to draw blood for testing, but they couldn't find a vein big enough to get any. This was after the stuck her several times... anyway.. I " m happy was there to be the strong one. I stood in the hall with ... yes... i'm a whimp. Anyway.. they want us to come back in 6 months when she's almost a year to try to get some blood for testing. He didn't tell me anything I didn't already know about RSS. I learned everything thru you all.... but I nodded and smiled as he talked. It was comforting to know my guess was right..... I can't send mail thru my yahoo account... this is why I'm using this email addy.... it's the strangest thing. I hope that isn't a new problem i'll have forever. Anyway... I guess I'm offically one of the gang now. Have a good day..... Pickett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 , I know what you are saying about the blood thing. I am the SAME wasy. just had to have blood taken and I HAD to have my mom there with me for my own moral support! LOL. How funny is that!? I was like a big baby saying, " Mom, come on. You have to come with me. " Well, my kids are running and screaming so I need to go intervene. I hope is doing well and I am glad you felt so comfortable whent he doctor was telling you he thought she had RSS. Isn't this site wonderful? You already knew so much. Take care, Jodi R. > > > Hey Everyone- > > We had our council session with the genetic folks at the Shriners > hospital today. The doc said from her physical signs, it looks like > she's got RSS. They tried to draw blood for testing, but they couldn't > find a vein big enough to get any. This was after the stuck her several > times... anyway.. I " m happy was there to be the strong one. I stood > in the hall with ... yes... i'm a whimp. Anyway.. they want us to > come back in 6 months when she's almost a year to try to get some blood > for testing. He didn't tell me anything I didn't already know about RSS. > I learned everything thru you all.... but I nodded and smiled as he > talked. It was comforting to know my guess was right..... > > I can't send mail thru my yahoo account... this is why I'm using this > email addy.... it's the strangest thing. I hope that isn't a new problem > i'll have forever. Anyway... I guess I'm offically one of the gang now. > > Have a good day..... > Pickett > Quote Link to comment Share on other sites More sharing options...
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