Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Hello everyone,probably a strange question but do any RSS kids grow up without any major medical intervention.ie feeding tubes,special diets etc.My Ped seems to think " everything is absolutly fine and Morven will just need growth hormones when she is 5/6 and then everything will be fine " .Does anyone know of any kids who have grown up without any problems? Its just Im reading the posts and getting myself terrified about the future.I know everyone else is coping but it just all seems so scary.Especially as we dont seem to have the expertise her in UK. Thanks Mum to Morven 16mths Might have RSS. Quote Link to comment Share on other sites More sharing options...
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