Abnormal EEGS

[Guest guest]

Hi Jenn,

I am so sorry to hear about 's problem. I'm not sure what to

call it at this point. Jon has had one seizure in his life but it was

associated with a fever which runs in our family. Madison (not RSS)

has a seizure disorder and has had two seizures. I have always

believed them to be hormone related, which can cause seizures. Her

EEG is abnormal and they can tell exactly on the EEG where in the

brain the activity is happening and which side the seizure will be on.

Our neurologist says that many people have abnormal EEGs and yet

never have seizures. There are also many different kinds of seizures,

some that cause damage and many that don't. In Madison's case she

takes Carbatrol twice a day because we really don't want the seizures

to occur. It was explained to us that her seizures can become more

frequent because once the signal goes through the brain, it learns the

path and travels more frequently.

I would think that if a doctor was concerned about that they would

have wanted to see you right away. I have a friend whose son has

seizures and the doctor says that they don't do him any harm because

of their type. It is important to note whether they are occurring

more frequently when she is tired or stressed. I also know that

Madison can not have antihistamines because it lowers her threshold

for seizures.

Lastly, I would not be surprised to find out that the movements she

is experiencing are drug related. Ticks are a side effect to many

medications. I know that my husbands leg jerks several times a night

in bed because of his meds.

I hope that you find a good Peds neuro and get some answers. It

really may be nothing to worry about and if she does need to have

medication it may not mean that she has to take it all her life. We

really have not seen any side effect to Madison's medicine except that

it is also a mood stabilizer which has made the teenage years a breeze

so far! Who says meds don't have good side effect!

Call me if you need anything.

Pattie

P.S. I would also expect that a Neuro would do an MRI to check for

any problems. We had a thin slice MRI which is apparently better to

look for abnormalities.