My appointment at the UWMC

[Guest guest]

I guess I got good news from Dr. Raghu. I am another one of those bird and mold women but I don't have birds. A few years back I had to have a new roof put on. When they took the old one down it was so rotten that you could see dust containing mold and who knows what falling down into my house. I live in an older mobile and the beams where the two pieces of the house are put together form an open space clear across the house. Birds had been nesting in there until it was full. I hope that they cleaned it out but I'm not sure. So I have PF caused from Hypersensitivity Pneumonitis or as Joyce calls it birds, and in my case mold too. I really have to get this place sold. He put me on Cell Cept so that looks like it could put me in the do-nut hole pretty fast. He told me to see a Rheumitologist about my pain. I guess I was lucky. He only took 8 vials of blood. I

have another appointment in April. They didn't send him the results of my Echocardiogram so he wants me to see my cardiologist. I'm do to see him anyhow. He is suppose to be sending a printout with the results of what he found to the doctors and to me. We should get them in a couple of weeks. He also talked me into taking 5mg of Prednisone a day. He wanted 10 but I refused. went with me and we visited while I was doing a lot of waiting. She probably remembers more that I do. I was so exhausted that I slept for hours yesterday with my computer online on my lap. Bob is sick. I think it was too much for him too but he wouldn't like to admit that. Erna, I hope that we can meet in April unless I manage to get moved by then. It looks like a lost cause, though. My doctors sent Dr Raghu everything he needed. I just had a few papers to fill out. Maybe you can get them sent too. When is your appointment?Beverley Joy,71, Birds and mold

1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

From: Verizon Email <bofus6 (AT) verizon (DOT) net>Subject: Re: Re PattiTo: Breathe-Support@ yahoogroups. comDate: Thursday, December 17, 2009, 1:04 PM

We are so lucky to be near a teaching hospital.. There is one right here in Portland OR, about 15 miles from me but they are out of network for my ins.

I am changing from Blue Cross Blue Shield, Med Advantage to Health Net this year and THEY do cover OHSU (Oregon Health Sciences University). However, I think I will stay with Dr Raghu in Seattle now. A 3 hr. drive is worth it to me now.

From: Patti

Sent: Thursday, December 17, 2009 11:46 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Re Patti

Sher,

Happy Holidays to you too and yes I am glad I did go forth and seek another opinion at a teaching hospital. While I still may end up with a diagnosis of IPF at least I will know I have done whatever I could to get an accurate evaluation.

Patti, Indianapolis, IPF 2007

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