Re: Noah Update - Dawna

[Guest guest]

Dawna,

I agree with Deb about the injectease. We haven't started gh yet but Dr. H

gave us the injectease to practice and get used to. Deb explained it

perfectly. Unfortunately, I don't think I'll be able to use it because our

insurance is changing and we will be using Norditropin. The have some kind of

pen device so you don't see the needle - at least they better have something

real good or this will be a big problem in my house.

B

and Kelli

Deb wrote:

Hi Dawna

I am so proud of Noah and you have to tell him so! It's a big step accepting the

needles.

Listen you have to google this: injectease.

It's a devise that you put the needle inside. You prepare the needle the exact

same way but with this " pen " type of devise, you (as mom) don't see the needle

going into the skin. Instead you push a spring loaded button and it kind of

" shoots " the needle into the skin and you press down the plunger on the needle

and it's done.

I did Adam's first few needles as you have been doing. Just the needle straight

into him. I hate needles and I did it because I had to do it, but then I got a

hold of an inject ease and I will never go back. In fact, using the inject ease

made it easier to have Adam do his own needles.

So once you google it, so you can see a picture you can order one. Now it comes

up on a diabetes web site, but no difference, it's what many of us use

religiously.

What I did was print out the info on the devise and took it to my pharmacist. I

asked him to order me one. It cost $40.00 but I didn't care and if it cost

$100.00 I would still pay for it myself, it's that valuable to me!!! Now the one

I have we have had for 5 years now and it's still working fine but I did order

another one as a back up (just in case ours gives up the ghost one night) but

it's been in the cupboard for a year now.

You will wonder how you ever did the needles without it. So look into it, and if

you have any questions, just ask. You know it " might " be covered for you since

Noah is GHD through OHIP.....but really for $40.00??? I never bothered to try to

get my money back I was just glad to have it.

We use humatrope by the way, but I am just glad you have the stuff!!!

OH here's something else to ask. I noticed you said that you went to the

hospital pharmacy to get the GH. Will you have to always go through the London

pharmacy?

You see, down at Sick Kids, they tried to tell me that I *had* to get my GH

through them. Well when I called my insurance company and Eli Lilly (who make

humatrope) they both said " you decide--if your neighbourhood pharmacy is better,

then go for it " . And that's what I did. Now normally my endo gives me a

prescription for 4 months worth of GH but my insurance will only pay for a box

at a time which would have meant multiple trips downtown. So I am really glad I

called around and got it this way. Now I just drive down the street when I need

to pick up more GH. But they were not going to TELL me that at Sick Kids. It

seems that there is some good money to be had when you have this expensive stuff

going through your pharmacy. I guess they get a small percentage of the cost.

All I know is my pharmacist thinks I walk on gold since I brought my GH business

to him. I don't understand how it can be such good business for him, but he does

anything I need help with!!!

Great news Dawna!! Keep in touch!!

Debby

Noah Update

We took Noah to the endo in London (Ontario) last week to get his

Growth Hormones and to learn how to give him the shots. It was a

little bit of a rollar coaster ride. They tried to cancel the apt

about 10 days before because the nurse that was supposed to train us

needed some personal time off. We said no ... find someone else to

train us. The flights were booked and paid for and the time off to

go was booked, as well as the arrangements for someone to look after

our other 3 kids.

We saw the endo and got the prescription to take to the hospital

pharmacy. It's funny it never even occured to me until I was handing

the prescription to the pharmacy lady that we should have asked the

endo to make sure that the GH was what we were expecting ... Humatrop

in a pen. Well it wasn't. We got Saizen in needles. I was quite

upset at first at the thought of needles but calmed a little when the

pharmasist mentioned to my husband that if anything went wrong with

the pen devices ... it would be good to know how to use the needles.

Anyway we got our training and Noah has now had 6 needles ... he has

them 6 days/week. He is taking it very well. We give him a

chocolate candy kiss and he says ouch and it's over. I have given

him the needles twice and it got worse for me each time. I feel so

guilty when I do it, but I'm ok when my hubby does it. I'm not quite

sure how I'm going to handle it when he goes out of town and I have

to do it all by myself ... but I'm sure I will survive!

We went to the ped yesterday and since Noah has been on Periactin,

which started the end of November, he has gained just over 2 pounds!

YA HOO!!!! Not bad considering he hadn't gained a thing for at least

6 months before that.

Another phase of life entered!

Dawna

Matt 13, 11, Kaitlyn 8 and Noah 3 RSS, Periactin, GHT, just

over 22 lbs and 33 1/4 " tall!