Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 Chrissy, I looked at her site last night. What great news they took her off the TPN and she will be going home soon. I am sooo happy to hear that. Hopefully she will stop the retching and stuff soon. I hate it that she needs another surgery, but if that will help her get better...... Keep us updated when you update her site. Jodi R. > > I have updated Maddy's web page > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 I did not see the link to Madison's page in the e-mail. I think I deleted it by accident the last time I checked it. What surgery? What do they think will come of the surgery? I do not want to scare you but, I am going to inform you of something I did not understand and I still may not completely but, I would ask Madison's surgeon about Madison's over all health before the next surgery. TPN is so hard on the liver and I think also the kidneys. Ask how capable at this point in time Madison would be able to flush out bacterial endotoxins if she developed a post operative infection. What would be gained or lost if you waited a little while for her body to rest and build some more strength back. I have not yet read your latest update so, I am discussing this without knowing the whole story. All I know is that she has been through a lot and waiting a couple extra months may give her body time to get stronger to undertake another surgery. I think when our children go through so much and bounce back so well we or at least I may have lost sight of the complications that can happen and that our children need to be in the best health that they can be when going through surgery. Sometimes we have to send them in for surgery when they are not at their strongest but, what choices do we have when all we want is the best for them? J > Chrissy, > > I looked at her site last night. What great news they took her off the > TPN and she will be going home soon. I am sooo happy to hear that. > Hopefully she will stop the retching and stuff soon. I hate it that > she needs another surgery, but if that will help her get better...... > > Keep us updated when you update her site. > > Jodi R. > > > >> >> I have updated Maddy's web page >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2005 Report Share Posted December 17, 2005 , Maddy's website is at www.babyjellybeans.com. You put in her name: Madison and then the password is . Maddy had surgery about two weeks ago to have a central line placed in her neck/chest, and a j-tube placed. She came through it very well. She began j-tube feedings almost right away and worked up to 35cc/hour. The difficulty was in finding the right formula that she could tolerate. She was then taken off TPN and fed solely via j- tube. She went home on Thursday and should be home for Christmas! Now the plan is for her to have the Nissen repaired in early January. Chrissy and Dr. H. were worried about her liver being enlarged so a biopsy will be done then. They are hoping that things will calm down now that she is off the TPN. Maddy is still retching about every 5 minutes, so that has to calm down before Dr. H. will " allow " the Nissen repair. If she is retching, then it is only logical that the Nissen won't work because it will come undone again. But the source could be Reglan. I know that Max used to retch a lot from Reglan and it aggravated his reflux. The GI doctor is trying to find the right combo for Maddy. Meanwhile, she is also hooked up to a foley bag via the g-port so that she is constantly being vented. (We use to use a Farrell Valve for that purpose, but the foley bag is less expensive, I'm sure.) I hope this helps keep you more updated. Check out the website. It is really a great way to keep abreast of all the happenings and goings on. I'm taking Max to see them on Friday. He is so excited! Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hey I need to update her page but her sugar came down again so who knows whats goin on. She sees GI tomorrow so i guess we will see. Glade to hear your back and feeling better. Hug those boys for me Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Chrissy - hey, I read Maddy's web page for New Years. Let me know how her sugars are doing - okay? Keep us posted. Maybe she snuck in a few cookies while you weren't looking ? <grin> I've been keeping Ian away from all sweets myself. And, although we made cookies and he asked for one - as I suspected - he didn't even eat it (thus my reason for letting him have it). Thinking of you always. - H > > Maddy's web page is updated. I just want everyone to know that I read the > quest book all the time and I really apprectiate the thoughts and prayers. > Thanks again for all the support. > The 's family > > _Click here: Madison Jade - Homepage_ > (https://www.babyjellybeans.com/web/do/site/home?ID=43848) > Password is robert > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 chrissy, i hope the dr. h appt went well. it sounds like yo had a great time last night.we all could use a night like that cara mom to jacob chrissynlou@... wrote: I have updated Maddy's web page since she seen Dr. H yesterday Just wanted to say that this weekend I had a night out with my sisters and cousins. We went to a movie and dinner and yes thats right we went to a BAR!!!!! after that we went back to there place and played games untill 2am. It was the best night I have had in years. No kids no men and no worries. I needed that so bad and I know some of you do too, so i wanted to let you know I HIGHLY RECCOMEND A NIGHT OUT FOR ALL!!!!! LOL Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Great to hear that things are working out so she doesn't have to go through too much. As long as the nail polish holds up for you. Hopefully there isn't formula all over your floor! I know how that can be. We have a new house and unfortunately the carpet has been initiated already. Please let us know how the surgery goes. Take care, JR > > Maddy's date for surgery was changed but for the better. So please check it > out at her site. > Chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Oh Chrissy that is just awesome. Thanks for letting us know. I don't manage to get to Maddie's site too often so I appreciate the update!! Deb Madison I haven't had the chance to update but I just wanted to let everyone know that Madison is doing great and eating just like the boys. It's amazing. Hope everyone is well and I will keep up on all the posts. Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Great news! I am so happy she is doing so well. You AND her deserve this after ALL you guys have been through! That Zelnorm must really be working wonders. A miracle drug....just like you said in your email to me. Keeping my fingers crossed it will work for ! ;o) Jodi R. > > I haven't had the chance to update but I just wanted to let everyone know > that Madison is doing great and eating just like the boys. It's amazing. Hope > everyone is well and I will keep up on all the posts. > Chrissy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Madison's web page is updated Quote Link to comment Share on other sites More sharing options...
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