Growth hormone

[Guest guest]

The results from Brocktons GH came back normal. Is this a normal

thing? I guess I was assuming that they wouldn't be normal.

Unfortunately the results from the chromozome testing haven't come

back yet. The person I talked to at the hospital about the GH results

told me that GH has nothing to do with RSS. I AM SO CONFUSED!!! HELP!

Jeanie

[Guest guest]

>Thank you for replying. Its nice to meet you. I was sort of

thinking along the same lines you were about caloric intake. Right

now he is 15lb. Some days it is a struggle to get him to eat

anything other than cookies, and other days he eats great (for him)

I haven't really heard many kids on gh before age two, so i'm a

little worried. we have to go to new york in a couple of months for

a surgery so i'm hoping we can get in to see dr. h and get her

opinion. thanks, lindsey

> Hi Aidan's mom!!

>

> Welcome to the group!! My name is Pat, and I am g-ma to .

> just turned 4 years old in Dec. He currently weighs 28# 10oz

(13kg) and

> measures 35.8 " (91cm) tall.

>

> Actually, it is my understanding that GH (Growth Hormone) does not

rule

> growth in the human body until on or about the age of 2. Caloric

intake

> does. So, most important at this age, is making sure that Aidan is

getting

> enough calories to complete his catch-up growth.

>

> Completion of caloric catch-up growth can be different for each

child. For

> my g-son, , it was determined that his " caloric catch-up "

was

> attained when he stopped growing taller, but continued to gain

weight, for a

> period of several months. His growth curve flat-lined while his

weight curve

> continued to rise.

>

> Children on GHT usually increase their current growth velocity by

1.5 to 2

> times. You need to be sure that Aidan will be able to gain weight

at that

> same increased rate.

>

> Our first Endo, working with old information, didn't believe that

GHT would

> make any real difference for an RSS child. She agreed to a 6-8

month " trial "

> period, but said that she would stop treatment if he didn't show

> " significant " results. This was when was only 15 months of

age. When

> the 8 months would have been up, wouldn't have even been

two. Not a

> " fair " trial, so we chose to work on his " catch-up growth " and

wait until

> later to start him.

>

> How long is Aidan?? How much does he weigh? Do you have any

problems with

> feeding him?? Have you had any problems with blood sugars,

hypoglycemia, or

> relux?? All of these are part of the decision making process.

>

> Hope this helps answer your questions/

>

> Pat (g-ma to , RSS, 4 yrs old, 28# 10.6oz, 35 " , G-Tube, GHT)

>