FW: Glitches & Being a 'Work In Progress' Part 1

[Guest guest]

WARNING…2

long POSTS coming….Ignore/Delete…. all those who hate such numbers!

Hi Air

Family…it’s probably about time I filled you in on my latest

Discoveries AND my lovely new Respiratory Physician…my former Dude has left

Lismore so I had to find a Newbie….my Respiratory Rehab Nurse Specialist

told me of a new guy visiting Lismore every week from Brisbane, who’s set

up a 2nd Lung Clinic here, in the last year & she’d been

getting good reports…soooooo I give him a GO!

WOW…I’ve

hit my JACKPOT with him…he’s been part of the main Brisbane Lung

Transplant Clinic but decided he wanted to go out on his own to be able to

offer a more Holistic approach to Lung Treatment..he’s Chinese Australian…..so

THAT makes sense! Suits me just fine!

I can TALK to

him…he’s had a lot of Big Teaching Hospital experience but

he’s not averse to listening to where I was at in my own journey. He

offers several ‘Pathways of Treatment & Management’…he

talks in terms of OPTIONS & how there is NO one solution & as yet no

successful, PROVEN cure so it depends on which Pathway his Patients decide they

want to take with his guidance & support….From all my research &

reading this Forum I get the impression that he’s really up-to-date with

all the Trials & where it’s all at!

OMG was I

HEARING right!

So…he

reviews everything.. ASKS my reaction to the possibility of Lung Transplant..we

go into HUGE discussion of THAT from a Medical, Cultural, Esoteric, Spiritual

perspective…he RESPECTS my views (I don’t want a Transplant ..if I

had he’d have pushed to get me into evaluation & onto the List ASAP

‘cos I’m coming up to the Cut-off Age in OZ!)… & we move

on to DRUGS…

Same

scenario…….we’ll visit there again…he has some very

different ways of approaching Drug Treatment that MAY allow me to consider them

at a stage down the track. Instead of the ‘naughty school-girl response

(that I’ve had from other Res Phys) I get LISTENED to & a discussion

of various pros & cons & creative ways of approaching the whole thing!

He VALIDATED

my intelligence in researching everything & wasn’t at all

threatened..he SAID he can have much better Management Plans with his

‘switched ON’ patients…..

He also gave

me CREDIT for improved PFT outcomes since I’ve been putting in so much

effort into Exercise & Weight Loss…YES there is a DIRECT CONNECTION

between WEIGHT & PF outcomes. We CAN improve our Lung Function by losing

weight & getting Fitter…..he immediately noticed the Weight Loss when

he was reviewing my PFT’s from the last few years…… He asked

if it was intentional & was really interested in what I’d been doing.

He encouraged me to keep going but carefully given a few more complications

that have arisen (I’ll write about THAT in a separate Post!)

Except for my

GP none of the others had noticed let alone asked me anything!

Importantly,

he told me that it seemed to him that I’d never been fully & properly

evaluated, especially for Connective Tissue Disease (TRUE!) &

he’d have to get me up to Brisbane to do that……PF is a

Metropolitan Disease Management Scenario he said BUT he’d also be able to

see me on his Lismore visits for Support & Encouragement. He was HORRIFIED

that I was only trotting along once a Year to the former bloke!

So he’s

set GOALS & Desired Outcomes & we’re working towards that!

First my new

set of glitches have to be addressed ….on to Part 2 of the Work in

Progress Saga…if you’re still with me! HA!

See you next

POST..

GIO

So

in

Oz

IPF:

Fibrotic NSIP/UIP ??

Reynauds'

May

2007

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