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Re: Droopy eye due to head shape

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My son has the same thing. It was diagnoses as ptosis and will need surgery to correct. It is recommended that you take your child to see an opthamologist to make sure that the eyelid isn't obstructing light coming into the eye and being able to see properly. They can also check the strength of the eye muscles and ensure that the eye socket is correctly growing with head shape. 

My son had a DOC band for 4 months and while that didn't completely correct the ptosis, it definitely made a difference. Our peds referred us to opthamology right away because she was concerned the lid could affect his vision. Overall we are pretty sure my son with always be a little droopy on his right side, but with the surgery to remove a tiny portion of the skin, I'm sure it will look a lot better and can possibly go away as he gets older.

SylviaOn Fri, Mar 18, 2011 at 11:24 AM, Marie <karen_lastovica@...> wrote:

 

I asked CT about my daughter's droopy eye. It's not excessively droopy but compared to the other it is noticeable and it is present with or without the helmet, even the 2 months between helmets. We have been doing PT since 5 weeks old (and still doing some now, though not nearly as much) and the tort is rarely visible in the neck or upper torso. The physical therapist was going to look into what effect tort could have had on her eye for me, but without seeing tort anywhere else is it still tort to blame?

CT said the droopy eye is left over from my daughter's forehead slope, and not so much the tort. As in...if you look at the head from above, the slope from ear to eyebrow is steeper on one side than the other side. The steeper sloped side has the droopier eye. Has anyone else seen this? Did it improve with continued helmet use? We are only two weeks into the current band so we should get some more improvement but will this be a permanent asymmetry to her face? Is there anything else I can do about this? I guess I can see that it is slightly better than when I first noticed the droopy eye but it's still bothersome.

Should we go see an ophthalmologist? I don't think there is an issue with her eyesight now, but if it is fixable with intervention I want to do so now. Would a pediatrician be willing to refer us or will I have to find an ophthalmologist on my own?

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We took our baby to an ophthalmologist for suspected ptosis before we even got the helmet and the doctor said the baby will grow out of the heavy eyelid. We did take the baby back months later because it looked like he was getting a lazy eye but the doctor said that was an optical illusion because the bridge of his nose was still flat. The baby had a helmet on at this time and the ophthalmologist mentioned that the helmets almost always squash one eyelid down and that it will not be permanent. He was right and the baby is perfectly fine now. So although your baby may end up with ptosis or strabismus, it is not caused by helmets. Not DocBands at least.

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My son also had ptosis, but it improved as he got older without intervention. He is now four and it is barely noticeable, if at all. He did not have plagio or tort, so it had nothing to do with these conditions. My daughter had both tort and plagio, but did not have ptosis. Hope this helps.From: Sylvia McCue <sylvia.mccue@...>Plagiocephaly Sent: Fri, March 18, 2011 4:41:01 PMSubject: Re: Droopy eye due to head shape

My son has the same thing. It was diagnoses as ptosis and will need surgery to correct. It is recommended that you take your child to see an opthamologist to make sure that the eyelid isn't obstructing light coming into the eye and being able to see properly. They can also check the strength of the eye muscles and ensure that the eye socket is correctly growing with head shape.

My son had a DOC band for 4 months and while that didn't completely correct the ptosis, it definitely made a difference. Our peds referred us to opthamology right away because she was concerned the lid could affect his vision. Overall we are pretty sure my son with always be a little droopy on his right side, but with the surgery to remove a tiny portion of the skin, I'm sure it will look a lot better and can possibly go away as he gets older.

SylviaOn Fri, Mar 18, 2011 at 11:24 AM, Marie <karen_lastovica@...> wrote:

I asked CT about my daughter's droopy eye. It's not excessively droopy but compared to the other it is noticeable and it is present with or without the helmet, even the 2 months between helmets. We have been doing PT since 5 weeks old (and still doing some now, though not nearly as much) and the tort is rarely visible in the neck or upper torso. The physical therapist was going to look into what effect tort could have had on her eye for me, but without seeing tort anywhere else is it still tort to blame?

CT said the droopy eye is left over from my daughter's forehead slope, and not so much the tort. As in...if you look at the head from above, the slope from ear to eyebrow is steeper on one side than the other side. The steeper sloped side has the droopier eye. Has anyone else seen this? Did it improve with continued helmet use? We are only two weeks into the current band so we should get some more improvement but will this be a permanent asymmetry to her face? Is there anything else I can do about this? I guess I can see that it is slightly better than when I first noticed the droopy eye but it's still bothersome.

Should we go see an ophthalmologist? I don't think there is an issue with her eyesight now, but if it is fixable with intervention I want to do so now. Would a pediatrician be willing to refer us or will I have to find an ophthalmologist on my own?

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Thanks for the responses. I'll talk to our pediatrician about a referral to the

ophthalmologist and time frame next week. My daughter had a fight with the

bathtub two nights ago and now the droopy eye is a bit puffy and bruised so I

suspect that the eye will need to be healed before seeing the ophthalmologist

for a proper evaluation.

CT did reassure me that the squished eye from the helmet is not permanent and I

saw that with the last helmet also. The squished look went away within a week of

finishing the helmet.

>

> We took our baby to an ophthalmologist for suspected ptosis before we even got

the helmet and the doctor said the baby will grow out of the heavy eyelid. We

did take the baby back months later because it looked like he was getting a lazy

eye but the doctor said that was an optical illusion because the bridge of his

nose was still flat. The baby had a helmet on at this time and the

ophthalmologist mentioned that the helmets almost always squash one eyelid down

and that it will not be permanent. He was right and the baby is perfectly fine

now. So although your baby may end up with ptosis or strabismus, it is not

caused by helmets. Not DocBands at least.

>

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