GERD HElp please

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Welcome to the NEW Members!

Hi friends this is laura.

I wen to see the doctor in Houston and he thinks I need a transplant.

Now, because I dont have the money for the deposit to start the evaluation I will have to start doing a fundraising. I dont know how, but I will find out.

The doctor mentioned to me that the acid reflux is damaging my lungs too. I iddnt know that, i read about it here in your messages but I take omeprazole and i dont feel heartburn. The doctor told me that even if i dont feel heartburn the acid reflux is damaging my lungs. I was shocked! He told me he could see in my Ct Scans the damage in my esophagus.

please any of you that have GERD or acid reflux disease, let me know what treatment are you on, I need to find a good gastro doctor to take care of this.

Also, if any of you has had fibrosis for a long time, tell me what meds are you on, please, i need to speak with my doctors because I cant beleive there is nothing else to do other than a transplant.

HELP!!!!!!

From: Soulliere <johnsbatik (AT) yahoo (DOT) com>Subject: Re: Re: new to the groupTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 2, 2009, 1:34 PM

Thanks for that bruce....... .....I don't know what stage I'm in been several years since dx..I only know I need o2 when I'm mobile...... ..4 usually up 6 6 on inclines..usually 0 to 2 when rested

Since I'm partially paralyzed I get tangled up in the hoses......big mess

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http:// us.i1.yimg. com/us.yimg. com/i/mesg/ tsmileys2/ 50.gif"></FONT>

From: Bruce <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Wed, December 2, 2009 1:21:33 PMSubject: Re: new to the group

Stages still wouldn't tell you because the diseases are sounpredictable. Plus we'd need different for all the different forms. Ithink just live the best you can and take nothing for granted at all.Because you could spend forever in whatever you'd call stage 2 or youcould go straight from stage 1 to the end. Biggest thing is avoidingcomplications so that you do make sure you go the complete path.Now, personally, I do sort of have my own mental concept and have usedit in planning my future.First, I think of how I've been since diagnosis. I was immediately onoxygen so no pre-oxygen period for me. Low to moderate oxygen and ableto be pretty functional. 0-5 lpm depending on what I'm doing.Next, I think of the period in which my oxygen needs are considerablyhigher and I'm requiring 6-10 lpm when active. At that point I picturemyself far less able to do certain things but still

able to do many withoxygen.Then, I think of the period of 10 lpm and more when I've lost mostmobility. I try to surround myself at home with my favorite things. Ibring in hospice at the right time as the oxygen requirements increaseand their effectiveness decrease.But I have no idea how long any stage or if I'll see them all. I've justthought ahead of how I want to be at the various levels of the diseaseI've seen many reach.There are studies underway trying to find the keys to predictingprogression but thats still research. Meanwhile we all need to live. Youwere an excellent example with your trip. I personally missed a lot ofstages by not being diagnosed when I should have been. My FVC was 44%and my DLCO was 38% the first time either was ever measured and I wasput on oxygen that same day.>>> Subject: Re: new to the group> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, December 2, 2009, 8:26 AM>>>

Â>>>>>>> Patti,> Welcome to Breathe Support!! It's lousy that you have reason tolook for a group like this but I hope that you find it as helpfulas I have over the last 3 and a half years.> It sounds like you are doing all the right stuff. I'm so happy to hearyou are going to the University of Chicago. They have a great reputationand I'm certain you will learn a ton regarding your own situation andhow to approach the new realities.> Take things one step at a time and please don't panic about what youread on the internet. I was diagnosed 3 and a half years ago and I'm inEXACTLY the same condition I was at that time. I've been stable for 3and a half years. We have a member who is I think ten or twelve yearsout from diagnosis and is stable. So the moral of the story is, there isno expiration date tatooed on your fanny!> Please

continue to read and ask whatever questions you have. We'rehere to help!>> Â> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> Â> Â>>>>>>> From: emma0850 napa73 (AT) comcast (DOT) net>> To: Breathe-Support@ yahoogroups. com> Sent: Tue, December 1, 2009 10:35:47 PM> Subject: new to the group>> Â>> Hello everyone.... .I just found this group today and I couldn't behappier to find all of you! My name is Patti.....I am 59 yrs old and wastold three years ago that I had pulmonary fibrosis in my lung bases. Iwent through the entire ordeal of test after test and was told it was somild that they thought it may have been there for years. I continued todo all the follow up tests each year and until now it had remainedunchanged. This past month the tests showed

it has now progressed to theentire lung area. My PFT had dropped from 79 to 60 in two years. I stillfeel just fine but the doctor says it is time for Prednisone. I have anappt in Chicago this month with a new doctor. I have read volumes ofinformation on the internet and most of the info I read just scares me.They make it sound like a death sentence. Again I am so happy to findthis group!!>