Mama Sher

[Guest guest]



Yes Bob, I will check it out. We get used to doing our research .

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Re: Re: new to the groupTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 2, 2009, 12:48 PM

Being new to this IPF diagnosis I am wondering how many of you handle certain conditions:

---do you avoid the cold weather?

---do you avoid sick people (hard for me as I have 3 little grandsons and they always have something)?

---do you take cough medication every day to help with the cough and does it help?

---does exercise seem to help?

---anyone have any luck with herbs, tea or vitamins?

Patti, 59, Indianapolis, IPF 2007

[Guest guest]

Mama Sher,

I know you must be dreading starting the Prednisone & you know I'd be feeling exactly the same....HOWEVER...Cellular NSIP is the form of NSIP that most likely WILL respond to the dreaded Pred. Fibrotic NSIP has a patchy record with Steroids....but not the Cellular type.

So here's hoping you can take it safely. I'm sure you will be monitored well with Dr R.....time to place your trust in his knowledge & expertise, as you yourself say!

I know what you mean about the expense of travelling to these appointments..my Piggy Bank is well & truly drained after last year & now I'm facing lots more trips to Brisbane for this new round of problems.

Keep heart, you wonderful woman, You!

.....GIO

> > > From: Sher bofus6 (AT) verizon (DOT) net>> Subject: Re: (unknown)> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, January 27, 2010, 10:57 AM> > > > > BJ.... I'm letting my hair grow naturally too. White or whatever color shows itself!> I'm tired of the constant coloring. I gave up perms years ago. My 'fried and dye' routine I called it. Actually, it doesn't look too bad. I'm not totally white but oh well if I turn a 'white-head' . > Your hair is lovely BJ and I know meds makes a huge difference in the quality of our hair.> It is what it is, huh friend!> MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.> Don't fret about tomorrow, God is already there!> > > > From: Beverley Joy > Sent: Tuesday, January 26, 2010 9:37 PM> To: Breathe-Support@ yahoogroups. com > Subject: Re: (unknown)> > > I like my white hair. I earned everyone of them and coloring is too much anymore.> > Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren' s,Fibromyalgia Idaho> > - > > > > > > > ------------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00> > > > > > > > --------------------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00>

[Guest guest]

....yes, I will need to place myself in his hands now and leave the worry to God. I need to practice more what I say...

I do understand that cellular NSIP is often responsive to prednisone. I've taken it just two evenings and already my 'gut' is reacting.

I can't tell you how sad I feel when I think of you and your new problems. I know you are facing all of it with your usual silliness and optimism! We all balance a different number of plates don't we.

Do take care....from one "wonderful woman" to another!

MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there!

From: grangi49

Sent: Sunday, January 31, 2010 2:49 PM

To: Breathe-Support

Subject: Mama Sher

Mama Sher,

I know you must be dreading starting the Prednisone & you know I'd be feeling exactly the same....HOWEVER...Cellular NSIP is the form of NSIP that most likely WILL respond to the dreaded Pred. Fibrotic NSIP has a patchy record with Steroids....but not the Cellular type.

So here's hoping you can take it safely. I'm sure you will be monitored well with Dr R.....time to place your trust in his knowledge & expertise, as you yourself say!

I know what you mean about the expense of travelling to these appointments..my Piggy Bank is well & truly drained after last year & now I'm facing lots more trips to Brisbane for this new round of problems.

Keep heart, you wonderful woman, You!

.....GIO

> > > From: Sher bofus6 (AT) verizon (DOT) net>> Subject: Re: (unknown)> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, January 27, 2010, 10:57 AM> > > > > BJ.... I'm letting my hair grow naturally too. White or whatever color shows itself!> I'm tired of the constant coloring. I gave up perms years ago. My 'fried and dye' routine I called it. Actually, it doesn't look too bad. I'm not totally white but oh well if I turn a 'white-head' . > Your hair is lovely BJ and I know meds makes a huge difference in the quality of our hair.> It is what it is, huh friend!> MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.> Don't fret about tomorrow, God is already there!> > > > From: Beverley Joy > Sent: Tuesday, January 26, 2010 9:37 PM> To: Breathe-Support@ yahoogroups. com > Subject: Re: (unknown)> > > I like my white hair. I earned everyone of them and coloring is too much anymore.> > Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren' s,Fibromyalgia Idaho> > - > > > > > > > ------------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00> > > > > > > > --------------------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00>

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2659 - Release Date: 01/30/10 22:39:00

[Guest guest]

Oh DEAR Mama..you made me laugh when I saw the bit about 'Practising our own Advice'...AMEN to that!

Yep, I'm somewhat Gobsmacked about the latest developments for me. I've been thinking back to my childhood a lot, since this is a congenital condition. I remember stuff that now I wonder if they were part of the Heart problem. I wish I could ask my parents but they're not here any more. My Dad had a Congenital Heart Condition of some sort but never said exactly WHAT..just that nothing could be done about it!

I DO remember people always commenting on how Pale I was & my Mum always pinching my cheeks before we went to see relatives.....the Nuns at my school made me come to the Convent Kitchen to drink a Double Dose of Free School Milk everyday (YUK I Hated that... the Flavoured Milk was always finished by then & I had to drink a Bottle of Plain Warmish Milk.....strangely I still love Milk inspite of that...but Icy Cold)

AS an Adult I've always worn Rouge & Lipstick 'cos people STILL comment on it if I don't!

Then there was the hilarious way I'd dive off the Starting Blocks in Swimming Carnivals...Keen as Mustard......be right out front in the Race for about a dozen Strokes & then just Stop...OUT OF OOMPH.

Same with Running... I could Never catch kids playing Chasies unless I was really sneaky & do Double Backs & go around behind where they'd run!

No one ever thought to check that something may've been wrong!

Thanks goodness really ... the Heart Surgery then would've been horrendous!

Now it seems it may well be too late to fix the problem for me too, since I've started a Right to Left Shunt, which means I've developed PH......shutting the Hole will just cause faster PH deterioration in the Right Ventricle, from what Dr Kim told me. The Hole acts as a pressure Valve. Unfortunately it means that I face rather high risks of developing all sorts of other problems related to the 'Dirty, de-oxygenated' Blood mixing with the clean/oxygenated stuff & circulating freely around my whole body.

I'll find out for sure on Monday 8th Feb when I go up to see both the Lung & Heart Specialists in Brisbane.

I HATE waiting!

Lotsa,

> > > > > > From: Sher bofus6 (AT) verizon (DOT) net>> > Subject: Re: (unknown)> > To: Breathe-Support@ yahoogroups. com> > Date: Wednesday, January 27, 2010, 10:57 AM> > > > > > > > > > BJ.... I'm letting my hair grow naturally too. White or whatever color shows itself!> > I'm tired of the constant coloring. I gave up perms years ago. My 'fried and dye' routine I called it. Actually, it doesn't look too bad. I'm not totally white but oh well if I turn a 'white-head' . > > Your hair is lovely BJ and I know meds makes a huge difference in the quality of our hair.> > It is what it is, huh friend!> > MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.> > Don't fret about tomorrow, God is already there!> > > > > > > > From: Beverley Joy > > Sent: Tuesday, January 26, 2010 9:37 PM> > To: Breathe-Support@ yahoogroups. com > > Subject: Re: (unknown)> > > > > > I like my white hair. I earned everyone of them and coloring is too much anymore.> > > > Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren' s,Fibromyalgia Idaho> > > > - > > > > > > > > > > > > > > ------------------------------------------------------------------------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - www.avg.com > > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00> > > > > > > > > > > > > > > > --------------------------------------------------------------------------------> > > > > > > > No virus found in this incoming message.> > Checked by AVG - www.avg.com > > Version: 9.0.733 / Virus Database: 271.1.1/2658 - Release Date: 01/30/10 11:35:00> >> > > > > > > > > > > > > --------------------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 9.0.733 / Virus Database: 271.1.1/2659 - Release Date: 01/30/10 22:39:00>