Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 I did contact Dr. Raghu's nurse. He gave me his card with his number on it. She said that I could stop the Prednisone and just work up to two of the CellCept. Like you I agreed to try to take it for three months but I just couldn't do it. My kidneys are worse now that they were when I went back on the Pred. I hope you can still get a good discount at the Inn. I hope I don't have to go there again. I'd like to get my CC card paid down some. I'll still have to put some of the expensive meds on it.Beverley Joy,71,PF 1-09, Chronic HP, birds and mold 12-09,Sjogren's,Fibromyalgia IdahoSubject: Re: (unknown)To: Breathe-Support Date: Sunday, January 31, 2010, 12:16 PM BJ.... in my opinion, your pulmodude telling you he didn't think he "could get him" is so lame! Dr's have the inside track when they call. (usually). I am only being compliant with Dr. Raghu...he knows my feelings about it and we talked about it. So I'll give it 3 months. To do nothing can't be an option for me... even if I am dead set (whoops, wrong word!) against prednisone, I feel inclined to use it if Raghu Rxs when he knows I don't like taking it. BJ... here is the email for /Carolyn. Send to them both. (send to one, cc the other). cspada@... .edu or jmhayes@... n.edu they are both Dr. Raghu's assistant. They can take a msg to him and get back to you. He should know you are not taking the prednisone as Rx. I'm sure sorry your Diabetes flared up and then kidney trouble. Raghu can help you with the nasty side effects if he knows. I can't see Raghu UNHAPPY about a patient. He is apt to be surprised if you aren't on anything, though. It seems it's hell if we do and hell if we don't. (Like prednisone for me). I've been on cpap for a number of years and didn't suspect that could be the cause of the SOB that's been getting worse for quite a while. I naturally thought I am "being treated" for apnea.... I'm not sure but I think Rich was told the summer rate would be $92. But that would be before any discounts, senior or otherwise. I'm going to call tomorrow and find out for sure. We'll be going again in May. I'll let you know. MamaSher; IPF 2006; Cellular NSIP, PH, 2009, OR,.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
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