Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 I would do the ketostrips before going to the doc. Sometimes its nice to go to the doc with " proof " so you have some ammunition to fight with. Keep us posted. - H > >Hi Jodie, > > No I dont have ketostrips.I have mentioned this to the Docs several > times but they seem to think Im a bit paranoid.She isnt a sicky > baby.She did have reflux until she was about 7mths but she is sick > very rarely now. > I have been smelling them for months.She seems to eat a reasonable > amount(I think) but is obviously still quite small.Think I will take > her to the Docs again.They have never heard of RSS although we still > dont have a diagnosis yet. > > Thanb > ks for the advice > > Have you tested Morven for ketones? Do you have ketostrips? Her > blood sugar levels can > > be normal and still have large ketones. If she does have them, > then she is not getting > > enough food/calories. Her brain is taking what it needs at the > cost of everything else. > > Our kids do not have enough body fat which is what is then used to > burn for fuel, so the > > body starts to burn muscle for protein and fuel. That is why you > smell the ketones. > > > > Eventually her blood sugar levels will fall. She will become > dehydrated, too. It leads to a > > nasty cycle. Acidosis sets in and she could start to vomit and > not be able to stop. I'm not > > saying this to alarm you, but to inform you. Morven must have > more calories and build up > > those stores of glycogen. > > > > By the way, if she IS spilling moderate to large ketones, then she > needs to be in the > > hospital to work out the imbalance. If you email me at magicrss > @hotmail.com, then I can > > give you the whole routine. It is not a one day stay for > rehydration. It requires several > > days, even more than a week. Trust me on this one. I'm an > expert at this after 17 years > > of experience. > > > > Jodi Z > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 Hi... I really don't know much about it. I am wondering how you checked for ketones when you had an infant. Also wondering if they are ever there when there is not a known low reading. He has had ketones both times he was in the hospital but never at home using the strips. I just wonder if I am doing it right...is there a better time to check and so forth? thanks deb...mom to four fab adopted kiddos... (07.04.96-05.26.03) with Mitochondrial Encephalomyopathy, Complex I and IV, I+III, II+III...deb...G, 6, with High Functioning Autism, Hypoglycemia, Precocious Puberty and possible Berardinelli-Seip syndrome...B, 4, with VERY mild Cerebral Palsy...and True (born 01.18.05) with Cerebral Palsy, Myoclonus, Ulcers, Hypoglycemia, undiagnosed GI problems plus severe food allergies, Plagiocephaly and Dysphagia....Married for 12 years to F--one swell guy! _www.caringbridge.org/tn/wells/_ (http://www.caringbridge.org/tn/wells/) Quote Link to comment Share on other sites More sharing options...
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