Pseudoepiphyses of the metacarpals - more info

[Guest guest]

Hi,

If anyone saw my post about 5 wks ago wondering if there were anyone

whose child had pseudoepiphysis of the metacarpals it is apparently

not common but more common in RSS than SGA (isn't Emerence just so

lucky? think she should buy a lottery ticket LOL!?). It is the most

common in any of the forms of primordial dwarfism of which RSS is

one. So SGA is just off on its own island for this funky thing I

guess....

Oh, p of the m is apparently funny shaped growth plates. So here is

the question, what happens if we do GH and are zall growth plates in

her body funny?

Her geneticist is trying to pin down the best guy at Children's

Hospital to discuss his findings but she thinks we are looking at

antoher full skeletal survey (she had one from when she was about 1

year old). Her bone age has progressed and now appears to be age

appropriate. Not sure if that is good or not...

Always something...

megan, mom to Emerence NOT gaining or growing, 33 mo 22lb and 32 "

(these stats ahven't really changed in a long time...)