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Re: niece with rss

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Hi there,

Hopefully your niece has internet access at college as there is an

Adult RSS support group here on Yahoo called " RSS People " . I think

they are quite active. They are truly wonderful women and will give

your neice tons and tons of support.

Leah.

>

> my 18 year old niece has rss. I just recently found this out. My

> sister never told me the name of the syndrome. She is going through

> some very difficult times right now being in college and being so

> small. Is there anyone out there that can help her understand that

> she is not alone? She doesn't have a support group and desperately

> needs one. Any advice on how to help her raise her self esteem and

> feel good about herself? She is a great girl, but does not feel

good

> about herself right now. I think reality is sinking in and she

> feels " different " . I would appreciate any helpful advice!

>

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Hi,

Where is she? One of hte adults might live near her. Also, I think

the adults are coming to this years convention in Chicago in July...

>

> my 18 year old niece has rss. I just recently found this out. My

> sister never told me the name of the syndrome. She is going through

> some very difficult times right now being in college and being so

> small. Is there anyone out there that can help her understand that

> she is not alone? She doesn't have a support group and desperately

> needs one. Any advice on how to help her raise her self esteem and

> feel good about herself? She is a great girl, but does not feel

good

> about herself right now. I think reality is sinking in and she

> feels " different " . I would appreciate any helpful advice!

>

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I hope you were able to get a copy of the latest MAGIC Newsletter! In

it, several adult RSS women shared their wisdom and insights about

what helped them not only survive, but THRIVE as adults. I think

your niece will really benefit from reading this...And, of course,

she should join www.yahoogroups.com/groups/RSS-People to share

experiences with other RSS adults.

And, if your niece comes to Convention next summer, Saturday will

include a wonderful panel discussion with kids/young adults with

RSS. Past presentations literally wowed the audience and moved many

of us to tears. Tears of pride and admiration. Not pity. I have

met RSS women who are lawyers, newlyweds, therapists, teachers and

salespeople! Your niece has a bright future ahead of her.

Katy

> >

> > my 18 year old niece has rss. I just recently found this out.

My

> > sister never told me the name of the syndrome. She is going

through

> > some very difficult times right now being in college and being so

> > small. Is there anyone out there that can help her understand

that

> > she is not alone? She doesn't have a support group and

desperately

> > needs one. Any advice on how to help her raise her self esteem

and

> > feel good about herself? She is a great girl, but does not feel

> good

> > about herself right now. I think reality is sinking in and she

> > feels " different " . I would appreciate any helpful advice!

> >

>

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