If you had one thing to say...

[Guest guest]

Hi all,

I am a 9 year survivor of IPF. Yes, I said survivor since I am still surviving

even though it will eventually get me. I also have Sarcoidosis and Pulmonary

Hypertension. But I am not here today to write about me.

I am in the midst of trying to write a " handout " on how to deal with someone who

has a terminal illness. But I want this info to come from people who have are

terminally ill or are a caregiver of one who is terminally ill. I want to

compile ideas and thoughts of us " down in the trenches " who are directly dealing

with this issue of being a terminally ill person.

I would like those of you out there to send to me a few ideas of what to say/do

to/for a terminally ill person.

In other words, " If I had one thing to say to a person about my being termially

ill it would be ...

EXAMPLE: " If I had one thing to say to a person about my being termially ill it

would be ... please don't ignore me..I'm STILL HERE!

I would appreciate any thoughts you might have.

I am not sure what I will do with this compilation yet but feel that someone

needs to tell people about being with a terminally ill person from OUR

perspective.

Thanks a lot,

Jim

IPF & Sarcoidosis October 2000

Pulmonary Hypertension 2007