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Too old at 9 months corrected??!

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I live in Nashville TN and just saw Dr. at Vanderbilt Childrens Hospital.

(We don't have a docband or starband office here.) made us get a cat scan

before we could even see him --which we did and there were no premature fusions.

But now at our office visit, he told my husband and me that my son was too old

to get a helmet. My son is 1yr actual and 9months corrected. I was pretty

shocked. (Most people, including med professionals, said that as long as we had

a Rx and a clean CT scan, he'd helmet in even the mildest of cases --and I

believe our case, which is plagio, is closer to the moderate rating)

Anyway, he gave two reasons for refusing us, 1) that my son was old enough to

keep taking the helmet off, and 2)that the studies he relies on and his own

experince is that the skull plates have done their majority of growing during

that first year of life, so the helmet really won't impact its shape to any

significant degree. I asked if we could still do it knowing and being okay with

whatever minimal changes we could get, and he pretty much just said that he

won't do it for us. Anyone have any conversations like this where you went?

Did you have to conjole the person into agreeing to do it? Did any of you have

problems with your child taking the helmet off all the time?

We do have a Hangar office here in Nashville so they'll probably be our next

step. I'm just so shocked over the Vandy appointment that I'm still trying to

get my bearings. Thanks for any feedback.

Carla

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