GHT

[Guest guest]

Well our endo called today to let us know that he had been doing some

research with regards to gh and RSS, he has tried to contact Dr.H and

has not had any luck and he doesn't see any reason to wait to start

Noah on GHT. We had told him when he had called with the testing

results that we wanted to wait until Noah gained some weight so that

he was 15% weight to height. Does anyone know if it is just in the

letter from Dr. H about the weight or is there an article that

specifically addresses the weight issue that I can fax or send him a

copy to help explain it. Our Ped wants us to go to Toronto where the

endos have dealt with RSS and get their opinions, but warned us that

they probably wouldn't look at the test results from London and would

want to do their own testing. Does the GH improve appetites too?

H ... I think that you and I are in about the same place as far as

our boys are concerned (except we haven't had any hospital stays yet,

touch wood) ... plateau for a long time with the weight etc. Our ped

mentioned to us about the possibility of a g tube if the periactin

doesn't help (and for some reason he didn't hold much faith in the

periactin or so it seemed to me). Like Jodi said though (I think

I've been saying that a bit) you are doing a great job and sometimes

we have to give it a little time.

We are doing pretty good with the Periactin so far. Only 4 days in

and here's hoping.

Dawna

Matt 13, 11, Kaitlyn 8, Noah 3 RSS, Periactin, 19 lbs 8.7 ounces

You know I just can't wrap my lips around the Canadian name for

Periatin ...