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A quick update before final exam

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Hello to all!

I've been a hermit of late due to a clinical Pastoral Education

class I've been taking through the University of Virginia. It's

been intense and time consuming, but I will be finished on Tuesday

of next week.

Connor is doing great! He's gaining weight and growing with the g-

tube and ght combo. Presently I'm at war with my pharmacy group

becuase they want to limit where we can get Connor's drug. The

place that we get it from can bill our insurance and Medicaid to

cover the hefty co-pay. Of course, the new pharmacy can't. So, we

are dueling by fax and phone.

I have one concern to bring up about Connor. He snores like a

charging Rhino. Even when his head is elevated, he snores. Is this

due to the shape of the RSS child's mouth or is it the

adenoid/tonsil issue. I haven't observed any apnea with Connor but

I'm wondering if this is something I need to pursue. What is the

rational for removing the Adnoids and tonsils in the RSS child?

I promise after finals I will returns all the " getting to know you "

emails that were sent my way. I'm not being anti-social, I'm just

trying to get my graduate credit so I can move into a different work

field.

Grace and Peace to all,

Mom to Graham 8 ADD; Cameron 5; Connor RSS Kyphosis G-Tube and

Nutropin A.Q. Present wt 28 lbs. 35 inches tall and growing!!!

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