Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 I'm sorry your grandson is having such difficulty. I'm not a doctor, but I agree, I'd want him to see a specialist if he were my child. There are spinal deformities that can cause torticollis and, in turn, plagiocephaly. These deformities can also be genetic, so I think your concerns are very reasonable. Having problems with motor control (not being able to move hands properly for age), can be a sign of a neurological problem, too. I would press for him to be brought to a neurosurgeon to have his upper spine looked at and have imaging done. If that doesn't lead anywhere, I'd then take him to a neurologist for the motor problem to be analyzed. Best of luck! > > His head is really big and odd shaped. The parents said it was from laying him on his head too much, not rotating him enough. They didn't say it was Torticollis, but I was able to call the rehab place baby is going to and found out. My kids may not know the name of it either. But was baffles me is, they said the head went real flat and then got a big buldge on it. The buldge is half the size of the head which makes his head 1 1/2 tims bigger than it was originally. Then, the doc says laying him on that side of the head too long caused a spinal problem which causes him not to be able to open his fists. There's got to be more to this than Torticollis. > > I won't be near a computer until Thursday, so call me if anyone wants to. > > My kids have spinal deformities, so I was wondering if it was genetic. > Another reason that I was worried, is the mommy, not my daughter, came from a very abusive home and was given up for adoption. She throws her poor cat across the room. I don't know why my son puts up with it. I also don't like the way she talks to my 13 year old. Anyway, I'm glad I found the diagnosis today, but is that the only one. They haven't taken my grandson to a neurologist or spinal doc since their pediatrician said they didn't have to. If it were me, he'd have seen the top specialists already. I get to the bottom of things. > > Charlene 509-599-9966 > Quote Link to comment Share on other sites More sharing options...
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