Re: Info on blood sugar tests / hypoglycaemia in a 4 year old

[Guest guest]

I don't have any answers for you but I am also interested in the responses. I

have a 22 month old daughter with RSS and she was tested as an infant and at

about 13 months for blood sugar levels. She hasn't had any testing since. I

raised this with our geneticist who said that if hypo wasn't present as an

infant then it would be very rare for it to develop later on. We are still

waiting for our appointment with an endo so I will raise this with her

(hopefully in the next week or two!!)

By the way I haven't noticed Sydney's last two ear infections either. Sydney

rarely cries and has a very high pain tolerance so she wasn't pulling at her ear

or anything. I also felt horrible! Her twin sister (non RSS) is even more

prone to ear infections and I know within hours because Leah is pulling at her

ear and very upset.

Beth

Info on blood sugar tests / hypoglycaemia in a 4 year

old

Hi everyone,

It's been a while since I posted, however I do try to keep up with

your posts, and I hope that everyone is keeping as well as they can.

My thoughts go out to those of you who are currently having a tough

time.

I realise there has been quite a few posts recently with regards to

blood sugar levels, however I wonder if anyone has any advice or

information on this subject for 4 year olds.

I had to take my daughter, , who is nearly 4 and has RSS, to A & E

today as she collapsed at home from what appears to be a

hypoglycaemic episode. She has not been well for a few days - she has

the onset of a cough, and was sick once yesterday and had a couple of

bouts of diarrhea plus a temp of 39.7 degrees, but on the whole was

rallying quite well, and responding to Calpol (not sure what you use

in the US - it's to regulate temperature) and her asthma inhalers.

She seemed really well this morning and I thought she had turned a

corner, but she refused her morning milk ( she has Nutrini Hi-

Energy). At 10.30am whilst watching TV she called through 'I'm hungry

mummy' (most unlike her!) and I went through to see what she wanted

to eat and she was flaked out on the floor, really really sweaty and

her eyes were rolled back in her head. But her temp was fine. I

thought it must be blood sugars (thank you to everyone who has posted

about this, as that's how I recognised the symptoms) and managed to

get her to drink some Ribena and then spoonfed her some cereal and

milk, although she was really floppy and her head was lolling around.

Then, after about 15 minutes of laying in my arms, she looked up and

started to chat about the telly, as if nothing had happened.

I took her to A & E, where a urine test showed that she has glucose in

her urine, and the doc said that she had most certainly experienced a

hypo. They also found that she had an ear infection (don't I feel

guilty for not noticing) and is starting on antibitotics for that.

They have written to her Endo requesting that they run tests for

diabetes and blood sugar levels.

I guess I wanted to ask what tests are likely to be carried out, and

also to ask isn;t it strange that should suddenly start to be

symptomatic of hypoglycaemia at this stage? I was always worried

about it as an infant (and therefore fed her every 4 hours until she

was 18 months including during the night) but she never displayed any

symptoms then. We also tested her blood sugars with a diabetic home-

test kit (on suggestion of our Endo) twice as an infant/toddler, but

all readings were within normal parameters.

Does anyone else have any experience of getting hypoglycaemia later

rather than as an infant?

Are there any medical papers which could be recommended to read about

it (I am a member of MAGIC, so could download them).

I am sorry for such a long post, however I really wanted to ask

people's advice, and I hope that you will all understand more about

what we are going through as it appears to be quite common for RSS

kids.

Thanks in advance for your help,

Love Rae, mum to , nearly 4, 25lbs10oz, 92cm, Movicol (for

constipation), asthma inhalers, no tube, no gh, not yet anyway

[Guest guest]

Hi Rae,

My g-son, , turned 4 this last Dec.

As far as the ear infection goes, don't feel too bad. 's had several

infections with no signs whatsoever! It usually started out as a cold, with

nasal congestion and a cough. We'd take him in to see the Ped, worried about

his lungs (he is also asthmatic). The Ped would check his ears, and lo and

behold, there'd be an infection! However, he had tubes placed last Jan and

has done really well. A couple of infections since but they've been easily

handled.

As an infant Bran went long periods where he would refuse to eat. He had no

problems with sleeping all the night through without a bottle, and although

he would sweat some (the Ped told us this was part of his syndrome), he

never really showed any other signs of hypo-g. Even when his g-tube was

placed, and his sugars were checked regularly, he didn't seem to have the

same hypo-g problems he has now at age 4.

For at least the last year, Bran's BS will drop 30-40 points if he's off

feeds for an hour. When he's overweight, as he is now, or sick, the problem

is much worse. He seems to drop faster, and sometimes without known cause.

Just yesterday, Bran ate a VERY good dinner (3 fish sticks, 8 bites of

potato, 2 bites of green beans, a couple spoons of pudding), all while on

his normal continuous feeds, and for no reason whatsoever, his BS dropped

into low 70s about an hour after dinner! I checked because his behavior

suddenly turned very aggressive, angry, hostile, and then he just seemed to

wilt, and was too tired to play! It was definitely baffling!!

We, too, are looking for answers to this bizarre problem, but I have to say

that Bran is one of those kids who's problems with hypo-g have gotten much

worse as he's gotten older.

Pat (g-ma to , RSS, 4yrs 1m old, 28# 10oz, 35 " , G-tube, GHT)

[Guest guest]

Emerence did not show any signs of hypog until this past summer (she

was 2.5) and had to be hospitalized for 2 days in August after

gettting hand/foot/mouth and refusing to eat. We got a glucometer

and we have to watch her. However she did gain weight and we

haven't had much trouble since (except when she gets sick).

>

> Hi everyone,

>

> It's been a while since I posted, however I do try to keep up with

> your posts, and I hope that everyone is keeping as well as they

can.

> My thoughts go out to those of you who are currently having a

tough

> time.

>

> I realise there has been quite a few posts recently with regards

to

> blood sugar levels, however I wonder if anyone has any advice or

> information on this subject for 4 year olds.

>

> I had to take my daughter, , who is nearly 4 and has RSS, to

A & E

> today as she collapsed at home from what appears to be a

> hypoglycaemic episode. She has not been well for a few days - she

has

> the onset of a cough, and was sick once yesterday and had a couple

of

> bouts of diarrhea plus a temp of 39.7 degrees, but on the whole

was

> rallying quite well, and responding to Calpol (not sure what you

use

> in the US - it's to regulate temperature) and her asthma inhalers.

> She seemed really well this morning and I thought she had turned a

> corner, but she refused her morning milk ( she has Nutrini Hi-

> Energy). At 10.30am whilst watching TV she called through 'I'm

hungry

> mummy' (most unlike her!) and I went through to see what she

wanted

> to eat and she was flaked out on the floor, really really sweaty

and

> her eyes were rolled back in her head. But her temp was fine. I

> thought it must be blood sugars (thank you to everyone who has

posted

> about this, as that's how I recognised the symptoms) and managed

to

> get her to drink some Ribena and then spoonfed her some cereal and

> milk, although she was really floppy and her head was lolling

around.

> Then, after about 15 minutes of laying in my arms, she looked up

and

> started to chat about the telly, as if nothing had happened.

>

> I took her to A & E, where a urine test showed that she has glucose

in

> her urine, and the doc said that she had most certainly

experienced a

> hypo. They also found that she had an ear infection (don't I feel

> guilty for not noticing) and is starting on antibitotics for that.

> They have written to her Endo requesting that they run tests for

> diabetes and blood sugar levels.

>

> I guess I wanted to ask what tests are likely to be carried out,

and

> also to ask isn;t it strange that should suddenly start to

be

> symptomatic of hypoglycaemia at this stage? I was always worried

> about it as an infant (and therefore fed her every 4 hours until

she

> was 18 months including during the night) but she never displayed

any

> symptoms then. We also tested her blood sugars with a diabetic

home-

> test kit (on suggestion of our Endo) twice as an infant/toddler,

but

> all readings were within normal parameters.

>

> Does anyone else have any experience of getting hypoglycaemia

later

> rather than as an infant?

>

> Are there any medical papers which could be recommended to read

about

> it (I am a member of MAGIC, so could download them).

>

> I am sorry for such a long post, however I really wanted to ask

> people's advice, and I hope that you will all understand more

about

> what we are going through as it appears to be quite common for RSS

> kids.

>

> Thanks in advance for your help,

>

> Love Rae, mum to , nearly 4, 25lbs10oz, 92cm, Movicol (for

> constipation), asthma inhalers, no tube, no gh, not yet anyway

>