Guest guest Posted February 10, 2009 Report Share Posted February 10, 2009 Hello carolruge, You are going to have to make some decisions. Right now it sounds like you are feeding your body, but not fighting the cancer. If you decide to go with the Budwig Diet you can't leave out the cottage cheese (or yogurt, or quark). It is called the Oil/Protein diet for a reason. You need the combo of the sulphur amino acids and the omega 3 fats. Leaving out the cottage cheese can build a healthy body, but you'll still have the tumor. If you decide to go with Budwig you can't use Cantron/Protocel. They are powerful antioxidants and will completely sabotage Budwig. You also can't use the vitamin C and E if you go with Budwig. If you go with Cantron/Protocel you also can't use the other antioxidants, especially vitamin C. They will stop the Protocel/Cantron from working. Milk is bad. It does not matter if it is raw or not. It's still wrong for cancer. The exception is the cottage cheese+flax oil blend. Forget that it is dairy. This is an exception. The biochemical activity on cancer cell membranes outweighs the negatives of the casein protein. Looking at the choices statistically.....If you avoiod dairy and just take a lot of supplements your cancer will progress. If you had Dr. Budwig helping you through the Budwig diet (she died a few years back), you might have up to a 90% chance of beating the disease, according to anecdotes. In the real world, without Dr. Budwig, the success rate is considerably less than this. It is still however better than most approaches out there. Cantron and Protocel help about half the people that follow that protocol. Some people coaching people on this approach claim higher success. You can boost Cantron and Protocel by using acetogenins synergistically (paw paw or graviola). There are a variety of other approaches compatible with Cantron and Protocel. I've only commented on a few things you've already mentioned. There are other approaches available that hold promise for many. You'll learn about some of them on this list. What works for one person may not work for another. Mike Tuesday, February 10, 2009, 7:16:26 PM, you wrote: c> Hi all, my first time posting but have been reading the posts for a c> few months.I'm amazed at all the information everyone has been able to c> accrue on this journey. c> Anyway, I was diagnosed w/breast cancer 9 months ago. Decided to not c> jump on the surgery/chemo/radiation conveyor belt after researching c> for weeks and then months. I became pretty much raw/vegan, lots of c> juicing, smoothies (have tried to follow the O. Young PH diet) c> and incorporated the Budwig flax seed oil/cottage cheese mixture. c> But 3-4 months into the diet I ran across research by Jane Plant, a c> British scientist, (and breast cancer survivor), that really c> implicated dairy in feeding cancer. That and the info from T. Colin c> 's 30 year research (The China Study) stopped me cold. c> Everything in my diet remained the same except I dropped the cottage c> cheese but kept the flax seed and flax oil. Am feeling better with all c> the diet changes since the diagnosis than I have in my entire life, c> but still have the lump (and it's grown a little, so no time to waste). c> Have read quite a bit about Protocell and thought that might be worth c> a try, but have found out with further investigation that juicing and c> raw foods are a no-no. Along with vit C, E, omega 3's and numerous c> other things that raise the voltage or strength of the cells. I was c> told by Tony Bell to include animal protein and lay off the raw food. c> My head is swimming. c> My question is, does Protocel have that good a track record? What are c> the thoughts out there? I took a look at their user group and there c> doesn't seem to be that much activity. c> Any thoughts or suggestions would be appreciated. I'm just not sure c> what to do next. I've felt so good eating the way I have, it's hard to c> imagine changing my diet so drastically (once again). c> Thanks for your help. c> Carol -- Best regards, Mike mailto:goldenmike@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I will not discount this but my experience as a clinician shows otherwise. I help many, many who after having done a long treatment with FO/CC come to me in the advanced stages of cancer. Most are very devout to the treatment and are devastated by their set-back. This is part of what I help people with but nonetheless, devastating because now time is of essence to help. I am NOT discounting the FO/CC treatment, just sharing with you my experience with people that come to me. Blessings, Johanne From: Dana Herbert Sent: Tuesday, February 10, 2009 9:00 PM Subject: Re: [ ] Confused Me too. Also that raw dairy contains much more CLA (conjugated linoleic acid) than cooked milk, which is anti-cancer. I also recently read that mixing flax oil with cottage cheese takes away all the " dairy " components of the cottage cheese, but you can also make cottage cheese from raw milk very easily. I would also get lots of vitamin D from the sun. On Tue, Feb 10, 2009 at 9:47 PM, <szukipoo@...> wrote: > I have been advised that raw dairy is different and doesn't cause cancer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Johanne, Now I'm confused. Milk has lactose in it which is sugar. And we all know that sugar feeds cancer. So you are saying that FO/CC isn't good for cancer? Did these people mix their FO/CC in a blender to get all of it mixed up and eat it or did they just stir it? I was told that you have to mix it up very good in a mixer or blender. I have NHL and was thinking about trying the FO/CC. I do try and stay away from all sugars. Even breads except for rye bread. I also tried Millet bread. But it had juice mixed in it for flavor. I also read that to eat fruit and veggies not juice them as you get all of the nutrients better that way. There are so many things I don't know yet. I had my next to the last Chemo round yesterday and will have to have a maintenance dose of Rituxan every 6 months for 2 years to keep the Lymphoma at bay. But all I will have is just one type of chemo with those. Thank the lord, because I have a 10 hour stay at the hospital when I get the ones I'm taking now. Four different types of chemo. And they really knock me down. After 24 hours I have to go back for a Neulasta shot to help my bone marrow. I caught a cold about a week and a half ago and didn't really get too sick. So I guess the Neulasta is working. My wbc was normal yesterday. I also eat lots of oranges. When I can afford to get them. One of the chemos I take says not to take vitamin E or C. Didn't say I couldn't eat oranges... I also have to stay away from Garlic, and Ginseng according to the paperwork on this one Chemo... Anyway, I sure hate to hear that people aren't getting better with the Budwig diet. Now I don't know if I should try it or not. Thanks for your information. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 > > Hi Carol: > > Why are juicing and raw foods bad? > > ~Amber > > > As I understand it, Protocell lowers the energy of all the cells (healthy and cancerous). So anything that might raise the ATP or energy will counteract the Protocell. I was told to Avoid: Vitamin supplements-they raise cell energy No carrot juice/beet juice No omega 3 - raises ATP No Vit E or C or CoQ10 No iodine practically all the things I've been doing. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 a, The last thing is wanting to confuse you. I only can tell you that clinically, ALL the people that came to me that were getting worse using FO/CC turned out allergic to cottage cheese! I used to eat what I thought was healthy and was regarded as quite strict but it is only when I became a metabolic typing advisor and did my own plan combined with food allergies that I was able to fine tune the diet. Everything else was guesswork. It is quite humbling to tell you this. I searched and searched. Everyone has their own theories but no testing to clinically show it when it comes to food. After all this searching and learning and professional training, I am the type of personality that values testing now, not just theories because that is the only way I was able to personalize my own plan and find healing. I had a little daughter with lymphoma once. She was 5 years old at the time and has never had a reoccurrence and she is 17 years old today. I basically look for the underlying causes and recommend diet and those to clear up and the cancer is really discouraged. It is an education and hard work but nothing like what you are going through. I will pray for your safety through it all and hopefully, you can develop the courage to learn and look for all the underlying things that would ignite this beast within your body. You can do it. We did it and continue to be vigilant with all those tools. Contact me privately when you are ready and we can go from there. I just want to encourage you to learn what your own body needs, not what is supposedly good out there. You are unique! Blessings, Johanne From: brainpause533 Sent: Wednesday, February 11, 2009 7:49 AM Subject: [ ] Re: Confused Johanne, Now I'm confused. Milk has lactose in it which is sugar. And we all know that sugar feeds cancer. So you are saying that FO/CC isn't good for cancer? Did these people mix their FO/CC in a blender to get all of it mixed up and eat it or did they just stir it? I was told that you have to mix it up very good in a mixer or blender. I have NHL and was thinking about trying the FO/CC. I do try and stay away from all sugars. Even breads except for rye bread. I also tried Millet bread. But it had juice mixed in it for flavor. I also read that to eat fruit and veggies not juice them as you get all of the nutrients better that way. There are so many things I don't know yet. I had my next to the last Chemo round yesterday and will have to have a maintenance dose of Rituxan every 6 months for 2 years to keep the Lymphoma at bay. But all I will have is just one type of chemo with those. Thank the lord, because I have a 10 hour stay at the hospital when I get the ones I'm taking now. Four different types of chemo. And they really knock me down. After 24 hours I have to go back for a Neulasta shot to help my bone marrow. I caught a cold about a week and a half ago and didn't really get too sick. So I guess the Neulasta is working. My wbc was normal yesterday. I also eat lots of oranges. When I can afford to get them. One of the chemos I take says not to take vitamin E or C. Didn't say I couldn't eat oranges... I also have to stay away from Garlic, and Ginseng according to the paperwork on this one Chemo... Anyway, I sure hate to hear that people aren't getting better with the Budwig diet. Now I don't know if I should try it or not. Thanks for your information. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Mike Golden wrote: > Hello carolruge, > You are going to have to make some decisions. Right now it sounds > like you are feeding your body, but not fighting the cancer. > If you decide to go with the Budwig Diet you can't leave out the > cottage cheese (or yogurt, or quark). It is called the Oil/Protein > diet for a reason. You need the combo of the sulphur amino acids and Cantron and Protocel help about half the people that follow that protocol. Some people coaching people on this approach claim higher success. You can boost Cantron and Protocel by using acetogenins synergistically (paw paw or graviola). There are a variety of other approaches compatible with Cantron and Protocel. > Everyone, Thanks for your responses. It has really helped to clarify these choices in my mind. As I said in my post, I had originally, after dx, done the Budwig for 3-4 months. When I went for a thermograph in late September(almost 5 months after diagnosis) my doc was amazed that the tumor had not grown and there was little differentiation from my healthy breast. But then, as I said, I stopped doing the FO/CC because of the dairy connection w/cancer. I'm presently working with a naturapath and I will have him run the hormone tests for me. As for the diet, giving up the raw foods, juicing, etc., really scares me because I followed the Budwig protocol pretty religiously and loved the way it made me feel (all health problems disappeared, including high chol., achy joints, headaches, excess weight, etc.) So, in retrospect, Budwig had a positive affect on the tumor and my health in general. And the suggestion to change whatever diet I was on when first diagnosed is excellent. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hi Carol, I'm glad to read that you were doing so well while following the Budwig diet. You felt good and you wrote, " I had originally, after dx, done the Budwig for 3-4 months. When I went for a thermograph in late September(almost 5 months after diagnosis) my doc was amazed that the tumor had not grown and there was little differentiation from my healthy breast. But then, as I said, I stopped doing the FO/CC because of the dairy connection w/cancer. " I'm sorry that you were swayed by the book, The China Study, and comments by others criticizing dairy in general. For a review and criticism of the methods and conclusions drawn by T. Colin in The China Study book, please read the article linked here. http://www.westonaprice.org/bookreviews/chinastudy.html Secondly, when you read about dairy being connected to cancer, I'm reminded of the information that I have seen. It's often taken from studies of people that are eating all kinds of dairy including ice cream along with a standard diet of beef, pork, chicken, eggs, etc. Consequently, they are ingesting a high amount of saturated animal fat. Then, the writer concludes that the countries that eat the most dairy have the most breast cancer. The Budwig diet uses low-fat CC and eliminates all saturated animal fat. Also, organic CC is recommended. Organic verses non-organic dairy is another issue that affects study results. Whatever the criticism of dairy is, it doesn't seem to reflect on the results that occur when people consume blended flax oil and cottage cheese or quark. Like you, many of those people, who may have advanced cancerous conditions, even diagnosed as terminal, begin to regain their health and become cancer free. Like any other treatment for cancer, it doesn't work for everyone, but it seems to work very well for a high number of people. In the FlaxseedOil2 group, we receive new testimonials every couple weeks or so from people who are getting well and staying well after experiencing advanced cancers of various types. For anyone who wants to join the FlaxseedOil2 group, you can do so by clicking this link. flaxseedoil2 When a new member joins, an email explaining the Budwig plan is sent out automatically as well as a 2nd email listing recent messages from members who have given testimonials. We have over 100 testimonials in our files but send out only a few of them in the email. Carol, you wrote: " So, in retrospect, Budwig had a positive affect on the tumor and my health in general. " I would say that the Budwig plan was working in a very positive way for you. I hope that my comments above help you to overcome your concerns about using cottage cheese. Best wishes, " carolruge " wrote: > Everyone, > Thanks for your responses. It has really helped to clarify these > choices in my mind. As I said in my post, I had originally, after dx, done the Budwig for 3-4 months. When I went for a thermograph in late September(almost 5 months after diagnosis) my doc was amazed that the tumor had not grown and there was little differentiation from my healthy breast. But then, as I said, I stopped doing the FO/CC because of the dairy connection w/cancer. > > I'm presently working with a naturapath and I will have him run the > hormone tests for me. As for the diet, giving up the raw foods, > juicing, etc., really scares me because I followed the Budwig protocol pretty religiously and loved the way it made me feel (all health problems disappeared, including high chol., achy joints, headaches, excess weight, etc.) So, in retrospect, Budwig had a positive affect on the tumor and my health in general. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 , Thank you for your wonderful words of encouragement. You are so right! Johanne From: Olson Sent: Wednesday, February 11, 2009 2:51 PM Subject: [ ] Re: Confused Hi Carol, I'm glad to read that you were doing so well while following the Budwig diet. You felt good and you wrote, " I had originally, after dx, done the Budwig for 3-4 months. When I went for a thermograph in late September(almost 5 months after diagnosis) my doc was amazed that the tumor had not grown and there was little differentiation from my healthy breast. But then, as I said, I stopped doing the FO/CC because of the dairy connection w/cancer. " I'm sorry that you were swayed by the book, The China Study, and comments by others criticizing dairy in general. For a review and criticism of the methods and conclusions drawn by T. Colin in The China Study book, please read the article linked here. http://www.westonaprice.org/bookreviews/chinastudy.html Secondly, when you read about dairy being connected to cancer, I'm reminded of the information that I have seen. It's often taken from studies of people that are eating all kinds of dairy including ice cream along with a standard diet of beef, pork, chicken, eggs, etc. Consequently, they are ingesting a high amount of saturated animal fat. Then, the writer concludes that the countries that eat the most dairy have the most breast cancer. The Budwig diet uses low-fat CC and eliminates all saturated animal fat. Also, organic CC is recommended. Organic verses non-organic dairy is another issue that affects study results. Whatever the criticism of dairy is, it doesn't seem to reflect on the results that occur when people consume blended flax oil and cottage cheese or quark. Like you, many of those people, who may have advanced cancerous conditions, even diagnosed as terminal, begin to regain their health and become cancer free. Like any other treatment for cancer, it doesn't work for everyone, but it seems to work very well for a high number of people. In the FlaxseedOil2 group, we receive new testimonials every couple weeks or so from people who are getting well and staying well after experiencing advanced cancers of various types. For anyone who wants to join the FlaxseedOil2 group, you can do so by clicking this link. flaxseedoil2 When a new member joins, an email explaining the Budwig plan is sent out automatically as well as a 2nd email listing recent messages from members who have given testimonials. We have over 100 testimonials in our files but send out only a few of them in the email. Carol, you wrote: " So, in retrospect, Budwig had a positive affect on the tumor and my health in general. " I would say that the Budwig plan was working in a very positive way for you. I hope that my comments above help you to overcome your concerns about using cottage cheese. Best wishes, " carolruge " wrote: > Everyone, > Thanks for your responses. It has really helped to clarify these > choices in my mind. As I said in my post, I had originally, after dx, done the Budwig for 3-4 months. When I went for a thermograph in late September(almost 5 months after diagnosis) my doc was amazed that the tumor had not grown and there was little differentiation from my healthy breast. But then, as I said, I stopped doing the FO/CC because of the dairy connection w/cancer. > > I'm presently working with a naturapath and I will have him run the > hormone tests for me. As for the diet, giving up the raw foods, > juicing, etc., really scares me because I followed the Budwig protocol pretty religiously and loved the way it made me feel (all health problems disappeared, including high chol., achy joints, headaches, excess weight, etc.) So, in retrospect, Budwig had a positive affect on the tumor and my health in general. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Master mechanic versus a do-it-at-home garage mechanic with a Haynes manual. We are stuck with the " Haynes Manual " after the master mechanic passed away. > > I think Mike Golden said in this ( ) group that the JB > protocol had a much better success rate which she was still alive and > had taken ppl under her wing and treated them.....not the same degree > of success anymore. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Hi Carol. You will figure it out. It is a wonderful but scary process. Cheri > > Hello carolruge, > > You are going to have to make some decisions. Right now it sounds > > like you are feeding your body, but not fighting the cancer. > > If you decide to go with the Budwig Diet you can't leave out the > > cottage cheese (or yogurt, or quark). It is called the Oil/Protein > > diet for a reason. You need the combo of the sulphur amino acids and Cantron and Protocel help about half the people that follow that > protocol. Some people coaching people on this approach claim higher > success. You can boost Cantron and Protocel by using acetogenins > synergistically (paw paw or graviola). There are a variety of other > approaches compatible with Cantron and Protocel. > > > > > Everyone, > > Thanks for your responses. It has really helped to clarify these > choices in my mind. As I said in my post, I had originally, after dx, > done the Budwig for 3-4 months. When I went for a thermograph in late > September(almost 5 months after diagnosis) my doc was amazed that the > tumor had not grown and there was little differentiation from my > healthy breast. But then, as I said, I stopped doing the FO/CC because > of the dairy connection w/cancer. > > I'm presently working with a naturapath and I will have him run the > hormone tests for me. As for the diet, giving up the raw foods, > juicing, etc., really scares me because I followed the Budwig protocol > pretty religiously and loved the way it made me feel (all health > problems disappeared, including high chol., achy joints, headaches, > excess weight, etc.) So, in retrospect, Budwig had a positive affect > on the tumor and my health in general. > > And the suggestion to change whatever diet I was on when first > diagnosed is excellent. > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Hi , You summarized the situation very succinctly. I did do well on the Budwig diet and felt great. But, at the time, I don't think I realized how well I was doing. It's only in retrospect that I've realized that the tumor had made no headway for 4 months after dx. But was it the diet or is it just a very slow growing tumor? That I don't know. But I do know that since I dropped the CC out of the FO, the tumor has increased in size. Carol (still confused) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Dear Anne, There are so many alternatives for treating yeast, that if you told him you were uncomfortable using the Ca-EDTA, he should have other ideas for you. I just called my DAN! yesterday about yeast treatments, and some of the suggestions they gave me were: tannalbit, paramicrocidin, or garlic. Does anyone have any experience with any of these? Kim On Tue, May 12, 2009 at 10:23 AM, irishmom32 <irishmom32@...> wrote: > > > We are totally confused about what our DAN doctor has prescribed for our > son, 4, who has autism. We independently had the French porphyrins test done > and found that he was high in mercury and lead, as well as arsenic. We tried > the DMSA/ALA while waiting to see the DAN doctor, who told us that our son > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- > and also that B vitamins were contributing to his yeast overgrowth problem. > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > I've read that EDTA is never a good idea. HELP!!!!! > > I'm not even sure what questions I should start asking.... > > Any help would be appreciated. > > Much, much thanks > > Anne > > > -- Human beings are not born once and for all on the day their mothers give birth to them, but rather life obliges them over and over again to give birth to themselves. Marquez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Get a good yeast protocol on board. Biotin, Grapefruit seed Extract, Oil of Oregano. Then chelate using the AC protocol. 1/8 - 1/2 mg of DMSA and ALAÂ per pound of body weight every 3 hours during the day and every 4 hours when sleeping. Three days on and four days off. Most chelate Friday afternoon until Monday morning. Take the supporting supplements. Buy Andy's books and study. TJ ________________________________ From: irishmom32 <irishmom32@...> Sent: Tuesday, May 12, 2009 7:23:54 AM Subject: [ ] Confused We are totally confused about what our DAN doctor has prescribed for our son, 4, who has autism. We independently had the French porphyrins test done and found that he was high in mercury and lead, as well as arsenic. We tried the DMSA/ALA while waiting to see the DAN doctor, who told us that our son was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- and also that B vitamins were contributing to his yeast overgrowth problem. Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but I've read that EDTA is never a good idea. HELP!!!!! I'm not even sure what questions I should start asking.... Any help would be appreciated. Much, much thanks Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 I've heard that too much of the grapefruit seed extract and oil of oregano can be dangerous. My guy is only 27 lbs....any suggestions on how much to give? On Tue, May 12, 2009 at 1:43 PM, TJ Werth <tj_werth@...> wrote: > > > Get a good yeast protocol on board. Biotin, Grapefruit seed Extract, Oil of > Oregano. > Then chelate using the AC protocol. 1/8 - 1/2 mg of DMSA and ALA per pound > of body weight every 3 hours during the day and every 4 hours when sleeping. > Three days on and four days off. Most chelate Friday afternoon until Monday > morning. > Take the supporting supplements. > Buy Andy's books and study. > TJ > > ________________________________ > From: irishmom32 <irishmom32@... <irishmom32%40>> > < %40> > Sent: Tuesday, May 12, 2009 7:23:54 AM > Subject: [ ] Confused > > We are totally confused about what our DAN doctor has prescribed for our > son, 4, who has autism. We independently had the French porphyrins test done > and found that he was high in mercury and lead, as well as arsenic. We tried > the DMSA/ALA while waiting to see the DAN doctor, who told us that our son > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- > and also that B vitamins were contributing to his yeast overgrowth problem. > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > I've read that EDTA is never a good idea. HELP!!!!! > > I'm not even sure what questions I should start asking.... > > Any help would be appreciated. > > Much, much thanks > > Anne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Just the garlic. If you child can not swallow capsules, the liquid is nasty! Couldn't get it down him. Tammy Re: [ ] Confused Dear Anne, There are so many alternatives for treating yeast, that if you told him you were uncomfortable using the Ca-EDTA, he should have other ideas for you. I just called my DAN! yesterday about yeast treatments, and some of the suggestions they gave me were: tannalbit, paramicrocidin, or garlic. Does anyone have any experience with any of these? Kim On Tue, May 12, 2009 at 10:23 AM, irishmom32 <irishmom32@...> wrote: > > > We are totally confused about what our DAN doctor has prescribed for our > son, 4, who has autism. We independently had the French porphyrins test done > and found that he was high in mercury and lead, as well as arsenic. We tried > the DMSA/ALA while waiting to see the DAN doctor, who told us that our son > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- > and also that B vitamins were contributing to his yeast overgrowth problem. > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > I've read that EDTA is never a good idea. HELP!!!!! > > I'm not even sure what questions I should start asking.... > > Any help would be appreciated. > > Much, much thanks > > Anne > > > -- Human beings are not born once and for all on the day their mothers give birth to them, but rather life obliges them over and over again to give birth to themselves. Marquez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Start with a low dose and work your way up. Our younger boy is around the same weight and he takes 250mg of GSE a day. Same with any supplement, start out slow and see how he tolerates it and see if it has any positive results. If there is no yeast control benefits then try something else. TJ ________________________________ From: Kimberley Yee <yeekimi@...> Sent: Tuesday, May 12, 2009 11:29:50 AM Subject: Re: [ ] Confused I've heard that too much of the grapefruit seed extract and oil of oregano can be dangerous. My guy is only 27 lbs....any suggestions on how much to give? On Tue, May 12, 2009 at 1:43 PM, TJ Werth <tj_werth (DOT) com> wrote: > > > Get a good yeast protocol on board. Biotin, Grapefruit seed Extract, Oil of > Oregano. > Then chelate using the AC protocol. 1/8 - 1/2 mg of DMSA and ALA per pound > of body weight every 3 hours during the day and every 4 hours when sleeping. > Three days on and four days off. Most chelate Friday afternoon until Monday > morning. > Take the supporting supplements. > Buy Andy's books and study. > TJ > > ____________ _________ _________ __ > From: irishmom32 <irishmom32 (DOT) com <irishmom32% 40> > > < % 40groups. com> > Sent: Tuesday, May 12, 2009 7:23:54 AM > Subject: [ ] Confused > > We are totally confused about what our DAN doctor has prescribed for our > son, 4, who has autism. We independently had the French porphyrins test done > and found that he was high in mercury and lead, as well as arsenic. We tried > the DMSA/ALA while waiting to see the DAN doctor, who told us that our son > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- > and also that B vitamins were contributing to his yeast overgrowth problem.. > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > I've read that EDTA is never a good idea. HELP!!!!! > > I'm not even sure what questions I should start asking.... > > Any help would be appreciated. > > Much, much thanks > > Anne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Thanks, TJ. It's helpful to know what someone else started at. I always want to start low, but I'm not always sure what " low " means, relatively speaking. Thanks! On Tue, May 12, 2009 at 4:41 PM, TJ Werth <tj_werth@...> wrote: > > > Start with a low dose and work your way up. Our younger boy is around the > same weight and he takes 250mg of GSE a day. > Same with any supplement, start out slow and see how he tolerates it and > see if it has any positive results. If there is no yeast control benefits > then try something else. > TJ > > ________________________________ > From: Kimberley Yee <yeekimi@... <yeekimi%40gmail.com>> > < %40> > Sent: Tuesday, May 12, 2009 11:29:50 AM > Subject: Re: [ ] Confused > > I've heard that too much of the grapefruit seed extract and oil of oregano > can be dangerous. My guy is only 27 lbs....any suggestions on how much to > give? > > On Tue, May 12, 2009 at 1:43 PM, TJ Werth <tj_werth (DOT) com> wrote: > > > > > > > Get a good yeast protocol on board. Biotin, Grapefruit seed Extract, Oil > of > > Oregano. > > Then chelate using the AC protocol. 1/8 - 1/2 mg of DMSA and ALA per > pound > > of body weight every 3 hours during the day and every 4 hours when > sleeping. > > Three days on and four days off. Most chelate Friday afternoon until > Monday > > morning. > > Take the supporting supplements. > > Buy Andy's books and study. > > TJ > > > > ____________ _________ _________ __ > > From: irishmom32 <irishmom32 (DOT) com <irishmom32% 40> > > > < % 40groups. > com> > > Sent: Tuesday, May 12, 2009 7:23:54 AM > > Subject: [ ] Confused > > > > We are totally confused about what our DAN doctor has prescribed for our > > son, 4, who has autism. We independently had the French porphyrins test > done > > and found that he was high in mercury and lead, as well as arsenic. We > tried > > the DMSA/ALA while waiting to see the DAN doctor, who told us that our > son > > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast > -- > > and also that B vitamins were contributing to his yeast overgrowth > problem.. > > > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > > I've read that EDTA is never a good idea. HELP!!!!! > > > > I'm not even sure what questions I should start asking.... > > > > Any help would be appreciated. > > > > Much, much thanks > > > > Anne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Same here, kid doesn't take capsule/pills. We ended up using grapefruit seed extract because I could get tablets and grind them into powder, and put the powder into food or drink. Skip the Ca-EDTA. I don't know what he thinks that is going to do for yeast anyway. Why not give nystatin powder, diflucan...there are many antifungal scripts the doc would offer. Then there are: grapefruit seed, oil of oregano, caprylic acid, pau d'arco, etc for natural options to treat yeast. And of course, giving probiotics daily away from these to help rebalance the gut. > > > > > > > We are totally confused about what our DAN doctor has prescribed for our > > son, 4, who has autism. We independently had the French porphyrins test done > > and found that he was high in mercury and lead, as well as arsenic. We tried > > the DMSA/ALA while waiting to see the DAN doctor, who told us that our son > > was high in yeast and we needed to stop the DMSA/ALA and treat the yeast -- > > and also that B vitamins were contributing to his yeast overgrowth problem. > > > > Now our DAN wants to add Ca-EDTA to his diflucan to help treat yeast, but > > I've read that EDTA is never a good idea. HELP!!!!! > > > > I'm not even sure what questions I should start asking.... > > > > Any help would be appreciated. > > > > Much, much thanks > > > > Anne > > > > > > > > -- > Human beings are not born once and for all on the day their mothers give > birth to them, but rather life obliges them over and over again to give > birth to themselves. > Marquez > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 > > I've heard that too much of the grapefruit seed extract and oil of oregano > can be dangerous. My guy is only 27 lbs....any suggestions on how much to > give? Too much of anything can be dangerous. I would start with one drop of GSE, and work up as required. My son does fine with relatively high doses, but not all kids can take as much as my son can. Adding biotin, ACV, and Candidase allowed me to reduce the dose of GSE I gave. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 My baby is 6 1/2 months old. We live in Toronto. Last week he got his helmet at Sick Kids Hopsital.His helmet is different from the DOC bands or STARbands, it looks more like a sport helmet, no openings on the top only 4 small holes, and a chin strap. When we took him to Sick Kids Hospital the first time, the specialist said he has mild positional plagiocephaly on the back right side of his head and in the back. He said " it is your decision regarding the helmet, you can go with it or keep repositioning him as his condition may improve just avaoiding lots of time on his back and slleping on his sides " so we decided to go with the helmet as we wanted TO BE SURE the flatness even it was " no very noticible " will be corrected we didn't want to take the risk of just wait and see. Well since we startes the process fo his helmet until the day we got it we kept putting him to sleep on his left side and avoided him laying on his back, and holding most of the time when we went out (instead to be in the stroller of carseat), it is hard work but we were able to do it. We saw LOTS of improvement just in the couple of weeks while waiting for his helmet. We put his helmet on and he hates the chin strap and at times scream when he put his helmet on. We want to be sure we are putting his helmet on properly so we are going this Friday to see the specialist again to check if we are doing it right, but we think our baby never is gonna like the chin strap. We are so confused now, we can say that the his head improved A LOT and there is still a little bit of flatness but so much less than before. Does it mean it will just improve if we keep positioning him? We went to a lot to get this helmet (stressful days and nights worrying, borrowing money from parents, still waiting to hear from insurance). We told some people about it a week before getting his helmet and we had a gattering and almost everybody was staring at his head it was so upsetting and uncomfortable. We decided that we will try the helmet during the day as much as possible and we think he will need to use it for a short time (hopefully) but we are worry about night time as we think the strap really will bother him. We want to know if anybody know if he uses the helmet only during the day (let's say between 8 to 10 hrs a day) will does the helmet still work? Will his head get corrected? We are thinking that we will try to avoid taking him with his helmet at gatherings as it is so uncomfortable when people stare at him. But we just want to do the VERY BEST for our baby so we are confused, we thought he will adjust better to it but it seems he doesn't like it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Everyone here knows how it feels to take our babies out for the first time with the helmet on... It's more awkward for everyone else because they are unfamiliar with them. It's such a temporary situation that I would keep trying and be consistent. Most growth happens at night and that is the most important time for him to wear it. Keep increasing your wear time every day and you will be amazed at how he will become adjusted to it! He will be thankful you did this! He also can sense your emotions about it and the more positive you react the better he will be. Good luck. Lesley mom to Bruce- star band 2010 > > My baby is 6 1/2 months old. We live in Toronto. Last week he got his helmet at Sick Kids Hopsital.His helmet is different from the DOC bands or STARbands, it looks more like a sport helmet, no openings on the top only 4 small holes, and a chin strap. > When we took him to Sick Kids Hospital the first time, the specialist said he has mild positional plagiocephaly on the back right side of his head and in the back. He said " it is your decision regarding the helmet, you can go with it or keep repositioning him as his condition may improve just avaoiding lots of time on his back and slleping on his sides " so we decided to go with the helmet as we wanted TO BE SURE the flatness even it was " no very noticible " will be corrected we didn't want to take the risk of just wait and see. > Well since we startes the process fo his helmet until the day we got it we kept putting him to sleep on his left side and avoided him laying on his back, and holding most of the time when we went out (instead to be in the stroller of carseat), it is hard work but we were able to do it. > We saw LOTS of improvement just in the couple of weeks while waiting for his helmet. We put his helmet on and he hates the chin strap and at times scream when he put his helmet on. We want to be sure we are putting his helmet on properly so we are going this Friday to see the specialist again to check if we are doing it right, but we think our baby never is gonna like the chin strap. > We are so confused now, we can say that the his head improved A LOT and there is still a little bit of flatness but so much less than before. Does it mean it will just improve if we keep positioning him? > We went to a lot to get this helmet (stressful days and nights worrying, borrowing money from parents, still waiting to hear from insurance). We told some people about it a week before getting his helmet and we had a gattering and almost everybody was staring at his head it was so upsetting and uncomfortable. > We decided that we will try the helmet during the day as much as possible and we think he will need to use it for a short time (hopefully) but we are worry about night time as we think the strap really will bother him. > We want to know if anybody know if he uses the helmet only during the day (let's say between 8 to 10 hrs a day) will does the helmet still work? Will his head get corrected? > We are thinking that we will try to avoid taking him with his helmet at gatherings as it is so uncomfortable when people stare at him. > But we just want to do the VERY BEST for our baby so we are confused, we thought he will adjust better to it but it seems he doesn't like it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi Isela. My son has been in his doc band for 5 weeks now and during the time we were waiting on our band my husband & I were trying to figure out ways to not have our son out much during his wearing time and how we could use our hour off for events and gatherings. It turns out that we were worrying for nothing as the response to his helmet has been much better than we could have ever expected! Some people already know what the helmet is for and others will simply ask about it. Those that just stare are just curious and so I make it a point to say something simple like " we're fixing his flat spot " That usually leads to them asking questions to learn more about the process. So we haven't changed up our routine at all in terms of when and where we take our son - helmet and all. I would stick with the helmet if you think there needs to be some correction still after the repositioning. And I wouldn't let fear of people's reactions cause you to not have your child wear it the suggested amount of time. You are doing something to help your child and no one can find fault in that. You will be shocked at how much easier it is dealing with people about the helmet I promise you! We as parents worry so much but I found that it bothered me and my husband but no one else thought anything negative at all about it Good luck!! Wendi > > My baby is 6 1/2 months old. We live in Toronto. Last week he got his helmet at Sick Kids Hopsital.His helmet is different from the DOC bands or STARbands, it looks more like a sport helmet, no openings on the top only 4 small holes, and a chin strap. > When we took him to Sick Kids Hospital the first time, the specialist said he has mild positional plagiocephaly on the back right side of his head and in the back. He said " it is your decision regarding the helmet, you can go with it or keep repositioning him as his condition may improve just avaoiding lots of time on his back and slleping on his sides " so we decided to go with the helmet as we wanted TO BE SURE the flatness even it was " no very noticible " will be corrected we didn't want to take the risk of just wait and see. > Well since we startes the process fo his helmet until the day we got it we kept putting him to sleep on his left side and avoided him laying on his back, and holding most of the time when we went out (instead to be in the stroller of carseat), it is hard work but we were able to do it. > We saw LOTS of improvement just in the couple of weeks while waiting for his helmet. We put his helmet on and he hates the chin strap and at times scream when he put his helmet on. We want to be sure we are putting his helmet on properly so we are going this Friday to see the specialist again to check if we are doing it right, but we think our baby never is gonna like the chin strap. > We are so confused now, we can say that the his head improved A LOT and there is still a little bit of flatness but so much less than before. Does it mean it will just improve if we keep positioning him? > We went to a lot to get this helmet (stressful days and nights worrying, borrowing money from parents, still waiting to hear from insurance). We told some people about it a week before getting his helmet and we had a gattering and almost everybody was staring at his head it was so upsetting and uncomfortable. > We decided that we will try the helmet during the day as much as possible and we think he will need to use it for a short time (hopefully) but we are worry about night time as we think the strap really will bother him. > We want to know if anybody know if he uses the helmet only during the day (let's say between 8 to 10 hrs a day) will does the helmet still work? Will his head get corrected? > We are thinking that we will try to avoid taking him with his helmet at gatherings as it is so uncomfortable when people stare at him. > But we just want to do the VERY BEST for our baby so we are confused, we thought he will adjust better to it but it seems he doesn't like it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2010 Report Share Posted September 20, 2010 I found that my daughter minded the band more when I was taking it on and off a lot to check for red spots. It was easier once it was on all the time. One thing that may help get it on is put him in his high chair or bumbo chair so he is more stationary when you are trying to get it on. It is even better if there are 2 people - one to hold him, and one to put the helmet on. -christine sydney, 4.5 yrs, starband grad > > > > My baby is 6 1/2 months old. We live in Toronto. Last week he got his helmet at Sick Kids Hopsital.His helmet is different from the DOC bands or STARbands, it looks more like a sport helmet, no openings on the top only 4 small holes, and a chin strap. > > When we took him to Sick Kids Hospital the first time, the specialist said he has mild positional plagiocephaly on the back right side of his head and in the back. He said " it is your decision regarding the helmet, you can go with it or keep repositioning him as his condition may improve just avaoiding lots of time on his back and slleping on his sides " so we decided to go with the helmet as we wanted TO BE SURE the flatness even it was " no very noticible " will be corrected we didn't want to take the risk of just wait and see. > > Well since we startes the process fo his helmet until the day we got it we kept putting him to sleep on his left side and avoided him laying on his back, and holding most of the time when we went out (instead to be in the stroller of carseat), it is hard work but we were able to do it. > > We saw LOTS of improvement just in the couple of weeks while waiting for his helmet. We put his helmet on and he hates the chin strap and at times scream when he put his helmet on. We want to be sure we are putting his helmet on properly so we are going this Friday to see the specialist again to check if we are doing it right, but we think our baby never is gonna like the chin strap. > > We are so confused now, we can say that the his head improved A LOT and there is still a little bit of flatness but so much less than before. Does it mean it will just improve if we keep positioning him? > > We went to a lot to get this helmet (stressful days and nights worrying, borrowing money from parents, still waiting to hear from insurance). We told some people about it a week before getting his helmet and we had a gattering and almost everybody was staring at his head it was so upsetting and uncomfortable. > > We decided that we will try the helmet during the day as much as possible and we think he will need to use it for a short time (hopefully) but we are worry about night time as we think the strap really will bother him. > > We want to know if anybody know if he uses the helmet only during the day (let's say between 8 to 10 hrs a day) will does the helmet still work? Will his head get corrected? > > We are thinking that we will try to avoid taking him with his helmet at gatherings as it is so uncomfortable when people stare at him. > > But we just want to do the VERY BEST for our baby so we are confused, we thought he will adjust better to it but it seems he doesn't like it. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.