Trying to sort all of this out

January 4, 2010

Hello everyone. So as most of you already know I went to UCLA and was told from

the doctors there that I have scleroderma and that this is what is causing my

lung disease. The Doctor out there started me on cellcept 500mg BID x30days then

1000mg BID for 60days then I am to return to california to be re-evaluated. I

have read so much stuff that I feel like I can't digest it all so I am coming

here to see what all of you have found in your experiences.

Bruce and Beth you two inspire me every single day!!!!!!!! I am only 35

years old and have 4 young children who need a mommy around for many years too

come and with all of your insight I feel like this may be possible. So here are

some of my questions

1) does this mean that my pulmonary fibrosis is not IPF-UIP like they originally

told me? (the doctor in california said something about NSIP fibrotic) what does

that mean.

2)If it is still considered UIP-IPF then why am I on cellcept what I can find

says nothing really works for this type of PF.

3)Is the prognosis just as bad if the scleroderma is causing my lung disease?

4) has anyone ever heard of Serracor-NK it claims to help prevent the further

build up of fibrotic tissue? Any experience with it?

I am sorry to ask so many questions it is all so confusing to me still and I am

overwhelmed with so many different ideas it is hard to sort through them and

find a starting place. Any insight would be greatly appreciated. Thanks in

advance to all of you wonderful people who help me get through each day. Tammy

IPF-UIP10/09 Scleroderma 11/09

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