Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Another group I am in (for parents of kids with chromosome abnormalities) started this discussion on Phenobarb (because one child had an extremely unusual reaction to it). One parent raised some very interesting points, and excerpts of her post follow. I know that RSS and/or SGA kids do not technically have a chromosome abnormality (as far as we know at this time), but I believe that this parent made a valid point - don't be paranoid, but always be perceptive. in Alaska (mom of Charissa, age 21 and *not* RSS, but had all the issues, plus some) -posted from a chromosome group: " Maybe I ought to mention here that I'm a licensed medication/treatment nurse, and HAVE dispensed my fair share of it (and assorted other drugs) that I wouldn't want to see my own child on. Here's the thing that keeps jumping out at me with my experiences over the year with my own child, my personal local friends rare chromosome children, and numerous other ones I've met through assorted on-line support groups. They just DON'T tend to respond to standard medications in the " normal' way. And why should we expect them to? They AREN'T 'normal " ! Phenobarb just happens to be the drug that I've seen the most (and most disasterous too) results from. But there are other standard drugs that I can give you horror stories on, when given to a chromosome compromised child..... What other standard drugs are out there lurking, just waiting to bite us? I don't know, and I'm not in a hurry to find out either! " Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.